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1,147 total results
Comments (1,037)
Thankyou so much for responding!You give me hope.My neurologist I just met with ordered genetic testing.I...
up in the bloodwork.We have alot of Lupus ... back negative.At the beginning when I could ... to eat solid food.No other doctor would
Support Group: Neuropathy
Posted: Mar 17, 2024
@krisrwalters I included this in my post: 'There are certainly instances where overmedication may happen, or...
I have systemic lupus, high scleroderma ... Because of my lupus, my doc did not ... lymphovascular invasion was a concern, as would
Discussion: stop the madness
Support Group: Breast Cancer
Posted: Mar 10, 2024
Fingertips like yours are often associated with Raynaud’s phenomenon, spasms in the small arteries that decrease...
with autoimmune disorders such as lupus ... It’s brought on by cold and stress or ... keep hands warm, avoid contact with cold ... I would ask your Dr to do some screening
Support Group: Autoimmune Diseases
Posted: Mar 10, 2024
Hello, I feel for you. I’m a 77 year age woman. I was diagnosed with SLE...
The various symptoms could very well ... My cousin has discoid lupus. ... I could go on. ... I would suggest being tested for autoimmune
I am wondering what made the cardiologist think you had pericarditis. If echocardiogram and inflammation markers...
With an ANA of 1:1250, lupus should ... Pleurisy is also very common in lupus ... I would get copies of all your test ... Look at a list of lupus symptoms and ... I have lupus and it took 10 years for
Support Group: Chronic Pain
Posted: Feb 16, 2024
Jim, I too have CIDP with neuropathy (up to my knees). I have lupus which also...
I have lupus which also causes Raynauds ... helps both and I know it helps the cold
Support Group: Neuropathy
Posted: Feb 13, 2024
I have Meiniere’s but also have lupus. The neurologist said that it doesn’t matter if I’m...
I have Meiniere’s but also have lupus ... Meiniere’s or AIED because the treatment would ... This may possibly be an avenue you could
Sharing, you can't listen to people who tell you how you should feel. If you are...
office and find out what condition would ... You could just tell your physician that ... I'm pretty sure you could get the ... https://time.com/6511572/managing-lupus-advances
Support Group: Brain & Nervous System
Posted: Jan 18, 2024
My Rheumatologist didn't act like it was a big deal and didn't talk about it. I...
him about my hands and feet being so cold ... tend to run along side of Systemic Lupus ... I have borderline Systemic Lupus, Fibromyalgia
Hi @twinkle23 I was diagnosed with MCTD back in 2002. I used to be in a...
Because I had Scaladerma more so than Lupus ... on an infusion called Cytotoxic (I could ... These days I hardly have Lupus flair
Discussion: Lupus pain
Support Group: Autoimmune Diseases
Posted: Oct 26, 2023
I am not sure if PMR is an autoimmune disease, but we all know that PMR...
often treated with prednisone as is lupus ... new treatment for autoimmune disease lupus ... that these cellular immunotherapies could ... patients with refractory systemic lupus ... for CAR T-cell therapy for SLE and lupus
I have had systemic lupus for 40 years and RA for about 12. I now have...
I have had systemic lupus for 40 years ... A neurologist would be appropriate to ... I would check out CIDP on the internet
Support Group: Autoimmune Diseases
Posted: Sep 22, 2023
Thank you for your post. I have the same concerns about statins. I’m not sure what...
sure what I should be doing as I have lupus ... I would have enjoyed life more living ... and have high blood pressure as it could
I was taking hydroxychloroquine for lupus in June. Was having hand swelling issues when I first...
was taking hydroxychloroquine for lupus ... Couldn't handle it. Got sick. ... Almost as if the meds started the lupus ... Seeing lupus doc on Thursday.
Support Group: Autoimmune Diseases
Posted: Sep 19, 2023