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Comments (2,264)

@char8972 Your post made my day! I could feel the strength you've gained by having a...

https://connect.mayoclinic.org/comment/1301993/

I live with RA, Sjogrens, Fibro and

Discussion: How do you cope with Mixed Connective Tissue Disease (MCTD)?

Support Group: Autoimmune Diseases

Posted: May 11 4:26pm

I have had Sjogrens for 16 years. In addition to your neurologist, are you seeing a...

https://connect.mayoclinic.org/comment/1309161/

I have had Sjogrens for 16 years. ... adults living with moderate-to-severe Sjögren

Discussion: Sjogrens in my brain!

Support Group: Autoimmune Diseases

Posted: May 21 7:05am

Thank you all for sharing your stories and info! I’ve been out of town with my...

https://connect.mayoclinic.org/comment/1310787/

wondering if this could be a sign of Sjogrens

Discussion: UCTD -does gluten and dairy free help? Post knee surgery problems

Support Group: Autoimmune Diseases

Posted: May 23 1:52am

I was diagnosed with Severe axonal sensorimotor peripheral polyneuropathy Small fiber neuropathy Cardiac autonomic neuropathy- CAN...

https://connect.mayoclinic.org/comment/1311567/

meningitis Autoimmune Disorders Sjogrens

Discussion: Lumbar Fusion and Laminectomy, Need Help.

Support Group: Spine Health

Posted: May 24 5:30am

I was diagnosed with Sjorgrens Syndrome many years ago (2008). They had prescribed Restasis Eye Drops...

https://connect.mayoclinic.org/comment/1307707/

I was diagnosed with Sjorgrens Syndrome ... can't say they work great but my Sjorgrens

Discussion: How do you deal with dry eyes?

Support Group: Eye Conditions

Posted: May 19 11:39am

I'm so sorry for what you're going through. I was diagnosed with RA in 2006 after...

https://connect.mayoclinic.org/comment/1312805/

do know there is a blood test for Sjorgrens

Discussion: Autoimmune - Advice?

Support Group: Autoimmune Diseases

Posted: May 25 6:10pm

When I woke up in June of 2022 and felt so sick, out of nowhere, I...

https://connect.mayoclinic.org/comment/1283795/

autoimmune disorders (including RA, Lupus, Sjorgen

Discussion: Finally: Diagnosis. Oddly: symptoms have come in stages. Others?

Support Group: Post-COVID Recovery & COVID-19

Posted: Apr 17 8:10am

My thoughts about stopping IvIg (for Sjogren's) are because my veins are starting to blow-they won't...

https://connect.mayoclinic.org/comment/1283582/

thoughts about stopping IvIg (for Sjogren

Discussion: Anyone had IVIG Infusions for CIDP ceased after a number of years?

Support Group: Autoimmune Diseases

Posted: Apr 16 7:28pm

@penn thanks for sharing about tailbone pain! I had a failed back surgery and have had...

https://connect.mayoclinic.org/comment/1285082/

Tuesday to my Rheumatologist about my Sjögren

Discussion: Sjogren's and small fiber neuropathy: Seeing a rheumatologist

Support Group: Autoimmune Diseases

Posted: Apr 19 2:03am

I’ve been on Miebo for about a year I will have to say I’m blessed looking...

https://connect.mayoclinic.org/comment/1298653/

I have Sjögren’s and very dry eyes I

Discussion: Does anyone have any experience with MEIBO (PF) drops for dry eyes?

Support Group: Eye Conditions

Posted: May 7 12:28am

I'm glad that you do have someone and you have received some great advice. I was...

https://connect.mayoclinic.org/comment/1324962/

I was diagnosed with Sjogren's about ... IvIg is the only thing they have for Sjogren

Discussion: Sjorgrens and RA

Support Group: Autoimmune Diseases

Posted: Jun 11 11:14am

If you read up EBV causes sjogrens and lupus. I have both. https://pmc.ncbi.nlm.nih.gov/articles/PMC7817975/#:~:text=Chronic%20or%20recurrent%20EBV%20infection,multiple%20sclerosis%20and%20other%20diseases.

https://connect.mayoclinic.org/comment/1205020/

If you read up EBV causes sjogrens and

Discussion: Small Fiber Neuropathy and Epstein-Barr Virus

Support Group: Neuropathy

Posted: Jan 6 7:37am

Good luck to you. I hope you read my other post to humbug. (#1 Dicken's fan...

https://connect.mayoclinic.org/comment/1203668/

My diagnosis of Sjogren's led me

Discussion: Autoimmune Hepatitis and remission?

Support Group: Autoimmune Diseases

Posted: Jan 4 10:40am

Just my experience and my personal opinion. Many of us have trouble getting diagnosed, I think...

https://connect.mayoclinic.org/comment/1200697/

I have all your symptoms from Sjogrens ... have Rheumatoid Arthritis, Lupus and Sjogrens

Discussion: Nighttime Dry Mouth

Support Group: Autoimmune Diseases

Posted: Dec 30, 2024

I take the generic form of Evoxac in capsule form, one twice a day, and it...

https://connect.mayoclinic.org/comment/1199276/

Sjögren’s had made my mouth so dry that

Discussion: Nighttime Dry Mouth

Support Group: Autoimmune Diseases

Posted: Dec 29, 2024

There ultrasound is insufficient and does not show inflammation. The salivary glands removed by ENT he...

https://connect.mayoclinic.org/comment/1193110/

Sjogrens, lupus, RA, ehlenor damlos,

Discussion: Undetermined Auto Immune

Support Group: Autoimmune Diseases

Posted: Dec 18, 2024

Hi. Thanks for replying. I've been sick for a year. My symptoms were sjogrens and antibodies...

https://connect.mayoclinic.org/comment/1190005/

My symptoms were sjogrens and antibodies ... Plaquinil helped the sjogrens dryness

Discussion: extreme constant fatigue

Support Group: MAC & Bronchiectasis

Posted: Dec 13, 2024

@windyshores - I agree 100% that ENT is not the answer but trying to get my...

https://connect.mayoclinic.org/comment/1186103/

I will take Sjogren’s clinic into consideration

Discussion: ANA Titer 1:1280 pattern homogeneous and speckled o/w negative work-up

Support Group: Autoimmune Diseases

Posted: Dec 7, 2024

So the rheumatologist may be considering Sjogren's? It takes years for many of us with symptoms,...

https://connect.mayoclinic.org/comment/1185284/

rheumatologist may be considering Sjogren

Discussion: ANA Titer 1:1280 pattern homogeneous and speckled o/w negative work-up

Support Group: Autoimmune Diseases

Posted: Dec 6, 2024

I also was just diagnosed with ILD. I have been tested twice for a variety of...

https://connect.mayoclinic.org/comment/1184152/

of auto-immune diseases (including Sjorgrens

Discussion: Sjogrens and Lung issues

Support Group: Autoimmune Diseases

Posted: Dec 4, 2024