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595 total results
Comments (558)
I know just how you feel. Perhaps we have to form our own group somehow. Perhaps...
https://connect.mayoclinic.org/comment/690052/
Perhaps we have to reach out to other ME ... /CFS patients. ... ME/CFS may be a post-viral syndrome ... very Mayo Clinic site, there is no ME ... /CFS Connect site.
Hello. I too have long covid with intense fatigue. What has helped me is low dose...
https://connect.mayoclinic.org/comment/1236831/
What has helped me is low dose Naltrexone ... I got from the Stanford Long Covid/ME ... CFS clinic.
Don’t go to Mayo for ME/CFS. They are way behind on the research. They still believe...
https://connect.mayoclinic.org/comment/212594/
Don’t go to Mayo for ME/CFS.
I too applied to SS disability and was denied. Long hauler since April 2021 but my...
https://connect.mayoclinic.org/comment/1005881/
2021 but my official diagnosis is ME ... /CFS because I was not able to get a ... my evaluation Social Security sent me ... doctor, who had never heard of LC or CFS
Colleen, Thank you for your recommendations. However, what I think those of us who have ME/CFS...
https://connect.mayoclinic.org/comment/691122/
what I think those of us who have ME ... /CFS are looking for is an ME/CFS connect
Hi @samsam3030, it can be long and exhausting road to find a diagnosis. While members of...
https://connect.mayoclinic.org/comment/613611/
Encephalomyelitis/Chronic Fatigue Syndrome (ME ... /CFS) treatments https://connect.mayoclinic.org ... myalgic-encephalomyelitis-chronic-fatigue-syndrome-me-cfs-treatments
Hi @venki welcome back to the group. I wished I had some answers for you and...
https://connect.mayoclinic.org/comment/156711/
Encephalomyelitis/Chronic Fatigue Syndrome (ME ... /CFS) treatments
-- https://connect.mayoclinic.org ... myalgic-encephalomyelitis-chronic-fatigue-syndrome-me-cfs-treatments
@debbienod I and most of us here can totally relate! I’m on my 3rd neurologist -...
https://connect.mayoclinic.org/comment/1368267/
But I also have ME/CFS so I’ve had a ... I never recovered and developed ME/CFS ... answers, especially since I also have ME ... /CFS which has rendered me disabled
Dizziness caused by ME/CFS, neuropathies from the stenosis and having to take a medicine that adds...
https://connect.mayoclinic.org/comment/1004648/
Dizziness caused by ME/CFS, neuropathies
Hey- Can u maybe give us a past medical history of any pertinent virus or infections...
https://connect.mayoclinic.org/comment/234523/
a RN n have a MPH pre-illnesses ie ME ... /CFS, fibro, 6 sets steel
Wondering if others are also experiencing "crashes" after mild exercise. I find that even easy walking...
https://connect.mayoclinic.org/comment/1057392/
find that even easy walking can set me ... by my Physio that I may also have ME ... /CFS.
@vostie Its always good to hear LDN success stories. I’ve been on it for 10 years...
https://connect.mayoclinic.org/comment/1384983/
I’ve been on it for 10 years for ME/ ... CFS, arthritis, fibromyalgia, and severe
Welcome @mindfulness, I can't imagine how difficult it must be to have thermal allodynia and not...
https://connect.mayoclinic.org/comment/686813/
underlying mechanism of fibromyalgia, ME ... /CFS, and several other conditions.1 ... Distinct Type of Pain in Fibromyalgia and ME ... /CFS: https://www.verywellhealth.com
@z4pper as a last resort, it is not uncommon for people to post to online communities,...
https://connect.mayoclinic.org/comment/313558/
Encephalomyelitis/Chronic Fatigue Syndrome (ME ... /CFS) treatments https://connect.mayoclinic.org ... myalgic-encephalomyelitis-chronic-fatigue-syndrome-me-cfs-treatments ... months-and-doctors-dont-know-whats-wrong/
- IBS, CFS ... /
Let me know if you'd like your
Hello Nikki @nicoletta8, welcome to Connect. I also have idiopathic small fiber peripheral neuropathy but I...
https://connect.mayoclinic.org/comment/156813/
Encephalomyelitis/Chronic Fatigue Syndrome (ME ... /CFS) treatments
— https://connect.mayoclinic.org ... myalgic-encephalomyelitis-chronic-fatigue-syndrome-me-cfs-treatments
My experience with the ME/CFS/LC clinic at Stanford University, California was life changing. They carefully gave...
https://connect.mayoclinic.org/comment/1026006/
My experience with the ME/CFS/LC clinic ... They carefully gave me and set levels
@colleenyoung , Yes, several years ago, when it was my first attempt to get a Mayo...
https://connect.mayoclinic.org/comment/613910/
She basically told me they were not ... guidelines for diagnosis and treatment of ME ... /CFS.
Yes, it was the foundation to my healing for ANS dysfunction from long covid. Going on...
https://connect.mayoclinic.org/comment/1240994/
and why SGB was a natural choice for me ... then Internal Med Long Covid Clinic/ME ... CFS clinic at Mayo helped me with my
@louisequale You sound angry and I don’t blame you. So many conditions are just not recognized...
https://connect.mayoclinic.org/comment/705746/
Stanford University hospital system has a ME ... /CFS clinic?
Hi All I am a 25 Yr old male from India. Are there any ME/CFS (Chronic...
https://connect.mayoclinic.org/comment/662855/
Are there any ME/CFS (Chronic Fatigue ... specialists in India who can help me ... met so far have either prescribed me
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