I too have nets and dipnech.

respiratory issues as lung NETs and DIPNECH

doesn’t know anything about NETs or DIPNECH

To add to my lung NETs/DIPNECH story

I have DIPNECH also, dx’d after my RML ... tumorlets (Nets) throughout lungs, hence DIPNECH ... But now that I have the.DIPNECH diagnosis ... touch base with other people that have DIPNECH

With DIPNECH my airways would be lined

info to go on, much like the rare DIPNECH ... cancer and octreotide for my lung NETs/DIPNECH

Just the DIPNECH.

Since DIPNECH is very rare, it’s exciting

rogo yes I live with diagnosis of DIPNECH

helped my respiratory symptoms for DIPNECH ... a specialist who knows about NETs/DIPNECH

finally figured out what else I have — DIPNECH ... a retroactive study Mayo did on 59 DIPNECH ... Researching DIPNECH is actually how

diagnosed as typical carcinoids and DIPNECH

growth, small amount now diagnosed with DIPNECH

message me if you need more info about DIPNECH

the SOB on exertion was related to DIPNECH

carcinoid tumor, with the possibility of DIPNECH

I have both DIPNECH and typical lung ... The BC and DIPNECH meds do cause some ... lumpectomy revealed both breast cancer and DIPNECH ... mir123 also has breast NET but not DIPNECH ... They do consider my DIPNECH to be advanced

Hi @triveraderubio and others with DIPNECH ... the rare and likely underdiagnosed DIPNECH ... I actually presented DIPNECH to my oncologist ... retrospective study about 59 patients with DIPNECH ... Excited to find others with DIPNECH

I also have DIPNECH which is really ... those, octreotide helps symptoms of DIPNECH ... but it turns out the lung NETs and DIPNECH