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257 total results
Comments (243)
Hi @josey1 Sorry about all that you are going through. I have both DIPNECH and typical...
I have both DIPNECH and typical lung ... The BC and DIPNECH meds do cause some ... lumpectomy revealed both breast cancer and DIPNECH ... mir123 also has breast NET but not DIPNECH ... They do consider my DIPNECH to be advanced
Hi @triveraderubio and others with DIPNECH and Lung NETs. I hope the octreotide is working for...
Hi @triveraderubio and others with DIPNECH ... the rare and likely underdiagnosed DIPNECH ... I actually presented DIPNECH to my oncologist ... retrospective study about 59 patients with DIPNECH ... Excited to find others with DIPNECH
Hi @sadair20 -- I can see why you are frustrated and worn out. I coughed constantly...
lung biopsy and was diagnosed with DIPNECH ... People with DIPNECH usually have a long
Discussion: Constant Coughing
Support Group: MAC & Bronchiectasis
Posted: Apr 9, 2023
@peggymariejackson @hopeful33250 @sherikayb @debbieguk @ce1b I see some of you have lung NETs, some GI NETs,...
I also have DIPNECH which is really ... those, octreotide helps symptoms of DIPNECH ... but it turns out the lung NETs and DIPNECH
Posted: May 17, 2023
Hi @aclanton @terradean My largest 2.6 cm tumor was destroyed with microwave ablation. Not a fun...
still considered stage 1 although my DIPNECH ... have multiple nodules/tumors then DIPNECH ... I have both DIPNECH and lung NETs (typical
Hi, your story sounds like mine. I had right middle lobe removed October 2023 due to...
But was also diagnosed with DIPNECH, ... that doctor doesn’t really know about DIPNECH
Discussion: DIPNCEH
Posted: Jun 18 10:22am