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257 total results
Comments (243)
Good to know. Just frustrating that no one ever suggested the SOB on exertion was related...
https://connect.mayoclinic.org/comment/1108851/
the SOB on exertion was related to DIPNECH
I live within reach of Memorial Sloan Kettering so called just to get a 2nd opinion....
https://connect.mayoclinic.org/comment/1087269/
carcinoid tumor, with the possibility of DIPNECH
I have Lungs NETS in both lungs. Recent growth, small amount now diagnosed with DIPNECH. I...
https://connect.mayoclinic.org/comment/1205143/
growth, small amount now diagnosed with DIPNECH
Hi @aclanton Good luck with the waiting game. I waited for 12 years hearing guesses about...
https://connect.mayoclinic.org/comment/1076443/
diagnosed as typical carcinoids and DIPNECH
Hi @josey1 Sorry about all that you are going through. I have both DIPNECH and typical...
https://connect.mayoclinic.org/comment/906758/
I have both DIPNECH and typical lung ... The BC and DIPNECH meds do cause some ... lumpectomy revealed both breast cancer and DIPNECH ... mir123 also has breast NET but not DIPNECH ... They do consider my DIPNECH to be advanced
Hi @triveraderubio and others with DIPNECH and Lung NETs. I hope the octreotide is working for...
https://connect.mayoclinic.org/comment/834726/
Hi @triveraderubio and others with DIPNECH ... the rare and likely underdiagnosed DIPNECH ... I actually presented DIPNECH to my oncologist ... retrospective study about 59 patients with DIPNECH ... Excited to find others with DIPNECH
I take octreotide injections for lung NETs and DIPNECH to control respiratory symptoms (works great) and...
https://connect.mayoclinic.org/comment/1346205/
octreotide injections for lung NETs and DIPNECH
Hi @sadair20 -- I can see why you are frustrated and worn out. I coughed constantly...
https://connect.mayoclinic.org/comment/840172/
lung biopsy and was diagnosed with DIPNECH ... People with DIPNECH usually have a long
@peggymariejackson @hopeful33250 @sherikayb @debbieguk @ce1b I see some of you have lung NETs, some GI NETs,...
https://connect.mayoclinic.org/comment/861008/
I also have DIPNECH which is really ... those, octreotide helps symptoms of DIPNECH ... but it turns out the lung NETs and DIPNECH
Hello Teresa, If I had a minimal uptake 2.1 SUV 1cm tumor (multiple other had no...
https://connect.mayoclinic.org/comment/1024566/
The doctors say I have Dipnech and DPM
Hi @aclanton @terradean My largest 2.6 cm tumor was destroyed with microwave ablation. Not a fun...
https://connect.mayoclinic.org/comment/1076548/
still considered stage 1 although my DIPNECH ... have multiple nodules/tumors then DIPNECH ... I have both DIPNECH and lung NETs (typical
Hi, your story sounds like mine. I had right middle lobe removed October 2023 due to...
https://connect.mayoclinic.org/comment/1329790/
But was also diagnosed with DIPNECH, ... that doctor doesn’t really know about DIPNECH
@netnan I also have lung NETs (atypical carcinoids) and DIPNECH with 50+ tumors scattered across both...
https://connect.mayoclinic.org/comment/1107096/
lung NETs (atypical carcinoids) and DIPNECH
I’ve had my first significant change recently. 3 months ago it looked like I had a...
https://connect.mayoclinic.org/comment/1223495/
lower lung, but they also saw 2 of my DIPNECH
Hi @mimi206 I have DIPNECH and lung NETs (typical carcinoids) with 50+ nodules so we are...
https://connect.mayoclinic.org/comment/1250591/
Hi @mimi206
I have DIPNECH and lung
Hi @blm1024 Welcome! Glad you’re in the other side of surgery. I have typical lung carcinoids...
https://connect.mayoclinic.org/comment/1350349/
I have typical lung carcinoids and DIPNECH
I’m sorry that you’re having to go through this; however, I’ve just experienced this and all...
https://connect.mayoclinic.org/comment/1315460/
I was diagnosed with DIPNECH with multiple
I think you hit the nail on the head with the workaround. That being said, I...
https://connect.mayoclinic.org/comment/1126890/
for 3.5 years for my lung NETs and DIPNECH
Wow hats off to you on your journey what an experience you learned from and handled...
https://connect.mayoclinic.org/comment/821372/
Also have Dipnech which are multiple
Hello @gprior, I understand your interest in reading about how others have treated DIPNECH. You mentioned...
https://connect.mayoclinic.org/comment/1223548/
reading about how others have treated DIPNECH
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