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666 total results
Comments (642)
Welcome to the forum and the PMR/GCA---prednisone world. I was a neurosurgery nurse for the majority...
https://connect.mayoclinic.org/comment/900408/
Welcome to the forum and the PMR/GCA ... second surgeon says I need to be off Actemra
How is it going with Kevzara? I am self-injecting weekly with Actemra, which is also a...
https://connect.mayoclinic.org/comment/895854/
I am self-injecting weekly with Actemra ... Actemra has been very effective in reducing ... my PMR/GCA symptoms as I taper off
One would hope PMR patients of the future will have better options than prednisone. I took...
https://connect.mayoclinic.org/comment/892625/
being the only option for PMR and GCA ... The solution for me at least was Actemra ... It made me wonder why Actemra wasn' ... I wouldn't mind stopping Actemra ... When I did stop Actemra once, the pain
You wrote: "How are you doing with Actemra?" Actemra seems to be working well for me,...
https://connect.mayoclinic.org/comment/891301/
wrote: "How are you doing with Actemra ... "
Actemra seems to be working ... blood tests are very near my pre-PMR/GCA ... Actemra really seems to be working for ... I'm continuing with weekly Actemra
I have GCA and it took me a long time to get to 10mg, three years,...
https://connect.mayoclinic.org/comment/879961/
I have GCA and it took me a long time ... with lots of ups and downs(along with Actemra
@pkalkstein I'm writing just to say how important and clear I think your post is.....it is...
https://connect.mayoclinic.org/comment/876552/
PMR/GCA...we don't get cured, and ... the pain, taper slowly and stave off GCA ... ...probably PMR and it ramped into GCA ... I've been on Actemra and Pred for
Thank-you but when I looked to find information I found the following: "What Is Not Eligible...
https://connect.mayoclinic.org/comment/869380/
autoimmune disorders so not just PMR/GCA ... I just wish that Actemra had been tried ... Actemra wasn't an option for me. ... Actemra was only FDA approved for GCA ... I don't have GCA.
Yes I have had the biopsy You are correct .. mine said GCA healed !! Whatever...
https://connect.mayoclinic.org/comment/865629/
biopsy
You are correct .. mine said
GCA ... Please let us know how you do with a acterma
I was diagnosed recently with GCA. My Rheumatologist started me on 60 mg of Prednisone tapering...
https://connect.mayoclinic.org/comment/864950/
I was diagnosed recently with GCA. ... She ordered the injection Actemra and ... anyone had the biopsy performed for GCA
I received Actemra for PMR 4 years ago.. Actemra was requested and approved. Actemra works very...
https://connect.mayoclinic.org/comment/864851/
Actemra works very well for me. ... other autoimmune disorders but not GCA ... tocilizumab in Giant Cell Arteritis (GCA ... PMR is mediated by IL-6 mimicking GCA ... recommendations for treatment for GCA
Thanks for your comments. My Prednisone tapering schedule goes down to 10 mg in 2 weeks,...
https://connect.mayoclinic.org/comment/861851/
Early on, before I was on Actemra, my ... non-cranial Giant Cell Arteritis (GCA ... My Actemra & Prednisone treatment ... exactly the one used to treat the GCA ... patients that received weekly Actemra
My heart goes out to you...it is a difficult road as it is and now dealing...
https://connect.mayoclinic.org/comment/861394/
I have been on Actemra since October ... My GCA was raging and my inflammation ... Note....once you are on Actemra your ... I'd never heard of GCA or PMR and
First, I wish to say that it takes fortitude to come off prednisone like that. On...
https://connect.mayoclinic.org/comment/860893/
for my eye problem which wasn't GCA ... my ophthalmologist didn't think Actemra ... happy with my choice to go back on Actemra
I’m 71. In December 2020 I went to an orthopedic doctor because both my knees were...
https://connect.mayoclinic.org/comment/858630/
correctly diagnosed PMR & Vasculitis/GCA ... prednisone & a few weeks later Actemra ... I’m still on Actemra & doing well ... ’t know how long I have to stay on Actemra ... treating the PMR correctly led me to the GCA
Have you considered a second opinion? I've been on pred and Actemra since 2019 for GCA....so...
https://connect.mayoclinic.org/comment/857330/
I've been on pred and Actemra since ... 2019 for GCA....so I honestly can'
Hello~I'm so happy to have found this group. When I lost the sight in my left...
https://connect.mayoclinic.org/comment/856637/
left eye and was then diagnosed with GCA ... I found a support group for PMR/GCA ... from 80 mg of methylprednisolone plus Actemra
Hi, I was diagnosed with PMR May 5th 2021. In September diagnosed with GCA. My Rheumy...
https://connect.mayoclinic.org/comment/845820/
In September diagnosed with GCA. ... My Rheumy wanted me to start ACTEMRA ... start a statin and keep going with the Actemra ... know if I really want to continue the ACTEMRA
My inflammation markers (ESD and CRP) are both low normal (EDD = 4 mm/hr and CRP...
https://connect.mayoclinic.org/comment/840706/
was diagnosed with PMR and possible GCA ... prednisone and weekly injections of Actemra ... until a few days ago, but with weekly Actemra ... following a schedule similar to the Actemra ... trials for treating GCA published in
I believe this study only included "newly diagnosed" people so it would not apply to me....
https://connect.mayoclinic.org/comment/836187/
mg is crazy fast for you as long as Actemra ... IL-6 is targeted for PMR/GCA. ... I ended up trying both Actemra (IL-6 ... I decided that Actemra worked better
The doctor has given me a 6 month tapering schedule with the weekly injections of Actemra....
https://connect.mayoclinic.org/comment/836149/
schedule with the weekly injections of Actemra ... The NEJM trials of Actemra against GCA ... those taking weekly injections of Actemra
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