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2,274 total results
Comments (2,168)
@skiing Your proposed taper plan sounds reasonable (up 5 mgs. and then drop when you are...
@skiing Your proposed taper plan sounds ... Important to remember that prednisone ... does not cure PMR, it only covers the ... No one wants to be on prednisone (I ... there for awhile before attempting to taper
Posted: Jun 14, 2022
Hi @kbuzard, a dramatic response to steroids with a cessation of symptoms is used to confirm...
is used to confirm the diagnosis of PMR ... steroid til then, maybe with a slight taper ... Was he on prednisone? ... Since PMR is an autoimmune disorder, ... there is nothing like the pain of PMR
So sorry that on top of everything else, you had a bad experience with your rheumatologist....
him in February of this year I had tapered ... down to 9mg of prednisone and am now ... but now I count my blessings that PMR
Posted: Jun 1, 2022
@emma321, One thing I think might really help since you just started is to keep a...
along with your daily dose amount of prednisone ... This helps when you start tapering. ... helped my second time around with PMR ... and allowed me to taper off in 1-1/ ... 2 years the first time around with PMR
Well ... where should I begin? I was diagnosed with reactive arthritis with uveitis some 20...
with uveitis some 20 years before PMR ... type of inflammatory arthritis and PMR ... a biologic treatment that targeted PMR ... I was able to taper off prednisone after ... but it didn't work so well for PMR
Posted: Mar 24, 2023
Wow that is quite a history. Sounds like the tocilizumab has really helped. That's good to...
This may be in addition to PMR. ... that are really inconsistent with PMR ... test, he tentatively wants to start tapering ... my prednisone down from 60 mg in a
Hi! I'm new to this group as I was diagnosed with PMR in December 2022. I...
this group as I was diagnosed with PMR ... Started on 20mg/day of prednisone, first ... for only 2 weeks followed by tapering ... Symptoms returned again when I tapered ... ), or biologics in addition to the prednisone
Posted: Mar 13, 2023
I have tapered from 5 mg prednisone to 4 3/4 the last two days and find...
I have tapered from 5 mg prednisone ... Is this “normal “ and is it prednisone ... How do you tell the difference from pmr
DSNS didn't work for me either. I noticed the person who promotes this tapering plan says...
and kept trying to taper off prednisone ... I felt like I knew how to taper off ... for 12 years after PMR was diagnosed ... that wasn't approved to treat PMR ... was the only option for PMR."
Posted: Mar 9, 2023
Yes ... you are correct about doing a slow taper. The questions that nobody has ever...
you are correct about doing a slow taper ... How long does PMR really last and when ... should I stop taking prednisone?
Posted: Mar 1, 2023
Your story is very interesting. It seems to confirm what I've seen from others with PMR:...
what I've seen from others with PMR ... I do think that a slow taper is a good ... I'm still in my first year of PMR ... congratulations on finding a way to get off Prednisone
Posted: Mar 1, 2023
Just my opinion but I feel that pain should be gone or nearly gone before starting...
or nearly gone before starting to taper ... your prednisone dose. ... pain it means you're low on the prednisone ... my opinion) are hellbent to get a PMR ... PMR forum discussions are a very important
Posted: Feb 28, 2023
My PMR has always affected my quads and calves. I had a flare up 2 1/2...
My PMR has always affected my quads ... ago after getting down to 5 mg. of prednisone ... pretty good but will have to start tapering
Posted: Feb 25, 2023
Hi @christopherc, I do think the prednisone plays a large part of causing PMR to go...
Hi @christopherc, I do think the prednisone ... the treatment section that lists why prednisone ... I was started on 20 mg prednisone dosage ... It took me 3 and half years to taper ... and only took me 1 and half years to taper
I'm interested in hearing people's experiences with methotrexate as a steroid-sparing medication. My rheumatologist has pushed...
methotrexate because I have been on prednisone ... a half and failed to successfully taper ... Were you able to get off prednisone ... Did you get off prednisone and remain ... how well did it control symptoms of PMR
Posted: Feb 23, 2023
Are you still taking Enbrel for AS and uveitis? Are you also taking prednisone for PMR?...
Are you also taking prednisone for PMR ... able to taper off prednisone. ... I took prednisone for PMR daily for ... As soon as I tapered off prednisone ... It took 3 months to taper off prednisone
Posted: Feb 18, 2023
Welcome @issyb, I see that you have already connected with @marmak on your PMR journey. You...
already connected with @marmak on your PMR ... It's good that the prednisone is ... of my PMR occurrences. ... first time it took me 3-1/2 years to taper ... I would not be in a hurry to taper down
Posted: Feb 10, 2023
Hi @pjnewm, Tapering off of prednisone and managing the pain can be difficult. You will notice...
Hi @pjnewm, Tapering off of prednisone ... sharing what has helped them. -- PMR ... also used when struggling while my PMR ... was active and I was tapering. ... I think listening to your body and tapering
Posted: Feb 2, 2023
I'm in the same boat. I was diagnosed with spondylitis about 30 years ago. I also...
I always had leftover prednisone on ... years ago when I was diagnosed with PMR ... About 4 years ago when I was unable to taper ... I was then able to taper off prednisone ... Unfortunately, prednisone didn't
Support Group: Autoimmune Diseases
Posted: Jan 31, 2023