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Comments (2,008)

Now I'm interested in Tart Cherry capsules. I have residual (non-PMR) lower back pain but I'm...

https://connect.mayoclinic.org/comment/1156210/

I'm off prednisone and on Actemra

Discussion: Weaning off of prednisone & pain management

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 13, 2024

While being treated for GCA first time round, I didn't feel really bad - no pains,...

https://connect.mayoclinic.org/comment/973206/

am so hoping that when I start on Actemra

Discussion: GCA conserns

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 1, 2023

@livingwithpmr I'll be heading North soon to Nova Scotia, where I have family. Since I have...

https://connect.mayoclinic.org/comment/873189/

I now take 3 mg plus Actemra daily.

Discussion: PMR and Methotrexate

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 5, 2023

Mind you...I am no doctor! I speak to you as another 82 year old and am...

https://connect.mayoclinic.org/comment/857883/

Presently I am on 3 mg daily plus Actemra

Discussion: PMR with hand/wrist pain and swollen veins?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 10, 2023

That forum is very good if you are from the UK. I felt alienated on that...

https://connect.mayoclinic.org/comment/1199776/

Actemra is approved in the UK for GCA

Discussion: Looking for PMR Meetup groups in the UK

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 29, 2024

Hi Dadcue, thanks for the link regarding prednisone. I too have that “love/hate relationship with prednisone....

https://connect.mayoclinic.org/comment/1096128/

So he is trying to get me on Actemra

Discussion: Good information to know about prednisone.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 29, 2024

Thank you for sharing that. I feel fortunate that I was able to figure out he...

https://connect.mayoclinic.org/comment/1045559/

couple weeks later we started the Actemra

Discussion: What to tell adult kids? Dad diagnosed with giant cell arteritis (GCA)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 4, 2024

Welcome to the forum and the PMR/GCA---prednisone world. I was a neurosurgery nurse for the majority...

https://connect.mayoclinic.org/comment/900408/

second surgeon says I need to be off Actemra

Discussion: Associated migratory primarily thoracic back pain

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 22, 2023

Why did your rheumatologist doubt if PMR was the correct diagnosis? PMR is a diagnosis of...

https://connect.mayoclinic.org/comment/1299586/

Now I'm on Actemra and PMR is still

Discussion: First meeting with Rheumatologist for PMR, need suggestions

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 8 7:43am

That's interesting!!! I have never tried Dexamethasone but I can see how a stronger steroid might...

https://connect.mayoclinic.org/comment/1067278/

to decrease my Prednisone dose with Actemra

Discussion: 2 year struggle to get off prednisone still hard to get from 3 to 2mg

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 13, 2024

I, like others here, suffer from fatigue. It is overwhelming and ruins my life. I have...

https://connect.mayoclinic.org/comment/802349/

treatments, my rheumatologist tried Actemra

Discussion: Autoimmune Diseases and Fatigue

Support Group: Autoimmune Diseases

Posted: Jan 27, 2023

It was at least a month. Just because the pain is better doesn't mean the inflammation...

https://connect.mayoclinic.org/comment/1311260/

a couple years and now am getting Actemra

Discussion: Newly diagnosed with a mild case!

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 23 2:36pm

I would be interested in what a UK doctor tells a newly diagnosed PMR patient. Is...

https://connect.mayoclinic.org/comment/1133197/

Prednisone until a biologic called Actemra

Discussion: newly diagnosed

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 30, 2024

Hi Lily, This sure sounds familiar. I had immediate onset of PMR after knee replacement. Family...

https://connect.mayoclinic.org/comment/1132990/

for a second opinion but was told Actemra

Discussion: Temporal Artery Biopsy VS a color Doppler Ultrasound for GCA diagnosis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 29, 2024

I didn't really feel any different for 3 months when I started Actemra injections every 2...

https://connect.mayoclinic.org/comment/1080699/

different for 3 months when I started Actemra

Discussion: Prednisone to Kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 4, 2024

This is for @dadcue...... thank you for most interesting information. I am going to see 'my'...

https://connect.mayoclinic.org/comment/863147/

I shall broach Actemra to them...

Discussion: i have come off steroids after 11 years, am finding it very difficult

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 20, 2023

It might be a good time to suggest to your doctor that having your cortisol level...

https://connect.mayoclinic.org/comment/860731/

prednisone except that a biologic called Actema ... Actemra kept my PMR symptoms in check ... a Actema doesn't suppress your

Discussion: i have come off steroids after 11 years, am finding it very difficult

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 16, 2023

@DadCue Your experience mirrors my own. I began 15 mg of Prednisone on April 15th, prescribed...

https://connect.mayoclinic.org/comment/1117838/

while receiving a monthly infusion of Actemra ... He indicated that putting me on Actemra

Discussion: What justifies an increase in prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 4, 2024

@dadcue I lost a few inches due to spontaneous spinal fractures with kyphosis because of osteoporosis....

https://connect.mayoclinic.org/comment/1148421/

x1f972; Sounds like you may be on Actemra

Discussion: PMR and Fatigue. Interesting study

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 27, 2024

@loribmt Hi Lori. I'm thinkin' by now we're in the wrong discussion group, no longer looking...

https://connect.mayoclinic.org/comment/637826/

Actemra was then started - a kinder,

Discussion: What's outside of your picture window today?

Support Group: Just Want to Talk

Posted: Sep 22, 2021