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Comments (2,427)

Hi I’m reaching out to you I to have young daughter that has no IVC along...

https://connect.mayoclinic.org/comment/200882/

azygos circulatory system as well as lupus ... They ran the lupus anticoagulant test

Discussion: Interrupted ivc and deep vein thrombosis

Support Group: Heart & Blood Health

Posted: May 15, 2019

Hello, as someone with pretty bad inflammatory arthritis and Lupus, plus all the things that come...

https://connect.mayoclinic.org/comment/1245902/

pretty bad inflammatory arthritis and Lupus

Discussion: How does your family handle your autoimmune diseases & illness?

Support Group: Autoimmune Diseases

Posted: Feb 26 11:07am

'Useful to the individual' is how I'd define it. I can relate to your initial confusion...

https://connect.mayoclinic.org/comment/1248023/

Mine diagnosed me with lupus right off

Discussion: Are specialists necessary?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 1 11:25am

I was worried to let my daughter start Warfarin (she's only 14), and she was on...

https://connect.mayoclinic.org/comment/854719/

a PE, now Triple Positive APS (and Lupus

Discussion: What can I expect with Antiphospholipid Syndrome (APS)?

Support Group: Autoimmune Diseases

Posted: May 5, 2023

Hi @kell4042, this must be so disconcerting. I moved your post about your issue with peeling...

https://connect.mayoclinic.org/comment/822364/

hair problems possibly from discoid lupus

Discussion: Skin and scalp problems and loss of hair

Support Group: Women's Health

Posted: Mar 7, 2023

Hi I’m Liz and I too have sjrogrens and I take Pilocarpine. I’m now up to...

https://connect.mayoclinic.org/comment/793433/

I suffer from Lupus, RA. and Hoshimotos

Discussion: Sjogren’s Syndrome – Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Jan 7, 2023

Thank you all for the quick responses. This will be very helpful for my appointment with...

https://connect.mayoclinic.org/comment/669853/

antibodies for thyroid disease and lupus

Discussion: TS-HDS Antibody and Small Fiber Neuropathy

Support Group: Neuropathy

Posted: Jan 10, 2022

I was diagnosed with Kikuchi July 2018. I had my lymph nodes on my neck swell...

https://connect.mayoclinic.org/comment/640949/

tests for all types of diseases even lupus

Discussion: Kikuchi disease

Support Group: Autoimmune Diseases

Posted: Sep 30, 2021

@fortshaw Nice to meet you. Welcome to Connect. I'm sorry to hear that you have fallen...

https://connect.mayoclinic.org/comment/335562/

Lupus?

Discussion: Lost: Being sick and not knowing why wears on you

Support Group: Just Want to Talk

Posted: Mar 23, 2021

I'm going to say the impossible - don't worry. I know that is easier said than...

https://connect.mayoclinic.org/comment/106584/

liver disease (cirrhosis, hepatitis), lupus

Discussion: I have ovarian cancer

Support Group: Gynecologic Cancers

Posted: May 4, 2019

I was diagnosed about a year ago. Do you have sjogrens due to it? How did...

https://connect.mayoclinic.org/comment/56555/

May I also ask if you have lupus or

Discussion: MCTD (Mixed Connective Tissue Disease)

Support Group: Autoimmune Diseases

Posted: Oct 31, 2018

I recently found out that my mom had Pulmonary fibrosis over the years I have watched...

https://connect.mayoclinic.org/comment/71235/

is a result of her misdiagnosis of lupus

Discussion: Pulmonary Fibrosis*

Support Group: Lung Health

Posted: Dec 6, 2017

Hello Yoanne, Thank you so much for your detailed mitral history and the detailed anatomy of...

https://connect.mayoclinic.org/comment/102509/

more time with my Rheumatologist (for Lupus

Discussion: Mitral valve repair

Support Group: Heart & Blood Health

Posted: Aug 28, 2016

Let me begin by saying I know how profound the loss of your husband is to...

https://connect.mayoclinic.org/comment/1084464/

As far as whether you have Lupus, RA ... diagnosed at 49, that I either had Lupus ... diagnosis was wrong and that I have Lupus ... …he started treating me for Lupus and

Discussion: Neuropsychiatric Lupus

Support Group: Autoimmune Diseases

Posted: Jun 10, 2024

@flamingal Thank you for your response. Makes sense to drink slowly. Only problem is I dehydrate...

https://connect.mayoclinic.org/comment/934376/

Lupus doc is actually the best one around ... I was also on hydroxychloroquine (lupus ... My issues started upon lupus diagnosis ... THAT appears in my recent labs as per lupus

Discussion: Lupus Meds question

Support Group: Autoimmune Diseases

Posted: Sep 22, 2023

Oh, I'm so sorry. The acronyms are blood tests that are routinely run for autoimmune disease...

https://connect.mayoclinic.org/comment/1257241/

Tissue Disease and SLE is a form of Lupus

Discussion: Could High Anti-U1 RNP with Negative ANA be MCTD?

Support Group: Autoimmune Diseases

Posted: Mar 13 4:01pm

I have an intense personality (Aries 🤣) and I have always laughed my way through all...

https://connect.mayoclinic.org/comment/1202446/

way through all my other conditions (Lupus