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Comments (2,482)

Hi there from Australia. My Heart Surgeon knew i have Lupus and Fibromyalgia but due to...

https://connect.mayoclinic.org/comment/1225696/

My Heart Surgeon knew i have Lupus and

Discussion: Raynaud's Syndrome: Anyone want to talk about Raynaud’s?

Support Group: Autoimmune Diseases

Posted: Jan 30 4:01pm

Thank you for responding, I have been on warfain, since my first stroke, in 1989, due...

https://connect.mayoclinic.org/comment/1253599/

came out that I had anti coagulation lupus

Discussion: Wore a heart monitor for 2 wks, due to STV

Support Group: Heart Rhythm Conditions

Posted: Mar 8 11:54pm

I think the problem is more about what label is attached to autoimmune conditions. I have...

https://connect.mayoclinic.org/comment/1392386/

Lupus is a "systemic autoimmune

Discussion: Change of diagnosis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 12 1:54pm

I am not sure if PMR is an autoimmune disease, but we all know that PMR...

https://connect.mayoclinic.org/comment/940189/

often treated with prednisone as is lupus ... new treatment for autoimmune disease lupus ... patients with refractory systemic lupus ... for CAR T-cell therapy for SLE and lupus ... upcoming Cabaletta and Kyverna trials in lupus

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 1, 2023

The truth is the vaccine I’m 💯 sure caused your symptoms tho the covid infection could...

https://connect.mayoclinic.org/comment/1376597/

later after 3 shots I now am dx with Lupus

Discussion: Yale study reports chronic symptoms after Covid vaccine.

Support Group: Post-COVID Recovery & COVID-19

Posted: Aug 22 10:12am

@yesim It's hard to have one diagnosis that you learn to cope with, then get a...

https://connect.mayoclinic.org/comment/1379254/

I was treated for lupus, then that didn

Discussion: How did you feel when you were first diagnosed?

Support Group: Autoimmune Diseases

Posted: Aug 25 5:03pm

I'm still waiting for a diagnosis of PMR or fibromyalgia or something else. I am 81,...

https://connect.mayoclinic.org/comment/884152/

He suggested Lupus and ordered the tests ... however I have none of the symptoms of Lupus

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 24, 2023

If you can manage the pain with Tylenol and Aleve, I say stick with those. It's...

https://connect.mayoclinic.org/comment/1292828/

lupus?

Discussion: Has anyone ever been on Duloxetine (Cymbalta) for nerve pain?

Support Group: Chronic Pain

Posted: Apr 29 2:01pm

As a carrier of a Lupus diagnosis 15 years ago, I know medication does work for...

https://connect.mayoclinic.org/comment/1283286/

As a carrier of a Lupus diagnosis 15

Discussion: Conflicting diagnosis concerning lupus

Support Group: Autoimmune Diseases

Posted: Apr 16 11:30am

meaganfeliciano31 -- Definitely get a new doctor. Check out Castle and Connolly - they only list...

https://connect.mayoclinic.org/comment/1250676/

BTW, I have lupus and just got secondary

Discussion: Sjögren’s syndrome severe dry mouth with loss of taste. Also dry eyes

Support Group: Autoimmune Diseases

Posted: Mar 4 11:13pm

I started with pressure in back sides of my head, numbness across forehead and down left...

https://connect.mayoclinic.org/comment/1042912/

, EEG bloodwork including Lyme and Lupus

Discussion: Head pressure is ruining my life

Support Group: Brain & Nervous System

Posted: Mar 30, 2024

Hi, I just joined. I am going through some fear as my ACDF surgery is June...

https://connect.mayoclinic.org/comment/1313492/

failure; FMD of the carotid arteries; lupus

Discussion: What are people's experiences with spinal fusion surgery?

Support Group: Spine Health

Posted: May 26 3:53pm

Yes, we have joked about the barometric pressure. I do react to the weather. I was...

https://connect.mayoclinic.org/comment/1316553/

teenager when they thought I had lupus

Discussion: Neuropathy: Numbness only, no pain

Support Group: Neuropathy

Posted: May 30 12:01pm

Hi I have numbness in my hands occasional sharp scalp pain, deep leg pain at night...

https://connect.mayoclinic.org/comment/1316523/

I have systemic lupus and Sjogren’s

Discussion: Neuropathy: Numbness only, no pain

Support Group: Neuropathy

Posted: May 30 11:35am

My best to you with your symptoms. At 69 yrs, I work w/many symptoms f/MS, lupus,...

https://connect.mayoclinic.org/comment/1190146/

yrs, I work w/many symptoms f/MS, lupus

Discussion: RA meds hydroxychloroquine and methotrexate (injection)

Support Group: Autoimmune Diseases

Posted: Dec 14, 2024

I had 1 mg on the second infusion. I did not get a fever but, oddly,...

https://connect.mayoclinic.org/comment/1143744/

to Reclast: kidney disease, afib, lupus

Discussion: Are we overdosing Reclast???

Support Group: Osteoporosis & Bone Health

Posted: Sep 19, 2024

This is very interesting.I definitely believe the Paxlovid helped with all of your autoimmune issues.I believe...

https://connect.mayoclinic.org/comment/1038600/

barely being able to walk.We have Lupus

Discussion: Did PAXLOVID also relieve your arthritis and autoimmune symptoms?

Support Group: Post-COVID Recovery & COVID-19

Posted: Mar 22, 2024

@rogie Oh, oh, I am so sorry about your wife’s death. What you might want to...

https://connect.mayoclinic.org/comment/813640/

always been on the long known AD like lupus

Discussion: Does anyone else know about deep Morphea? I recently lost my wife,

Support Group: Autoimmune Diseases

Posted: Feb 18, 2023

Thank you so much for the link to the “New Normal” journal. It captures exactly what...

https://connect.mayoclinic.org/comment/655269/

youngest daughter was diagnosed with lupus

Discussion: PMR and Emotions and Family

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 18, 2021

@z4pper You have a wonderful resource for members like @sunshine21 @brandeervatx @ske22 @catcr505 @goodfriends @barcodebill @caseygirlx0xmv...

https://connect.mayoclinic.org/comment/334736/

Lupus?

Discussion: For anyone who can't find a diagnosis: Undiagnosed Disease Network

Support Group: Autoimmune Diseases

Posted: Feb 10, 2021