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Comments (2,420)

I began having symptoms at 54. Of course I didn't know it at the time but...

https://connect.mayoclinic.org/comment/1000418/

Then symptoms of GCA started. ... away almost immediately but I had GCA

Discussion: PMR onset under 55?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 20, 2024

Weight loss is common for untreated PMR/GCA. Weight gain is common for PMR/GCA treated with Prednisone....

https://connect.mayoclinic.org/comment/1030768/

Weight loss is common for untreated PMR/GCA ... Weight gain is common for PMR/GCA treated

Discussion: Has anyone lost weight with PMR/GCA on high dose Prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 9, 2024

Yes! I'm glad you posted this. I was going to mention this to @abbeyc and @redboat...

https://connect.mayoclinic.org/comment/826967/

Actemra was approved by the FDA for GCA ... treatment of giant cell arteritis (GCA

Discussion: Has anyone heard this news about Kevzara approved for PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 16, 2023

@johnbishop John, you are a Research MACHINE! lol. Wonderful post, with great insight and suggestions, as...

https://connect.mayoclinic.org/comment/310561/

neuropathy issues after my diagnosis of GCA ... still on Actemra injections for the GCA

Discussion: Member Neuropathy Journey Stories: What's Yours?

Support Group: Neuropathy

Posted: Feb 19, 2021

@kspowell. HI ks. I have had GCA since March, 2019. I was treated in July, 2019,...

https://connect.mayoclinic.org/comment/650224/

I have had GCA since March, 2019. ... GCA has not been kind to me! ... Actemra is specifically developed for GCA

Discussion: PMR Anyone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 1, 2021

Not yet. I was planning on discussing it with the Rheumotologist at my first appointment. However,...

https://connect.mayoclinic.org/comment/961086/

However, although my GCA has moved quickly

Discussion: PMR, prednisone and Poor Sleep or Insomnia

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 8, 2023

You’re so welcome. You’re right, it is definitely a lot. It sounds like a good idea...

https://connect.mayoclinic.org/comment/904634/

And suspicion of GCA is an ER-worthy

Discussion: PMR diagnosed but now headache for almost a month.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 30, 2023

Absolutely get another opinion or better yet, another doctor. The fact that the prednisone worked so...

https://connect.mayoclinic.org/comment/888150/

inflammation under control as to avoid GCA

Discussion: Can PMR come on more gradually?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 1, 2023

There already is an alternate medication available for PMR patients. Kevzara (Sarilumab) was recently FDA approved...

https://connect.mayoclinic.org/comment/874426/

for PMR just like Actemra was for GCA

Discussion: PMR and Methotrexate

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 7, 2023

Hi @gailg, I think the results of blood tests don't always cone back with high inflammation...

https://connect.mayoclinic.org/comment/855603/

The chapter on PMR and GCA in Cecil

Discussion: Any difficulty in diagnosis of PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 6, 2023

Hi @lynd, if Giant Cell Arteritis could be diagnosed with blood tests, then a biopsy of...

https://connect.mayoclinic.org/comment/799927/

my biopsy I counted 25, Untreated, GCA

Discussion: Headaches while tapering

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 21, 2023

Hi @tillysam, Thanks for starting this discussion. You will notice that we changed the title a...

https://connect.mayoclinic.org/comment/774199/

visit-tools Anyone else have a PMR or GCA

Discussion: Additional Resources for PMR/GCA

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 17, 2022

@654321 - I am happy they never did the CRP or I would have had to...

https://connect.mayoclinic.org/comment/197270/

I call GCA my journey.

Discussion: Medications for Temporal Arteritis/Giant Cell Arteritis (GCA)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 12, 2018

Since I have never been diagnosed with GCA, I don't know how pertinent my experience with...

https://connect.mayoclinic.org/comment/1346153/

Since I have never been diagnosed with GCA

Discussion: Any experience with Actemra - for my mom who is 90 years old

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 11 8:20pm

I'm glad I dropped in on these conversations. I take 5mg of prednisone for PMR. Lately,...

https://connect.mayoclinic.org/comment/1031267/

I am assuming GCA refers to glaucoma

Discussion: How often does PMR progress to GCA?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 10, 2024

Hello, @rashida, I’m so disappointed because, I thought I was seeing an ophthalmologist but instead they...

https://connect.mayoclinic.org/comment/966626/

Does PMR or GCA cause pressure inside

Discussion: How often does PMR progress to GCA?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 17, 2023

My rheumatologist says he considers Actemra and Kavzara very similar and expects very similar results if...

https://connect.mayoclinic.org/comment/861867/

for PMR, but has been approved for GCA

Discussion: PMR: Are there treatment alternatives to Prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 18, 2023

I have a PMR/GCA and I’m currently seeing a rheumatologist. It was a rocky start, but...

https://connect.mayoclinic.org/comment/852370/

I have a PMR/GCA and I’m currently seeing

Discussion: Is everyone here diagnosed with PMR seeing a rheumatologist?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 1, 2023

I haven't had GCA but have had 2 occurrences of PMR. First time took 3 and...

https://connect.mayoclinic.org/comment/848777/

I haven't had GCA but have had 2

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 24, 2023

OMG your story sounds like mine! Also the Shingrix vaccines. Absolutely no doubt. Apparently the adjuvants...

https://connect.mayoclinic.org/comment/685762/

Trying to taper swiftly led me to GCA

Discussion: PMR, prednisone and Poor Sleep or Insomnia

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 2, 2022