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702 total results
Comments (682)
I was an underachiever when it came to tapering off quickly. It took me more than...
https://connect.mayoclinic.org/comment/860982/
I was dealing with in addition to PMR ... Things changed after Actemra was introduced ... I was completely surprised that Actemra ... Actemra changed all that for me so I ... remission while I continue to take Actemra
Hello~I'm so happy to have found this group. When I lost the sight in my left...
https://connect.mayoclinic.org/comment/856637/
I found a support group for PMR/GCA ... from 80 mg of methylprednisolone plus Actemra
Hi, I was diagnosed with PMR May 5th 2021. In September diagnosed with GCA. My Rheumy...
https://connect.mayoclinic.org/comment/845820/
Hi, I was diagnosed with PMR May 5th ... My Rheumy wanted me to start ACTEMRA ... start a statin and keep going with the Actemra ... know if I really want to continue the ACTEMRA
@pkalkstein I'm writing just to say how important and clear I think your post is.....it is...
https://connect.mayoclinic.org/comment/876552/
PMR/GCA...we don't get cured, and ... diagnosed with the flu...probably PMR ... I've been on Actemra and Pred for
I was just diagnosed with PMR. Taking 12 mgs of prednisone. Helped immediately. Dr. also put...
https://connect.mayoclinic.org/comment/878341/
I was just diagnosed with PMR. ... Want to start me on Actemra infusion
I'm currently doing Actemra infusions. It was somewhat difficult for my rheumatologist to get Actemra authorized...
https://connect.mayoclinic.org/comment/878459/
I'm currently doing Actemra infusions ... since it isn't FDA approved for PMR ... I insisted that Actemra was working ... prednisone for more than 12 years to treat PMR ... 12 years after being diagnosed with PMR
PMR often coexists with GCA. I have not been able to find another person with GCA...
https://connect.mayoclinic.org/comment/211411/
PMR often coexists with GCA. ... with GCA so I started reading the PMR ... Now my Doc wants me to go on Actemra
I will try to answer your questions but I don't have any experience with Kevzara. My...
https://connect.mayoclinic.org/comment/889954/
about 4 years ago to treat refractory PMR ... years while my primary diagnosis was PMR ... was prescribed specifically for PMR ... dose was 40 mg of prednisone when PMR ... The flare wasn't a PMR flare but
My husband was just given Actemra injections for GCA. We are waiting to confirm he doesn't...
https://connect.mayoclinic.org/comment/1026254/
My husband was just given Actemra injections ... with GCA a week and a half ago, had PMR ... We then were able to get the Actemra
To update: I had to stop the kevzara due to allergic reactions at the injection site...
https://connect.mayoclinic.org/comment/1026705/
My Rheumatologist is trying to get actemera ... Hopefully research will expand for PMR
Hi, i have been on Prednisone for 7 months, was reducing from 22mg without flares. I...
https://connect.mayoclinic.org/comment/1028780/
dose and i have had bad flares of the PMR ... have access to the IL-6 inhibitor (Actemra
Humira is a TNF inhibitor which isn't likely to help PMR. My experience with Humira was...
https://connect.mayoclinic.org/comment/1008061/
inhibitor which isn't likely to help PMR ... was used to treat PMR. ... taper off prednisone again because PMR ... impossible to adequately treat both PMR ... Uveitis hasn't recurred and PMR
A low dose of prednisone seems to help many people since they seem to stay on...
https://connect.mayoclinic.org/comment/1002908/
was time to try a biologic called Actemra ... only possible with the addition of Actemra ... which kept PMR in remission. ... Prednisone won't get rid of PMR ... Actemra seems to cause PMR to go into
Thank you for your response @johnbishop. And for sharing the links and others who have experience...
https://connect.mayoclinic.org/comment/1030073/
experience with exercise with GCA and PMR ... alternative treatments that would help PMR ... Aside from Actemra which we are holding ... he got them I'd never heard of PMR
The drug inhibits the IL-6 cytokine that that is instrumental in PMR symptoms. If your ESR...
https://connect.mayoclinic.org/comment/936791/
cytokine that that is instrumental
in PMR ... Actemra is another option to research
You learned a valuable lesson about steroids. I stayed on them too long with PMR and...
https://connect.mayoclinic.org/comment/931712/
I stayed on them too long with PMR and ... Now reducing quickly with Actemra.
I should add that Medicare may not cover Kevzara injections. Injections are considered "outpatient medications" so...
https://connect.mayoclinic.org/comment/886764/
the companies that make Kevzara and Actemra ... Since Kevzara is FDA approved for PMR ... covered by Medicare for the treatment of PMR
One would hope PMR patients of the future will have better options than prednisone. I took...
https://connect.mayoclinic.org/comment/892625/
One would hope PMR patients of the future ... prednisone for more than 12 years for PMR ... prednisone being the only option for PMR ... It made me wonder why Actemra wasn' ... approved for me to treat PMR was no
How is it going with Kevzara? I am self-injecting weekly with Actemra, which is also a...
https://connect.mayoclinic.org/comment/895854/
I am self-injecting weekly with Actemra ... Actemra has been very effective in reducing ... my PMR/GCA symptoms as I taper off
Thanks, this is very helpful. You mentioned that Actemra can be stopped at any time (unlike...
https://connect.mayoclinic.org/comment/888206/
You mentioned that Actemra can be stopped ... I assume suddenly stopping Actemra would ... increase the risk of a PMR relapse,
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