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1,062 total results
Comments (1,032)
Does anyone’s blood pressure go low while tapering down ?i have pmr been on prednisone for...
i have pmr been on prednisone for 2 ... low cortisol level and symptoms of PMR ... I didn't have the problem when Actemra ... controlled my PMR symptoms but I felt
Posted: Jul 9 6:30am
Maybe Rinvoq (upadacitinib) would work. It was recently FDA approved for GCA and has already been...
PMR or psoriatic arthritis.. ... felt it "should work" for PMR ... since many people with GCA also have PMR ... Actemra was originally FDA approved ... I have both PMR and reactive arthritis
Posted: Jul 19 11:01am
Congratulations for tapering off Prednisone. I hope you can stay off Prednisone. I was on Prednisone...
on Prednisone for 12 years to treat PMR ... was able to taper off with help from Actemra ... was still on Prednisone along with Actemra ... I'm on Actemra without Prednisone
Posted: Jun 20 12:11pm
No ... only anecdotal accounts of what I read on forums like this. I don't have...
- Except for being diagnosed with PMR ... know how anyone knows it is really PMR ... of the other conditions that mimic PMR ... before diagnosing PMR. ... I'm happy that Actemra works for
Discussion: PMR and the taper
Posted: May 31 10:04pm
Thank you for sharing your experience. In the whole scheme of things, I haven't been on...
the knowledge about the benefits of Actemra ... my rheumatologist to prescribe the Actemra ... experiences that people share about PMR
Discussion: Actemra Infusions
Posted: Jun 1 8:01am
I have been on Actemra for 6 years and have done Actemra infusions for the last...
I have been on Actemra for 6 years and ... have done Actemra infusions for the ... Prednisone was great at the start of PMR ... was being able to decide what was PMR ... and what wasn't PMR.
Discussion: Actemra Infusions
Posted: May 31 10:40pm
I just started Actemra infusions and am quite hopeful after getting more information about the drug...
I just started Actemra infusions and ... a human monoclonal antibody while Actemra ... means that the genetic material in Actemra ... the clinical trials of both, 28% of PMR ... The odds look better with Actemra than
Discussion: Actemra Infusions
Posted: Jun 1 10:03pm
It depends if your concern is more about running out of prednisone while traveling or having...
prednisone while traveling or having a PMR ... I just do my monthly Actemra infusion ... in less than 4 weeks to get my next Actemra
Discussion: PMR and travel
Posted: Jun 18 12:55pm
Sorry that you have joined 'the Club'. This is a great forum with wonderful people who...
I was diagnosed July 2024 with PMR and ... ;t know if they were caused by the PMR ... I'm am now on 5 mg., thanks to Actemra
Discussion: New to PMR
Posted: Jun 30 1:57pm
Some people with PMR and/or GCA are on prednisone for many years. If they are lucky,...
Some people with PMR and/or GCA are ... I have PMR and GCA, and I've been ... taking prednisone for a year, and Actemra ... I expect to have to take Actemra for ... I think most people with PMR stay at
Posted: Jun 21 2:19pm
I'm intrigued by this and I will ask my endocrincrinologist about it. I'm past the PMR...
I'm past the PMR treated with Prednisone ... now since an IL-6 inhibitor called Actemra ... PMR is controlled by Actemra but now
Sorry you’re going through this. I also did not respond well to 20 mg, I was...
wants me to start weekly injections of actemra ... my drug plan doesn’t cover it for PMR ... PMR is different for everyone and sometimes
Posted: Jul 15 9:51am
My experience is very similar to @nopnrose. I was diagnosed with PMR and GCA in late...
I was diagnosed with PMR and GCA in ... started taking weekly injections of Actemra ... Medicare Advantage plan that covers Actemra ... I wouldn't say that taking Actemra ... Actemra has allowed me to taper the
Discussion: Actemra
Support Group: Autoimmune Diseases
Posted: Jul 14 6:40am
"I eventually got an appointment with a rheumatologist who prescribed Tocilizumab by infusion. I found it...
psoriatic arthritis in addition to PMR ... Actemra enabled me to get completely ... while I took Prednisone daily to treat PMR ... Humira was substituted for Actemra to ... Humira didn't work too well for PMR
Posted: Jul 19 7:39am
I was treated 12 years with Prednisone for refractory PMR. When a biologic called Actemra (tocilizumab)...
years with Prednisone for refractory PMR ... "should work" for PMR. ... biologic that is FDA approved for PMR ... I'm an actual person with PMR and ... would consider a biologic to treat PMR
Posted: Jul 3 5:23pm
"Actemra took my sed rate to ZERO." ----------------------- A zero Sed Rate is within the normal...
"Actemra took my sed rate to ZERO ... I do monthly Actemra infusions and my ... was on Prednisone for 12 years for PMR ... When Actemra was started, I rapidly ... aches and pains but not as severe as PMR
Posted: Jul 3 1:36pm
No ... I don't think you are crazy. I wouldn't call it a guessing game for...
Actemra worked well for me to treat ... PMR. ... if he was certain Actemra would work ... He said, "No guarantee that Actemra ... Now I only take Actemra.
Posted: Jul 19 1:48pm
A slow taper isn't necessary for all conditions. I could do 60 mg to -0- within...
quickly after I was diagnosed with PMR ... years to taper off Prednisone after PMR ... After Actemra was started for PMR, I ... I only do a monthly infusion of Actemra
Posted: Jul 4 3:32pm