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Comments (892)

@nbailey7uh2edu3 - Have you seen these articles? -- BCMA-CD19 bispecific CAR-T therapy in refractory chronic inflammatory...

https://connect.mayoclinic.org/comment/1152216/

/article/pii/S2949928324000440 -- CIDP ... https://medicalxpress.com/news/2024-06-cidp-explores-dual-car-cell.html

Discussion: Clinical Trials for Neuropathy

Support Group: Neuropathy

Posted: Oct 5, 2024

Sorry to hear about your problems. My neurologist said and it’s in the literature that CIDP...

https://connect.mayoclinic.org/comment/908033/

said and it’s in the literature that CIDP

Discussion: CIDP, While I am waiting for the tests, genetic?

Support Group: Neuropathy

Posted: Aug 5, 2023

Hi Justin, please add me to the CIDP discussion group. I was diagnosed earlier this year....

https://connect.mayoclinic.org/comment/650290/

Hi Justin, please add me to the CIDP

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Nov 1, 2021

I have Small Fiber Polyneuropathy not CIDP Do you think the IVIG help me ? Thank...

https://connect.mayoclinic.org/comment/243657/

have Small Fiber Polyneuropathy not CIDP

Discussion: Just Diagnosed with Small Fiber Neuropathy

Support Group: Neuropathy

Posted: May 12, 2019

Before you take that you want to make sure your neurologist is really diagnosing you with...

https://connect.mayoclinic.org/comment/1159081/

neurologist is really diagnosing you with CIDP

Discussion: Desperate: Is there any hope for neuropathy?

Support Group: Neuropathy

Posted: Oct 18, 2024

I’m in Phoenix and would like to know the name of your physician. I just got...

https://connect.mayoclinic.org/comment/922756/

I just got diagnosed with CIDP.

Discussion: Anyone been diagnosed with CIDP? It's very rare

Support Group: Autoimmune Diseases

Posted: Sep 1, 2023

I would also add the GBS-CIDP Foundation website at www.gbs-cidp.org They are and invaluable tool for...

https://connect.mayoclinic.org/comment/825698/

I would also add the GBS-CIDP Foundation ... website at www.gbs-cidp.org They

Discussion: Anyone been diagnosed with CIDP? It's very rare

Support Group: Autoimmune Diseases

Posted: Mar 13, 2023

I am getting them for CIDP and it seems to help for a couple of weeks....

https://connect.mayoclinic.org/comment/676426/

I am getting them for CIDP and it seems

Discussion: Has anyone had IVIG Infusions for Neuropathy?

Support Group: Neuropathy

Posted: Jan 30, 2022

Thanks. I guess the neurological tests I had done must have ruled our CIDP. The mystery...

https://connect.mayoclinic.org/comment/1146156/

tests I had done must have ruled our CIDP

Discussion: Swallowing difficulties

Support Group: Neuropathy

Posted: Sep 23, 2024

Welcome @idahoj, I know it has to be frustrating not having a treatment that helps and...

https://connect.mayoclinic.org/comment/945725/

While you wait for members that have CIDP ... Treatment Approaches for Atypical CIDP

Discussion: DADS-M Neuropathy with Anti-Mag Antibodies...anybody else?

Support Group: Neuropathy

Posted: Oct 11, 2023

I have had systemic lupus for 40 years and RA for about 12. I now have...

https://connect.mayoclinic.org/comment/934358/

I now have CIDP (chronic inflammatory ... There’s no specific test for CIDP but ... I would check out CIDP on the internet

Discussion: Multiple Autoimmune Diseases & Post Covid

Support Group: Autoimmune Diseases

Posted: Sep 22, 2023

Mark, Mayo turned me down too. But I’ve had excellent care for my CIDP in Albuquerque...

https://connect.mayoclinic.org/comment/1210933/

But I’ve had excellent care for my CIDP

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Jan 13 9:32pm

I have had CIDP for 18 months during that time. I’ve had IvIG infusions for two...

https://connect.mayoclinic.org/comment/1233887/

I have had CIDP for 18 months during

Discussion: Has anyone had IVIG Infusions for Neuropathy?

Support Group: Neuropathy

Posted: Feb 10 2:56pm

Hi, @suzeq - just to clarify ... did you indeed end up having CIDP, or was...

https://connect.mayoclinic.org/comment/81534/

clarify ... did you indeed end up having CIDP

Discussion: Anyone been diagnosed with CIDP? It's very rare

Support Group: Autoimmune Diseases

Posted: Jul 8, 2019

didn't know chemo would cause that. so stem cell transplant chemo could make cidp worse???

https://connect.mayoclinic.org/comment/156553/

stem cell transplant chemo could make cidp

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Jul 28, 2018

I have CIDP & on monthly IVIG. Two neurosurgeons have given me the green light to...

https://connect.mayoclinic.org/comment/1175492/

I have CIDP & on monthly IVIG. ... d be interested to hear from other CIDP

Discussion: Has anyone with CIDP had Knee replacement?

Support Group: Autoimmune Diseases

Posted: Nov 18, 2024

@cwallen9 The info. from the manufacturer says it is is CIDP. Is this what you have?...

https://connect.mayoclinic.org/comment/92907/

from the manufacturer says it is is CIDP

Discussion: Anyone here dealing with peripheral neuropathy?

Support Group: Neuropathy

Posted: Oct 5, 2019

@nurse49 Have you been tested for Chronic Inflammatory Demyelinating Polyradiculoneuropathy (CIDP)? It requires a spinal tap...

https://connect.mayoclinic.org/comment/1041451/

Demyelinating Polyradiculoneuropathy (CIDP ... my.clevelandclinic.org/health/diseases/cidp-chronic-inflammatory-demyelinating-polyneuropathy ... April and will ask to rule out MS and CIDP

Discussion: Sjogrens, SFN, unbalanced walking, nystagmus

Support Group: Autoimmune Diseases

Posted: Mar 28, 2024

How did they diagnose the CIDP? Did it take quite a while? Wondering if at first...

https://connect.mayoclinic.org/comment/914285/

How did they diagnose the CIDP?

Discussion: Questions on IVIg treatment for what I have: Axonal sensory-motor

Support Group: Neuropathy

Posted: Aug 16, 2023

In my experience, CIDP since 1996 , the Phizer vaccine put me in wheelchair until it...

https://connect.mayoclinic.org/comment/786195/

In my experience, CIDP since 1996 ,