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963 total results

Comments (917)

Any information on new CIDP Study using Dual-Target CAR-T Cell Therapy

https://connect.mayoclinic.org/comment/1152098/

Any information on new CIDP Study using

Discussion: Clinical Trials for Neuropathy

Support Group: Neuropathy

Posted: Oct 4, 2024

Search CIDP Centers for Excellence. The closest one to you may be in Utah. Best of...

https://connect.mayoclinic.org/comment/1031971/

Search CIDP Centers for Excellence.

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Mar 11, 2024

Ok, after seeing this video, I definitely don't have CIDP but now a question what is...

https://connect.mayoclinic.org/comment/782961/

video, I definitely don't have CIDP

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Dec 9, 2022

Hello @melody2sulp, welcome to Mayo Clinic Connect. Here's some information about Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)...

https://connect.mayoclinic.org/comment/238686/

Inflammatory Demyelinating Polyneuropathy (CIDP ... mentioned you have been diagnosed with CIDP

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Jan 26, 2019

There is another discussion about the new drug - https://connect.mayoclinic.org/discussion/has-anyone-tried-vyvgart-for-cidp/

https://connect.mayoclinic.org/comment/1154197/

discussion/has-anyone-tried-vyvgart-for-cidp

Discussion: What do I do now?

Support Group: Neuropathy

Posted: Oct 8, 2024

@nbailey7uh2edu3 - Have you seen these articles? -- BCMA-CD19 bispecific CAR-T therapy in refractory chronic inflammatory...

https://connect.mayoclinic.org/comment/1152216/

/article/pii/S2949928324000440 -- CIDP ... https://medicalxpress.com/news/2024-06-cidp-explores-dual-car-cell.html

Discussion: Clinical Trials for Neuropathy

Support Group: Neuropathy

Posted: Oct 5, 2024

It’s an international support org for people with GBS or CIDP. Google them. Many helpful resources.

https://connect.mayoclinic.org/comment/1144227/

support org for people with GBS or CIDP

Discussion: Has anyone tried Vyvgart for CIDP?

Support Group: Autoimmune Diseases

Posted: Sep 19, 2024

Sorry to hear about your problems. My neurologist said and it’s in the literature that CIDP...

https://connect.mayoclinic.org/comment/908033/

said and it’s in the literature that CIDP

Discussion: CIDP, While I am waiting for the tests, genetic?

Support Group: Neuropathy

Posted: Aug 5, 2023

Hi Justin, please add me to the CIDP discussion group. I was diagnosed earlier this year....

https://connect.mayoclinic.org/comment/650290/

Hi Justin, please add me to the CIDP

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Nov 1, 2021

I have Small Fiber Polyneuropathy not CIDP Do you think the IVIG help me ? Thank...

https://connect.mayoclinic.org/comment/243657/

have Small Fiber Polyneuropathy not CIDP

Discussion: Just Diagnosed with Small Fiber Neuropathy

Support Group: Neuropathy

Posted: May 12, 2019

Welcome @idahoj, I know it has to be frustrating not having a treatment that helps and...

https://connect.mayoclinic.org/comment/945725/

While you wait for members that have CIDP ... Treatment Approaches for Atypical CIDP

Discussion: DADS-M Neuropathy with Anti-Mag Antibodies...anybody else?

Support Group: Neuropathy

Posted: Oct 11, 2023

Before you take that you want to make sure your neurologist is really diagnosing you with...

https://connect.mayoclinic.org/comment/1159081/

neurologist is really diagnosing you with CIDP

Discussion: Desperate: Is there any hope for neuropathy?

Support Group: Neuropathy

Posted: Oct 18, 2024

I’m in Phoenix and would like to know the name of your physician. I just got...

https://connect.mayoclinic.org/comment/922756/

I just got diagnosed with CIDP.

Discussion: Anyone been diagnosed with CIDP? It's very rare

Support Group: Autoimmune Diseases

Posted: Sep 1, 2023

I would also add the GBS-CIDP Foundation website at www.gbs-cidp.org They are and invaluable tool for...

https://connect.mayoclinic.org/comment/825698/

I would also add the GBS-CIDP Foundation ... website at www.gbs-cidp.org They

Discussion: Anyone been diagnosed with CIDP? It's very rare

Support Group: Autoimmune Diseases

Posted: Mar 13, 2023

I have had systemic lupus for 40 years and RA for about 12. I now have...

https://connect.mayoclinic.org/comment/934358/

I now have CIDP (chronic inflammatory ... There’s no specific test for CIDP but ... I would check out CIDP on the internet

Discussion: Multiple Autoimmune Diseases & Post Covid

Support Group: Autoimmune Diseases

Posted: Sep 22, 2023

I am getting them for CIDP and it seems to help for a couple of weeks....

https://connect.mayoclinic.org/comment/676426/

I am getting them for CIDP and it seems

Discussion: Has anyone had IVIG Infusions for Neuropathy?

Support Group: Neuropathy

Posted: Jan 30, 2022

Thanks. I guess the neurological tests I had done must have ruled our CIDP. The mystery...

https://connect.mayoclinic.org/comment/1146156/

tests I had done must have ruled our CIDP

Discussion: Swallowing difficulties

Support Group: Neuropathy

Posted: Sep 23, 2024

Hi, @suzeq - just to clarify ... did you indeed end up having CIDP, or was...

https://connect.mayoclinic.org/comment/81534/

clarify ... did you indeed end up having CIDP

Discussion: Anyone been diagnosed with CIDP? It's very rare

Support Group: Autoimmune Diseases

Posted: Jul 8, 2019

The Foundation for Peripheral Neuropathy has a great list of complementary and alternative neuropathy treatments including...

https://connect.mayoclinic.org/comment/1263589/

Foundation for Peripheral Neuropathy on CIDP ... Polyneuropathy) helpful: -- FPN Webinar: CIDP ... 9pZPPwn0bpE -- FPN Webinar: New Horizons in CIDP

Discussion: Small Fiber Neuropathy burning?

Support Group: Neuropathy

Posted: Mar 21 2:39pm

didn't know chemo would cause that. so stem cell transplant chemo could make cidp worse???

https://connect.mayoclinic.org/comment/156553/

stem cell transplant chemo could make cidp

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Jul 28, 2018