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2,934 total results
Comments (2,767)
Good luck with Actemra and I hope it works for you. It will take some time...
https://connect.mayoclinic.org/comment/836001/
was the power of suggestion but I tapered ... After 3 months I tapered by 1 mg per ... I needed to stop my taper at 3 mg for ... and a low cortisol level can mimic PMR ... flares" which may or may not be PMR
So glad to hear this. 👏Today is my 52nd day with PMR and 20 MG prednisone....
https://connect.mayoclinic.org/comment/835064/
👏Today is my 52nd day with PMR ... and 20 MG prednisone. 3 weeks ago I ... Still on 20 gm prednisone. ... quite a few side effects from the prednisone ... to ask my Dr if we could pls start tapering
I was diagnosed last year with RA and PMR. On prednisone, methotrexate, sulphasalazine and hydroxychloroquine. Finally...
https://connect.mayoclinic.org/comment/833706/
was diagnosed last year with RA and PMR ... On prednisone, methotrexate, sulphasalazine ... Finally now able to taper the prednisone
Like you, I have had the PMR symptoms for more than 2 years but normal blood...
https://connect.mayoclinic.org/comment/833360/
Like you, I have had the PMR symptoms ... I must be in the 20% of folks with PMR ... that if you rule everything out and Prednisone ... taper produces immediate response, ... it’s PMR.
Hi @Callalloo, It's good to hear from you! I'm hoping Dr. Fishman's yoga will help, as...
https://connect.mayoclinic.org/comment/832457/
though because I was diagnosed with PMR ... disorders from hell, and prescribed Prednisone ... , initially at a high dosage, and tapering
Just for contrast about how one person can feel one way about something and another person...
https://connect.mayoclinic.org/comment/831735/
I felt like PMR was a "blessing& ... and a fast taper would be all I needed ... legitimately for PMR. ... whether or not I still had PMR. ... I couldn't taper off.
Hi Susan, I agree this "new normal" is no fun. I am operating at about 30%...
https://connect.mayoclinic.org/comment/831553/
able to get an appointment when this PMR ... close to the time to take my daily prednisone ... curious to know from those who have tapered
My ophthalmologist didn't like me being on prednisone either. My intraocular pressures seemed to vary depending...
https://connect.mayoclinic.org/comment/831351/
Whenever my prednisone dose was 30 mg ... options available for people with PMR ... I was able to taper off prednisone within ... endocrinologist intervened and told me to stop tapering ... After I got off prednisone the first
Greetings @saltyg I hope the combination of Embrel and prednisone is working for you. AS and...
https://connect.mayoclinic.org/comment/826632/
AS and PMR is a bad mix. ... When I first tapered off prednisone ... ;t seem to control things from the PMR ... followed by a fast taper. ... I like being off prednisone!
Hi @abbeyc The biologic I'm currently on is called Actemra (tocilizumab). It has been FDA approved...
https://connect.mayoclinic.org/comment/826631/
for the treatment of GCA but not for PMR ... because of my 12 year battle with PMR ... I was unable to taper off prednisone ... I was off prednisone a year later. ... I could have tapered off prednisone
Wow, reading your tapering off situation. It’s also very confusing. I was diagnosed with PMR and...
https://connect.mayoclinic.org/comment/826320/
Wow, reading your tapering off situation ... I was diagnosed with PMR and then I ... I am currently on 40 mg of prednisone
Thanks. 60 mg of prednisone is mostly stopping my pain, and my last blood test showed...
https://connect.mayoclinic.org/comment/825886/
Thanks. 60 mg of prednisone is mostly ... linger much longer than others so the tapering ... if it turns out what I have is not PMR ... like a 1 in 250,000 level if it is PMR ... and can really help, especially with tapering
I'm a 71 YO male diagnosed with PMR and RA. I also have a slow developing...
https://connect.mayoclinic.org/comment/825439/
'm a 71 YO male diagnosed with PMR ... Currently tapering 4mg Prednisone and
I have taken 60 mg many times. I would only take 60 mg for a few...
https://connect.mayoclinic.org/comment/824291/
60 mg for a few days before I would taper ... you taking that high of a dose for PMR ... That is a GCA dose ... not a PMR dose ... Taking the larger portion of your prednisone ... Taking prednisone disrupts the circadian
Do you still take Actemra for PMR? Have you been able to stay in remission when...
https://connect.mayoclinic.org/comment/824157/
Do you still take Actemra for PMR? ... I took prednisone for more than 12 years ... for PMR and never did achieve remission ... Actemra allowed me to taper off prednisone
I am 4 months into prednisone and one week into LDN. It is too early to...
https://connect.mayoclinic.org/comment/823794/
I am 4 months into prednisone and one ... is that LDN will allow me a faster taper ... off prednisone and then the LDN will ... maintain me until PMR decides to pack ... My prednisone so far has gone from 20mg
I have been on 15mg of Prednisone since July for PMR. I get my health care...
https://connect.mayoclinic.org/comment/821074/
July for PMR. ... , I have gone to my Dr and am tapering ... I will even taper down by 0.5 mg per ... decided with my Drs. help that I am tapering ... high, so depending on lab results to taper
What a range of experiences we have all had with PMR, and it is distressing to...
https://connect.mayoclinic.org/comment/815524/
of experiences we have all had with PMR ... My doctor said, “you have PMR, I’ve ... She prescribed prednisone and two days ... After several months it was time to taper ... serious drug, and we continued the taper
I was diagnosed with Pmr in July 2019, per high crp and sed rates. It took...
https://connect.mayoclinic.org/comment/815093/
I was diagnosed with Pmr in July 2019 ... warned me of our family history of PMR ... Actemra treatments 6 months before tapering ... off prednisone. ... my 4th year of Actemra infusions, tapering
We should compare notes sometime. My uveitis was "steroid responsive." It was also called "severe" and...
https://connect.mayoclinic.org/comment/812461/
When I was diagnosed with PMR, I stopped ... of 13 years to treat PMR. ... It worked fantastic for PMR but as soon ... as I tapered off prednisone I had a ... which didn't seem to work for PMR
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