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Comments (2,008)

My mantra is there isn't any "best way" to taper off Prednisone. There are some guidelines...

https://connect.mayoclinic.org/comment/1094069/

introduced another variable called Actemra ... my rheumatologist wanted me to try Actemra ... days before PMR were still there so Actemra ... I wanted to go back on Actemra to treat ... After Actemra was restarted for PMR,

Discussion: Tapering Pains Body Response or PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 25, 2024

I am 60 years old and was in the hospital for 5 days last July with...

https://connect.mayoclinic.org/comment/1073123/

6MG Prednisone and a weekly shot of Actemra

Discussion: Muscles don't seem able to repair themselves.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 23, 2024

I know what you mean, you have to demonstrate that you are 'failing to progress' on...

https://connect.mayoclinic.org/comment/1028815/

As for getting access to Actemra, it

Discussion: Start Methotrexate with Prednisone right away or wait?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 6, 2024

I can share my experience with you~~I have been taking Cymbalta for probably 10 years, I'm...

https://connect.mayoclinic.org/comment/863372/

80 mg of steroids and the biologic Actemra

Discussion: Antidepressants overlap the effects o biologics

Support Group: Autoimmune Diseases

Posted: May 20, 2023

Has anyone had experience with purchasing LDN through AgelessRx? I just applied for it through them....

https://connect.mayoclinic.org/comment/1303369/

insurance company would not approve Actemra

Discussion: Low Dose Naltrexone and Prednisone for PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 13 1:21pm

Thank you for your kind words! My hubby and I do have are “off” days but...

https://connect.mayoclinic.org/comment/1112193/

to give clearance for me to be on Actemra

Discussion: Changing from prednisone to NSAID’s

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 26, 2024

The ones i have seen most frequently are higher cholesterol which is similar to what Prednisone...

https://connect.mayoclinic.org/comment/1089241/

If you have GCA Actemra is shown to

Discussion: Kevzara Side Effects?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 18, 2024

I have tapered to .5 mg of prednisone after being on it for more than 4...

https://connect.mayoclinic.org/comment/795738/

Starting Actemra 6 months ago had allowed

Discussion: PMR and exhaustion

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 12, 2023

It was a long 12 year journey but now PMR is being treated without prednisone. I...

https://connect.mayoclinic.org/comment/1357186/

The option was Actemra (tocilizumab) ... used to prevent uveitis flares while Actemra ... I wanted to be off Prednisone so Actemra ... now been successfully treated with Actemra

Discussion: Anyone successfully treating PMR without Prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 26 6:20pm

The way I understand it is the following: Only after 10 mg do you need to...

https://connect.mayoclinic.org/comment/1070414/

What worked for me after Actemra was ... stayed on 3 mg of prednisone. while Actemra

Discussion: Prednisone for over a year along with Kevzara for last 5 months

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 18, 2024

Something else to consider, do you have good cushioned shoes? I jog and/or walk every day,...

https://connect.mayoclinic.org/comment/1237725/

to 8 mg of prednisone and also take Actemra