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Comments (2,422)

Before I was diagnosed with PMR and GCA, in addition to most of the usual symptoms,...

https://connect.mayoclinic.org/comment/801966/

Before I was diagnosed with PMR and GCA ... about gagging attacks with PMR or GCA

Discussion: The Vagus nerve and inflammation

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 26, 2023

Hi @wedgyjackson , have you also noticed a lack of appetite? I lost about 15 lbs...

https://connect.mayoclinic.org/comment/952639/

months later, when I was positive for GCA

Discussion: Headache in back of head possible symptom of GCA?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 23, 2023

Don't despair@jennywren. I went undiagnosed with PMR for about nine ten months. Then symptoms changed and...

https://connect.mayoclinic.org/comment/861364/

symptoms changed and it was diagnosed as GCA

Discussion: Any difficulty in diagnosis of PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 17, 2023

I'm glad to hear they are planning the biopsy, the loss is permanent, as I had...

https://connect.mayoclinic.org/comment/859875/

I'd never even heard of GCA until

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 14, 2023

I agree 100% (WITHOUT PREJUDICE) The doctors know the truth pharma companies know the truth and...

https://connect.mayoclinic.org/comment/858885/

by Covid or Long Covid but by PMR GCA

Discussion: Anyone diagnosed with PMR after the Covid vaccine?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 12, 2023

This PMR/GCA thread has been so helpful. Personally I’ve been surprised at how staying active and...

https://connect.mayoclinic.org/comment/822930/

This PMR/GCA thread has been so helpful

Discussion: Tapering off of Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 8, 2023

I was diagnosed with PMR about two years ago. I was dealing with extreme discomfort in...

https://connect.mayoclinic.org/comment/712420/

I was also diagnosed with GCA about

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 29, 2022

Hi @dar9216, welcome to Connect. I have PMR but not Giant Cell Arteritis although the doctor...

https://connect.mayoclinic.org/comment/137778/

interested in reading through for GCA

Discussion: How to address PMR pain while decreasing prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 21, 2018

https://connect.mayoclinic.org/comment/1256894/

happening since the start of PMR and GCA

Discussion: Should I have temporal biopsy for GCA even after 8 weeks prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 13 9:59am

Thank you for your response. I have asked the doctor and she is adamant that he...

https://connect.mayoclinic.org/comment/1025123/

Prednisone dose one time per day for GCA

Discussion: Can you split Prednisone dose for GCA?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 29, 2024

@tsc. No, Teri. Even though I had been to Emergency five times because of right temporal...

https://connect.mayoclinic.org/comment/692625/

of right temporal and scalp pain, GCA

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 24, 2022

@lioness Hi Lioness. I missed the first conversations about bagels. Could you please tell me why...

https://connect.mayoclinic.org/comment/647790/

multi-autoimmune conditions such as GCA

Discussion: Important information about statins that I’m going to ask my doc about

Support Group: Aging Well

Posted: Oct 24, 2021

I have been wondering about that very issue. It seems like we need some research into...

https://connect.mayoclinic.org/comment/138196/

GCA is the fear!

Discussion: How to address PMR pain while decreasing prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 10, 2021

I too am having trouble as I inch below 10 mg. I’ve been reducing by ....

https://connect.mayoclinic.org/comment/245748/

when I went down to 8.5 that included GCA

Discussion: PMR and the new Shingles vaccine

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 23, 2021

Glad to find this group! I was lucky to have been diagnosed early by my PCP...

https://connect.mayoclinic.org/comment/286707/

also had bilateral biopsy to rule out GCA

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 27, 2020

I took methotrexate for 5 months or so for PMR. Nausea was bad the first week...

https://connect.mayoclinic.org/comment/1205886/

not sure methotrexate could prevent GCA

Discussion: Using methotrexate with PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 7 9:04am

I really need to go slow as I've experienced so many ups and downs....petrified of GCA...

https://connect.mayoclinic.org/comment/859726/

many ups and downs....petrified of GCA

Discussion: How did your PMR begin?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 14, 2023

@steveandsteph Thanks so much for your response! It's certainly a real bonus that you had no...

https://connect.mayoclinic.org/comment/748704/

or 5 other autoimmune conditions (GCA

Discussion: Oral lichen Planus: What home remedies or medications help you?

Support Group: Autoimmune Diseases

Posted: Sep 12, 2022

Great to hear Pred and Actemera working for you too Jeff97, albeit a slower taper ....

https://connect.mayoclinic.org/comment/1239578/

My GCA is with no temporal / cranial

Discussion: New to PMR diagnosis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 18 4:35am

Don't be scared because you are not alone in having this concern. GCA is scary but...

https://connect.mayoclinic.org/comment/937162/

GCA is scary but having read comments ... back "least likely" to have GCA ... immediately put on Prednisone 60 mg for GCA

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 26, 2023