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Comments (2,423)

@amandajro I might be a bit behind in my walking this week. Had laser eye surgery...

https://connect.mayoclinic.org/comment/296459/

Already blind in one eye from the GCA

Discussion: Let’s Go Walking! Join me for a virtual walking support group

Support Group: Just Want to Talk

Posted: Mar 18, 2021

@rachelp - I have been treated at Mayo Clinic in Jacksonville for Breast Cancer and Giant...

https://connect.mayoclinic.org/comment/225710/

their Emergency Room last May with GCA

Discussion: PMR or Steroid Myopathy

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 14, 2018

Tx for the feedback. I am not sure what to expect with GCA. I haven't had...

https://connect.mayoclinic.org/comment/1245524/

I am not sure what to expect with GCA

Discussion: Working out with PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 25 7:19pm

I use kettlebells and exercise bands for strength training 3x a week on our home patio....

https://connect.mayoclinic.org/comment/1000823/

extraordinarily severe case of PMR/non-cranial GCA

Discussion: Resistance Training and PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 20, 2024

Hi, I have had PMR for about a year and a half, I thought it was...

https://connect.mayoclinic.org/comment/758159/

Could this be the way GCA starts?

Discussion: PMR progressing to GCA? Broken vessels in eye

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 6, 2022

I’ve been taking 60mg of prednisone. My Rheumatologist and I are going back to square one....

https://connect.mayoclinic.org/comment/739457/

So, I don’t have GCA.

Discussion: Think I have Giant Cell Arteritis (or GCA)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 19, 2022

Hi @traynor4 , I don't think you can go wrong seeing a rheumatologist for PMR, based...

https://connect.mayoclinic.org/comment/701503/

because I had anemia from the PMR and GCA

Discussion: Is everyone here diagnosed with PMR seeing a rheumatologist?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 22, 2022

My PMR and GCA were diagnosed a couple of months after I received the two Moderna...

https://connect.mayoclinic.org/comment/617842/

My PMR and GCA were diagnosed a couple

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 18, 2021

Actemra (tocilizumab) was FDA approved to treat GCA back in 2017. I was started on Actemra...

https://connect.mayoclinic.org/comment/1257180/

tocilizumab) was FDA approved to treat GCA ... close association between PMR and GCA

Discussion: Anyone tried Kevzara for PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 13 3:07pm

I want to share my GCA experience in case others might want to try non controversial...

https://connect.mayoclinic.org/comment/1282463/

I want to share my GCA experience in ... I was diagnosed with GCA in October

Discussion: Adjusting to life with temporal arteritis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 15 11:25am

Hi folks. I’ve just started following this thread. I got my PMR/GCA dx about 2.5 years...

https://connect.mayoclinic.org/comment/1210041/

I got my PMR/GCA dx about 2.5 years ... Due to the GCA side they really had

Discussion: Does Kevzara put PMR in to remission?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 12 4:26pm

My experience with member benefits with KPNC is that they know less than medical specialists when...

https://connect.mayoclinic.org/comment/891592/

inflammation in my eyes relieving fears of GCA ... inflammatory markers are down so not GCA

Discussion: California Medical Insurance Plans That Cover Actemra

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 7, 2023

@loribmt Wow, Lori, fantastic pictures. What's the eagle got in his beak? A crow, a cat?...

https://connect.mayoclinic.org/comment/611041/

I.V. per day for three days when my GCA ... (That's what GCA does.)

Discussion: What's outside of your picture window today?

Support Group: Just Want to Talk

Posted: Jun 23, 2021

Hi @karo89135, my GCA returned earlier than I suspected. I had severe neck and head pain...

https://connect.mayoclinic.org/comment/1140534/

Hi @karo89135, my GCA returned earlier ... GCA can result in permanent blindness

Discussion: Prednisone and change in hair texture

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 12, 2024

Methotrexate is an older conventional medication that is frequently used by rheumatologists for many autoimmune conditions....

https://connect.mayoclinic.org/comment/1116465/

been shown to work for PMR and/or GCA ... (tocilizumab) was FDA approved for GCA

Discussion: What justifies an increase in prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 2, 2024

Actemra is FDA approved for GCA only. Kevzara is FDA approved for PMR only. Either of...

https://connect.mayoclinic.org/comment/951085/

Actemra is FDA approved for GCA only ... States if a patient has both PMR and GCA

Discussion: Has anyone else had pain return after reducing pred by only 2.5 mg?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 20, 2023

No ringing in the ears; I know that must be beyond difficult. After three years, I...

https://connect.mayoclinic.org/comment/866652/

My case of GCA went for almost a year ... I had to listen to my body...that GCA

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 25, 2023

Is "inflammatory arthritis" the same as "rheumatoid arthritis"? I'm pretty sure there were blood tests for...

https://connect.mayoclinic.org/comment/834654/

several disease categories, certainly GCA ... doctors have only focused on PMR and GCA

Discussion: How hard is it to get on Actemra (Tocilizumab) with PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 30, 2023

I don’t have experience with a split dose for GCA, but this is a great group...

https://connect.mayoclinic.org/comment/1022880/

have experience with a split dose for GCA ... I didn’t find any data on GCA specifically

Discussion: Can you split Prednisone dose for GCA?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 26, 2024

I’ve had that exact experience! I did lose vision in my left eye eye 3 times....

https://connect.mayoclinic.org/comment/755955/

even though I had all the symptoms of GCA ... I still have all the symptoms of GCA

Discussion: Do I really have PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 1, 2022