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405 total results
Comments (387)
There are so many variants of CIDP. It is possible you could have it. There are...
https://connect.mayoclinic.org/comment/938833/
There are so many variants of CIDP. ... There are specific diagnostic tests ... CIDP, although they had to do extra ... ones to give me the diagnosis of DADS ... The good news is ordinary CIDP is usually
Discussion: DADS-M - anyone else with this diagnosis I’d love to hear from you
Support Group: Neuropathy
Posted: Sep 29, 2023
It's worth the trip to get a competent diagnosis and treatment recommendation. It certainly was in...
https://connect.mayoclinic.org/comment/932389/
worth the trip to get a competent diagnosis ... in my case, where I finally got a CIDP ... diagnosis after years of seeing doctors
Discussion: Air travel to see a Mayo Clinic physician?
Support Group: Neuropathy
Posted: Sep 19, 2023
@ronoejello1, @SusanEllen66 - I would be interested to hear how your appointment went with Dr. David...
https://connect.mayoclinic.org/comment/921906/
show_locs=Y#locn • CIDP – The Gripper ... Treatment Related Fluctuations in CIDP ... Kennedy asked if we knew how the diagnosis ... name from the idiot neurologist who diagnosed
Discussion: Living with Neuropathy - Welcome to the group
Support Group: Neuropathy
Posted: Aug 31, 2023
This has been going on for 11 yrs now, and I forget sometimes what the timeline...
https://connect.mayoclinic.org/comment/914350/
etc, it was them that gave me the CIDP ... diagnosis, and cause unknown. ... 30% chance I would get a definite diagnosis
Discussion: Questions on IVIg treatment for what I have: Axonal sensory-motor
Support Group: Neuropathy
Posted: Aug 17, 2023
@sb4ca oh my gosh! Vasculitis too! I was diagnosed with Polyarteritis Nodosa in 2016. That’s when...
https://connect.mayoclinic.org/comment/911991/
I was diagnosed with Polyarteritis Nodosa ... didn’t tell me anything about the CIDP ... dermatologist took a punch biopsy and diagnosed ... I think a punch biopsy is a better diagnostic
Discussion: General question on vasculitis
Support Group: Autoimmune Diseases
Posted: Aug 12, 2023
@cgrogers hello, My name is Kim and I also have been diagnosed with CIDP about 18...
https://connect.mayoclinic.org/comment/892822/
My name is Kim and I also have been diagnosed ... with CIDP about 18 months ago. ... a very difficult time obtaining a diagnosis ... neurologist helped me and then once the diagnosis ... be a very frustrating and difficult diagnosis
Discussion: CIDP Support Group
Support Group: Autoimmune Diseases
Posted: Jul 9, 2023
Yes, I have JUST after 13 years of all the symptoms, FINALLY BEEN DIAGNOSED WITH CIDP...
https://connect.mayoclinic.org/comment/824353/
of all the symptoms, FINALLY BEEN DIAGNOSED ... WITH CIDP !!!! ... have very little medical support in diagnosing
Discussion: Anyone been diagnosed with CIDP? It's very rare
Support Group: Autoimmune Diseases
Posted: Mar 11, 2023
Hi Kim Sorry to hear that you also have been diagnosed with CIDP. I also have...
https://connect.mayoclinic.org/comment/805485/
Sorry to hear that you also have been diagnosed ... with CIDP. ... I was diagnosed in 2021 and immediately ... neuropathy but the pathophysiology for CIDP ... GIB-CIDP.org is a great organization
Discussion: Anyone been diagnosed with CIDP? It's very rare
Support Group: Autoimmune Diseases
Posted: Feb 2, 2023
I just ran across these YouTube videos that I thought might be helpful for anyone new...
https://connect.mayoclinic.org/comment/786106/
might be helpful for anyone new to CIDP ... Optimizing Outcomes in CIDP: Honing ... Diagnostic Accuracy, Personalizing Treatment
Discussion: Searching For Diagnosis. CIDP? Please Help Me
Support Group: Neuropathy
Posted: Dec 18, 2022
I have neuropathy still - year later! I started having neuropathy throughout my entire body after...
https://connect.mayoclinic.org/comment/759666/
The ER diagnosed me with carpal tunnel ... This diagnosis frustrates me to this ... knowing any better, I accepted the diagnosis ... get me to the right Dr or test for CIDP
Discussion: Anyone had a problem with neuropathy after receiving the vaccine?
Support Group: Neuropathy
Posted: Oct 11, 2022