CMT – search | You searched for comments

To narrow your search, try adding quotation marks around phrases.

Search tips

Search by keywords or complete phrases.
To narrow your search, try adding quotation marks around phrases.
Example: "predictable behavior" will narrow the search results to only include content that has the exact phrase "predictable behavior" in it.

174 total results

Comments (162)

I had some success with Sanexas Treatments. I'm certain that my experience is different than most,...

https://connect.mayoclinic.org/comment/808994/

hereditary peripheral neuropathy like CMT ... 35 kinds of neuropathy, including CMT

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Feb 9, 2023

Thanks for your reply @elained . My neurologist diagnosed mine as moderate to severe, but provided...

https://connect.mayoclinic.org/comment/247984/

related to Charcot-Marie-Tooth disorder (CMT

Discussion: Just diagnosed....continue testing for causes

Support Group: Neuropathy

Posted: Feb 20, 2019

I am new to this site- I was officially dx with Igm-CIDP/MGUS July 2019 by Mayo...

https://connect.mayoclinic.org/comment/238724/

I was first dx with CMT/CIDP after starting

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Oct 23, 2020

I have the same neuropathy issues as you. Numbness in my feet, especially my toes. Can't...

https://connect.mayoclinic.org/comment/311046/

The doctor suspects CMT or HSN but also

Discussion: Neuropathy in feet and limited toe movement?

Support Group: Neuropathy

Posted: Jul 25, 2020

Hi, I have been reading your comments above. I too have swelling of the hand(s). It...

https://connect.mayoclinic.org/comment/290959/

mentioned that she specialized in CMT

Discussion: Extreme Swelling in the Hand

Support Group: Bones, Joints & Muscles

Posted: Feb 3, 2020

There are so many kinds of neuropathy that I'm not sure there is a one size...

https://connect.mayoclinic.org/comment/839614/

They guessed CMT, but it was HNPP (Hereditary

Discussion: Idiopathic Small Fiber Neuropathy Research

Support Group: Neuropathy

Posted: Apr 7, 2023

If you stop Prolia, there is a quick drop in bone density and high risk of...

https://connect.mayoclinic.org/comment/713464/

@CMT I would ask for Tymlos or Evenity

Discussion: Prolia treatment for osteoporosis: What is your experience?

Support Group: Osteoporosis & Bone Health

Posted: Jun 2, 2022

I have an appointment at Weil Cornell in Manhattan with a Medical Geneticist on October 26th...

https://connect.mayoclinic.org/comment/324715/

I have had CMT4B for many years as well ... The CMT thing runs in my family big

Discussion: Small Fiber Neuropathy and genetic testing?

Support Group: Neuropathy

Posted: Oct 12, 2020

Hi John, Thanks for your response. I did find the SMA Foundation website. I actually called...

https://connect.mayoclinic.org/comment/317876/

The CMT thing is tolerable because I

Discussion: Is it worth trying to resolve peripheral neuropathy?

Support Group: Neuropathy

Posted: Aug 24, 2020

I truly feel for you because I went through the same thing when I was 13...

https://connect.mayoclinic.org/comment/1039877/

Palsy (also falls into the category of CMT1A ... Palsy or Charot Marie Tooth Disease (CMT

Discussion: Don't know what to do anymore

Support Group: Chronic Pain

Posted: Mar 25, 2024

Ed - Interesting. My Dad was questionable. He developed severe dementia in his early 60’s. One...

https://connect.mayoclinic.org/comment/1019471/

$150 for the testing that is not for CMT

Discussion: PN: From Anger to Acceptance

Support Group: Neuropathy

Posted: Feb 20, 2024

My mothers family has a five generation history of CMT. I developed those PN symptoms when...

https://connect.mayoclinic.org/comment/886477/

family has a five generation history of CMT ... Sensorimotor Axonal Polyneuropathy, CMT2 ... , CMT4B, and I’m a SMA carrier (entire ... Daughter two has CMT2. ... Daughter three has both CMT2 and CMT4B

Discussion: Neuropathy in hands, feet, and face that came on quickly

Support Group: Neuropathy

Posted: Jun 28, 2023

@jula73, Jula .. I am assuming that is your first name .. PLEASE correct me if...

https://connect.mayoclinic.org/comment/62366/

and a neuromuscular disease called CMT ... which can be one of the symptoms of CMT

Discussion: (MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

Support Group: MAC & Bronchiectasis

Posted: Jul 7, 2017

Neuro issues are frustrating and scary but it could be so many things including something non-life...

https://connect.mayoclinic.org/comment/1093909/

had genetic testing for suspected CMT