CMT – search | You searched for comments

To narrow your search, try adding quotation marks around phrases.

Search tips

Search by keywords or complete phrases.
To narrow your search, try adding quotation marks around phrases.
Example: "predictable behavior" will narrow the search results to only include content that has the exact phrase "predictable behavior" in it.

158 total results

Comments (147)

Hi Sheila, One possibility that could explain peripheral neuropathy in legs/feet and eyes could be a...

https://connect.mayoclinic.org/comment/844763/

, this is the most common cause of CMT

Discussion: Nerve damage and pain that isn’t neuropathy but feels like it.

Support Group: Neuropathy

Posted: Apr 17, 2023

There are others besides Winsantor in phase 2+ trials for drugs that stimulate peripheral nerve growth....

https://connect.mayoclinic.org/comment/335223/

HIV, diabetes and even some types of CMT

Discussion: Has anyone used MLS Laser therapy or Calmare Therapy?

Support Group: Neuropathy

Posted: Feb 27, 2021

My neurologist thought I had erythromelalgia until I pointed out that my SCN9A gene is normal....

https://connect.mayoclinic.org/comment/1113474/

any known Charcot-Marie-Syndrome (CMT

Discussion: Idiopathic Neuropathy started with Erythromelalgia

Support Group: Neuropathy

Posted: Jul 28, 2024

Ray - I get you. Over my first 6 years ( different doctors, 2 medical university...

https://connect.mayoclinic.org/comment/967626/

explained why he didn’t believe it was CMT

Discussion: PN and Tamsulosin (Flomax)

Support Group: Neuropathy

Posted: Nov 19, 2023

Good morning - I did wonder about my big toe as well, but my surgeon said...

https://connect.mayoclinic.org/comment/1022054/

other company could have tested for CMT

Discussion: Hammertoe Surgery and Neuropathy

Support Group: Neuropathy

Posted: Feb 25, 2024

Good morning, I’m a 54 year old female and had a double knee replacement a year...

https://connect.mayoclinic.org/comment/100479/

Icing was invaluable as well as a CMT

Discussion: Having knee replacement: how to prepare and questions about PT

Support Group: Joint Replacements

Posted: Jan 13, 2019

HNPP - I have HNPP as well. I'm 64 and it first started with numbness at...

https://connect.mayoclinic.org/comment/834743/

neuro issues and they thought he had CMT

Discussion: Stiff Person Syndrome: Want to connect with others

Support Group: Brain & Nervous System

Posted: Mar 30, 2023

@ronoejello1, @SusanEllen66 - I would be interested to hear how your appointment went with Dr. David...

https://connect.mayoclinic.org/comment/921906/

trialbulletin.com/lib/entry/ct-02260388 • CMT ... /PMC4392824/ • PXT-3003 Study for CMT1A

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Aug 31, 2023

Hello @johnhans, welcome to Mayo Connect and thank you for your question. I also have small...

https://connect.mayoclinic.org/comment/91644/

trialbulletin.com/lib/entry/ct-02260388 - CMT ... PMC4392824/ - PXT-3003 Study for CMT1A

Discussion: Anyone here dealing with peripheral neuropathy?

Support Group: Neuropathy

Posted: Oct 15, 2016

In 2008, I started with episodes of feeling like passing out. Then symptoms went away. Month...

https://connect.mayoclinic.org/comment/238727/

but said I have a dual diagnosis of CMT

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Oct 24, 2020

@j77 How very frustrating and scary for you. MG was the first thing that came to...

https://connect.mayoclinic.org/comment/1034943/

neuropathy I have that falls under the CMT

Discussion: ALS starting in the trunk of the body

Support Group: Neuropathy

Posted: Mar 17, 2024

I too suffered for years not knowing what was wrong. Similar symptoms and every neurologist said...

https://connect.mayoclinic.org/comment/1061471/

Neuropathies) and the genetic counselor for CMT

Discussion: MS? Fibro? - Still no diagnosis. Anyone else in similar situation?

Support Group: Brain & Nervous System

Posted: May 3, 2024

Sorry my response took a long time. Not only am I suffering from Chronic Sensorimotor Axsonal...

https://connect.mayoclinic.org/comment/1241264/

from Chronic Sensorimotor Axsonal PN, CMT2 ... , and CMT4B but I've had MDS/MPN

Discussion: Chronic Sensorimotor Axonal Polyneuropathy and CMTuagnised with Chroni

Support Group: Neuropathy

Posted: Feb 20 8:17am

I am making some headway in determining the cause of my CMT2. My local neurologist ordered...

https://connect.mayoclinic.org/comment/867728/

headway in determining the cause of my CMT2

Discussion: Any recommendations for a neurologist at Mayo in Rochester MN

Support Group: Neuropathy

Posted: May 27, 2023

Thanks for providing this information. It is a little difficult to wade through for someone without...

https://connect.mayoclinic.org/comment/673595/

I am assuming I have CMT2I.

Discussion: CMT=Charcot Marie Tooth Disease Type 2 Neurological Disorder form of MD

Support Group: Neuropathy

Posted: Jan 21, 2022

I have Chronic and Severe Sensorimotor Axonal Polyneuropathy plus CMT2 and CMT4B. These are incurable and...

https://connect.mayoclinic.org/comment/1121579/

Sensorimotor Axonal Polyneuropathy plus CMT2 ... and CMT4B.

Discussion: Slowing the progression of PN

Support Group: Neuropathy

Posted: Aug 11, 2024

I have MDS/MPN-RS-T which is an extremely rare overlap disease. I have multiple gene mutations on...

https://connect.mayoclinic.org/comment/855780/

Sensorimotor Axonal Polyneuropathy, CMT2 ... and CMT4B which are PN diseases.

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: May 7, 2023

Hello Mr. Preusler. I'm srhappy on Just want to talk, Mayo Clinic, a happy senior. I...

https://connect.mayoclinic.org/comment/739815/

hereditary, progressive condition (CMT2

Event: Caring for the Caregiver Support Group (Florida)

Posted: Aug 21, 2022

In most cases, you get what you pay for. My first hearing aids (on a trial...

https://connect.mayoclinic.org/comment/675085/

I do have a peripheral neuropathy (CMT2U

Discussion: I'm completely new to the world of hearing aids. Advice please.

Support Group: Hearing Loss

Posted: Jan 26, 2022

@cmt25, your case certainly is confusing. Where do you go for answers if not from the...

https://connect.mayoclinic.org/comment/657792/

@cmt25, your case certainly is confusing

Discussion: Positive cdiff GDH/PCR/Toxins -no symptoms

Support Group: Digestive Health

Posted: Nov 27, 2021