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274 total results
Comments (260)
@debgio11 Hi, Deb. I am a 54 year old female with small fiber neuropathy, cervical spondylitic...
https://connect.mayoclinic.org/comment/1051075/
MRN, and bloodwork to rule out MS/CIDP ... I understand that CIDP needs a spinal ... advocating for yourself to get answers and treatment
I have 3 other autoimmune diseases which made me susceptible to developing another (CIDP). The symptoms...
https://connect.mayoclinic.org/comment/1050778/
susceptible to developing another (CIDP ... daily for RA, lupus and it helps with CIDP ... I hope you have successful treatment
Dailyhope, coping with an illness like this is a huge challenge, I am sure for all...
https://connect.mayoclinic.org/comment/1046604/
CIDP for probably 12-15 years, but Guillain ... I hope some of this helps you and treatment
I watched the videos and thanks. I was diagnosed using EMG testing done BY THE DOCTOR...
https://connect.mayoclinic.org/comment/1045910/
I had no interest in steroid treatment ... I volunteer with the GBS/CIDP Foundations ... as well as Sining through CIDP.
Hello @cheentsia, I would like to add my welcome along with @govisri and others. It sounds...
https://connect.mayoclinic.org/comment/1036295/
opinion was helpful to confirm the CIDP ... you provide an update on your new treatment
New here and to the Mayo forum in general. I was first misdiagnosed in 2020 then...
https://connect.mayoclinic.org/comment/1034696/
2020 then properly diagnosed in 2021 CIDP ... The treatments have given me a life ... bureaucratitic problem I went without treatment
@nemo1 Wow, the questions you asked. I can barely pronounce ‘polyradiculopathy’! I looked this up and...
https://connect.mayoclinic.org/comment/1024479/
Were you diagnosed with CIDP? ... Are you getting treatment?
Welcome @kirbyukat, I have small fiber PN but haven't had the lumbar puncture but I did...
https://connect.mayoclinic.org/comment/1022449/
Approximately 90 % of patients with CIDP ... PMC4845954/
Have you started any treatments
Took 12+ years to diagnose my CIDP. After three back surgeries and a neck fusion. No...
https://connect.mayoclinic.org/comment/917236/
Took 12+ years to diagnose my CIDP. ... I got the diagnosis and began IVIG treatments ... After the second treatment the results
Hello! I’m 76 years old woman and I was just diagnosed with anti Mag. Originally it...
https://connect.mayoclinic.org/comment/910945/
Originally it was just CIDP and my neurologist ... They continue with the IGIV treatment ... - just had the second treatment, once
*** Edit Update Nov 16, 2023 *** FPN Webinar: CIDP: From Soup to Nuts, with Sami...
https://connect.mayoclinic.org/comment/909525/
Update Nov 16, 2023 ***
FPN Webinar: CIDP ... patient seeks diagnosis to possible treatment ... The program will also highlight how CIDP ... inflammatory demyelinating polyneuropathy (CIDP
I thought I would post an upcoming webinar from the Foundation of Peripheral Neuropathy that looks...
https://connect.mayoclinic.org/comment/898700/
interesting and helpful for those with CIDP ... --------------------
FPN Webinar: CIDP ... patient seeks diagnosis to possible treatment ... The program will also highlight how CIDP ... inflammatory demyelinating polyneuropathy (CIDP
Could it be C.L.I.P.P.E.R.S.? Chronic lymphocytic inflammation with pontine perivascular enhancement responsive to steroids (CLIPPERS) is...
https://connect.mayoclinic.org/comment/898042/
brain tumor, MS, MG, neurosarcoidosis, CIDP ... future when I might have to have more treatment ... wit's end due to problems with treatments
Hello @coachrandy, I would like to add my welcome to Connect along with @goldacharna and others....
https://connect.mayoclinic.org/comment/896971/
Questions:
(0:10) How do you describe CIDP ... (3:14) How would your treatment differ ... can be given to people living with CIDP ... to someone recently diagnosed with CIDP ... To learn more about The GBS and CIDP
I was diagnosed with peripheral sensorimotor polyneuropathy last year with symptoms mostly in my feet and...
https://connect.mayoclinic.org/comment/896792/
The EMG resulted in a diagnosis of CIDP ... It would be nice to know the treatments
Hi there. I was diagnosed with CIDP in 2014 and I’ve been receiving IVIG treatments every...
https://connect.mayoclinic.org/comment/893974/
I was diagnosed with CIDP in 2014 and ... I’ve been receiving IVIG treatments ... Perhaps you did not have a IVIG treatment
Hello @taa. It is great to have you here to give and receive support along this...
https://connect.mayoclinic.org/comment/846873/
discussion that you can find here:
- CIDP ... /connect.mayoclinic.org/discussion/cidp-chronic-inflammatory-demylinating-polyneuropathy ... How did your IVIG treatment go yesterday
My initial neuropathy started in 2012 after knee replacement. Mild symptoms numbness in fingertips and arm...
https://connect.mayoclinic.org/comment/844581/
many tests finally got diagnosed with CIDP ... around 2020 and put on monthly treatment ... Initial treatment brought about the ... After initial treament I didn't ... Thursday I have IVIG treatment and hopefully
Welcome @biker201, Medicare can be confusing and I'm always struggling with decisions. There is another discussion...
https://connect.mayoclinic.org/comment/837917/
that you might find helpful:
--- CIDP ... , Diagnosis, Treatment, Insurance - ... /connect.mayoclinic.org/discussion/cidp-diagnosis-treatment-insurance-medicare-and-medicare-part-d
To @janstar61 I am sorry to hear you had such a bad experience with a provider....
https://connect.mayoclinic.org/comment/825100/
I have a diagnosis of CIDP and I get ... coverage of IgG infusions, but if other treatments
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