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274 total results
Comments (260)
@debgio11 Hi, Deb. I am a 54 year old female with small fiber neuropathy, cervical spondylitic...
MRN, and bloodwork to rule out MS/CIDP ... I understand that CIDP needs a spinal ... advocating for yourself to get answers and treatment
Support Group: Neuropathy
Posted: Apr 15, 2024
I have 3 other autoimmune diseases which made me susceptible to developing another (CIDP). The symptoms...
susceptible to developing another (CIDP ... daily for RA, lupus and it helps with CIDP ... I hope you have successful treatment
Support Group: Autoimmune Diseases
Posted: Apr 14, 2024
Dailyhope, coping with an illness like this is a huge challenge, I am sure for all...
CIDP for probably 12-15 years, but Guillain ... I hope some of this helps you and treatment
Support Group: Autoimmune Diseases
Posted: Apr 7, 2024
I watched the videos and thanks. I was diagnosed using EMG testing done BY THE DOCTOR...
I had no interest in steroid treatment ... I volunteer with the GBS/CIDP Foundations ... as well as Sining through CIDP.
Support Group: Autoimmune Diseases
Posted: Apr 5, 2024
New here and to the Mayo forum in general. I was first misdiagnosed in 2020 then...
2020 then properly diagnosed in 2021 CIDP ... The treatments have given me a life ... bureaucratitic problem I went without treatment
Support Group: Autoimmune Diseases
Posted: Mar 16, 2024
Took 12+ years to diagnose my CIDP. After three back surgeries and a neck fusion. No...
Took 12+ years to diagnose my CIDP. ... I got the diagnosis and began IVIG treatments ... After the second treatment the results
Support Group: Neuropathy
Posted: Aug 22, 2023
Hello! I’m 76 years old woman and I was just diagnosed with anti Mag. Originally it...
Originally it was just CIDP and my neurologist ... They continue with the IGIV treatment ... - just had the second treatment, once
Support Group: Neuropathy
Posted: Aug 10, 2023
*** Edit Update Nov 16, 2023 *** FPN Webinar: CIDP: From Soup to Nuts, with Sami...
Update Nov 16, 2023 *** FPN Webinar: CIDP ... patient seeks diagnosis to possible treatment ... The program will also highlight how CIDP ... inflammatory demyelinating polyneuropathy (CIDP
Support Group: Autoimmune Diseases
Posted: Aug 8, 2023
I thought I would post an upcoming webinar from the Foundation of Peripheral Neuropathy that looks...
interesting and helpful for those with CIDP ... -------------------- FPN Webinar: CIDP ... patient seeks diagnosis to possible treatment ... The program will also highlight how CIDP ... inflammatory demyelinating polyneuropathy (CIDP
Discussion: CIDP Support Group
Support Group: Autoimmune Diseases
Posted: Jul 19, 2023
Could it be C.L.I.P.P.E.R.S.? Chronic lymphocytic inflammation with pontine perivascular enhancement responsive to steroids (CLIPPERS) is...
brain tumor, MS, MG, neurosarcoidosis, CIDP ... future when I might have to have more treatment ... wit's end due to problems with treatments
Support Group: Autoimmune Diseases
Posted: Jul 18, 2023
Hello @coachrandy, I would like to add my welcome to Connect along with @goldacharna and others....
Questions: (0:10) How do you describe CIDP ... (3:14) How would your treatment differ ... can be given to people living with CIDP ... to someone recently diagnosed with CIDP ... To learn more about The GBS and CIDP
Discussion: CIDP Support Group
Support Group: Autoimmune Diseases
Posted: Jul 16, 2023
Hi there. I was diagnosed with CIDP in 2014 and I’ve been receiving IVIG treatments every...
I was diagnosed with CIDP in 2014 and ... I’ve been receiving IVIG treatments ... Perhaps you did not have a IVIG treatment
Support Group: Autoimmune Diseases
Posted: Jul 11, 2023
Hello @taa. It is great to have you here to give and receive support along this...
discussion that you can find here: - CIDP ... /connect.mayoclinic.org/discussion/cidp-chronic-inflammatory-demylinating-polyneuropathy ... How did your IVIG treatment go yesterday
Support Group: Autoimmune Diseases
Posted: Apr 21, 2023
My initial neuropathy started in 2012 after knee replacement. Mild symptoms numbness in fingertips and arm...
many tests finally got diagnosed with CIDP ... around 2020 and put on monthly treatment ... Initial treatment brought about the ... After initial treament I didn't ... Thursday I have IVIG treatment and hopefully
Support Group: Autoimmune Diseases
Posted: Apr 17, 2023
Welcome @biker201, Medicare can be confusing and I'm always struggling with decisions. There is another discussion...
that you might find helpful: --- CIDP ... , Diagnosis, Treatment, Insurance - ... /connect.mayoclinic.org/discussion/cidp-diagnosis-treatment-insurance-medicare-and-medicare-part-d
Support Group: Neuropathy
Posted: Apr 5, 2023