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139 total results
Comments (136)
I had 2 different eras of prednisone use. The first 20 years were characterized by 60-100...
I had 2 different eras of prednisone ... were characterized by 60-100 mg of prednisone ... Remission would last about a year until ... treat PMR with the biologic called Actemra ... After Actemra was tried, I went from
This link shows all six of the recommendations for a treat-to-target (T2T) approach to treat PMR...
isn't even a consensus on what remission ... I can say Actemra worked infinitely ... would be in contrast to my 12 years on prednisone ... treatment target of GCA and PMR should be remission ... ; remission is the absence of clinical
I had very little success tapering off prednisone during my 12 years years of being treated...
had very little success tapering off prednisone ... Less than 10 mg of prednisone may not ... condition which doesn't go into remission ... How soon PMR goes into remission is ... about 3 years when a biologic called Actemra
I was miserable on prednisone and my quality of life was deteriorating after 12 years of...
a year of starting Actemra injections ... Actemra was restarted and Humira was ... the second time with weekly Actemra ... if I can go 2 months between Actemra ... PMR is probably in remission.
Posted: May 10, 2023
I am on Actemra also. Wonder drug!!!! After almost five years on prednisone, hydroxychloroquine, methotrexate and...
I am on Actemra also. ... After almost five years on prednisone ... all did not work, I have gone into remission ... with Actemra.
Are you still taking Enbrel for AS and uveitis? Are you also taking prednisone for PMR?...
Actemra is working for me. ... When Actemra worked so well, I tapered ... It was my choice to go back on Actemra ... the second time when Actemra was restarted ... or two in order to put uveitis in remission
Posted: Feb 18, 2023
I, like others here, suffer from fatigue. It is overwhelming and ruins my life. I have...
I have been on various amounts of prednisone ... treatments, my rheumatologist tried Actemra ... infusions and I am in remission! ... I am only on .5 mg of prednisone, soon
Support Group: Autoimmune Diseases
Posted: Jan 27, 2023
I had two bouts with PMR and then was in remissions When I quickly developed double...
two bouts with PMR and then was in remissions ... rheumatologist and was given 60 ml of prednisone ... quickly taking that large dose of prednisone ... I was taking prednisone for 1 1/2 yrs ... . but now take Actemra.
Posted: Jun 18, 2022
My rheumatologist says it is "unlikely" that I will get off Actemra unless it stops working....
;unlikely" that I will get off Actemra ... to me now which may work as well as Actemra ... remission. ... I would be in remission without any ... though I may have long periods of remission
Posted: Apr 24 3:59pm
For now, I am happy to know that Actemra can be easily stopped. Prednisone can't be...
Prednisone can't be stopped abruptly ... but Actemra can. ... had a full-blown relapse and needed prednisone ... I only needed prednisone again for 3 ... In most cases, remission is quickly
Posted: Apr 24 7:22pm
Hello @smoshetti, Welcome to Connect. Sorry your husband has to deal with PMR along with his...
My PMR is now in remission. ... discussions helpful: -- Methotrexate / Actemra ... connect.mayoclinic.org/discussion/methotrexate-actemra ... pmr-and-methotrexate/ -- Alternative to Prednisone ... connect.mayoclinic.org/discussion/alternative-to-prednisone
Posted: Jan 7 7:48am
Appears that everyone reacts differently to certain combinations of drugs. Have GCA and treated for it...
On Prednisone from Jan to end of August ... in 2024 and now on Actemra in August ... has recovered from this or gone into remission ... or had remission and it came back.
Posted: Feb 18 7:59am
I think it mostly depends on the duration of time you have been on Prednisone. I...
I hope Actemra works for you. ... I haven't been able to stop Actemra ... Actemra is easier to stop as long as ... PMR stays in remission. ... Actemra doesn't suppress my adrenal
I'm not making excuses for your rheumatologist. There are many entities including doctors from Mayo and...
Tapering once remission is achieved ... ) until discontinuation given that remission ... They predate Actemra and Kevzara. ... When I started Actemra, I had to wing ... Now I do a monthly IV infusion of Actemra
Maye, I was diagnosed with GCA at the end of June of 2024. I had undiagnosed...
I haven't achieved remission yet ... Note that I started weekly Actemra injections ... about 6 weeks after I started prednisone ... Weeks 1-6: 60 mg per day prednisone ... and or Actemra, so I'll probably
Posted: Jan 14 7:19am
I had PMR for 12 years. My rheumatologist says I still have PMR but it might...
still have PMR but it might be in remission ... thanks to Actemra. ... long as I do a monthly infusion of Actemra ... years except for when I don't get Actemra ... for 12 years until Actemra was tried
Posted: Feb 15 1:12pm