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666 total results
Comments (642)
@windyshores Thank you for your insight!! It helps me to feel that I'm not going crazy...
complicated of his issues (with PMR and GCA ... also still new, such as prescribing Actemra ... that was recently FDA approved for GCA
Welcome to the forum. My rheumatologist would say you have a complicated set of conditions. I...
I was then switched to Actemra (tocilizumab ... Actemra (tocilizumab) is an IL-6 inhibitor ... and later for other conditions and GCA
Posted: Jun 8, 2024
@megz Thank you for your explanation of what happened to you and what you've learned about...
with PMR, and just coming down with GCA ... won't get when they get PMR is GCA ... He's also taking a drug called Actemra ... is the only FDA approved drug for GCA
@johnbishop Hi John, Thanks for your response. He doesn't currently have an infection. Our concern is...
he developed Giant Cell Arteritis (GCA ... That's when we got the GCA diagnosis ... kind of infection because he's on Actemra ... to 30 mg per day with the help of Actemra ... at least way lower dose an stay on Actemra
I was given a biologic medication called Actemra (tocilizumab). It blocked the IL-6 inflammation pathway implicated...
given a biologic medication called Actemra ... pathway implicated in both PMR and GCA ... The added bonus was --- Actemra didn ... Actemra doesn't stimulate adrenal ... However, Actemra didn't suppress
Posted: May 7, 2024
At the time, Actemra (tocilizumab) was FDA approved for GCA but not PMR. My rheumatologist wanted...
FDA approved for GCA but not PMR. ... guidelines for treating a patient who had GCA ... for GCA, they concluded Actemra &#34 ... that is implicated in both PMR and GCA ... for GCA.
@csm70 My husband developed PMR in May 2023 and GCA in February 2024. Since developing GCA...
husband developed PMR in May 2023 and GCA ... Since developing GCA he has been put ... on Actemra. ... to 50 mg at the moment with weekly Actemra ... PMR but I would think could apply to GCA
Posted: May 3, 2024
Hi @csm70 and @becsbuddy, I was taking prednisone for a year and a half, then off...
I was also offered Acterma this time ... researcher and has experience with GCA ... I can always take Acterma if the prednisone
Posted: May 2, 2024
"I read the other day that someone received Actemra for PMR. According to our rheumatologist, it's...
the other day that someone received Actemra ... prednisone." My first dose of Actemra ... haven't ever been diagnosed with GCA ... I had 12 years of PMR before Actemra ... Actemra is not FDA approved for PMR
Thank you for sharing that. I feel fortunate that I was able to figure out he...
able to figure out he had developed GCA ... suddenly developed every symptom for GCA ... couple weeks later we started the Actemra
My very first injection of Actemra was on January 1st, 2019. I thought it was appropriate...
was diagnosed with PMR only and not GCA ... I had some of the symptoms of GCA but ... still haven't been diagnosed with GCA ... would be treated "as if I had GCA ... every 2 weeks for the treatment of GCA
My husband was diagnosed with PMR in May 2023 and Giant Cell Arteritis (GCA) in February...
May 2023 and Giant Cell Arteritis (GCA ... doctor said was the worse case of GCA ... tapered to 70 mg per day and started Actemra
"Would you mind sharing what medication you took to take off the Prednisone? Do you still...
Actemra (tocilizumab) was FDA approved ... for GCA in 2017. ... My rheumatologist said Actemra might ... It wasn't GCA either but an ophthalmologist ... I choose Actemra.
GCA is for Giant Cell Arteritis. I would highly recommend seeing a rheumatologist for vision change...
GCA is for Giant Cell Arteritis. ... husband had PMR and later developed GCA ... He just stated weekly Actemra injections ... I hope you don’t have or get GCA.
Posted: Mar 20, 2024
I have had PMR and GCA since 03/21 My GCA is in remission ( 2 years...
I have had PMR and GCA since 03/21 My ... GCA is in remission ( 2 years blood ... Has anyone switched from Actemra to
Thank you for your response @johnbishop. And for sharing the links and others who have experience...
have experience with exercise with GCA ... made matters worse (before getting GCA ... Aside from Actemra which we are holding ... His biopsy confirmed he has GCA but ... them I'd never heard of PMR or GCA
Posted: Mar 8, 2024
My husband was just given Actemra injections for GCA. We are waiting to confirm he doesn't...
My husband was just given Actemra injections ... for GCA. ... methylprednisolone last week (just diagnosed with GCA ... We then were able to get the Actemra
Discussion: Actemra
Support Group: Autoimmune Diseases
Posted: Mar 2, 2024