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Comments (2,423)

It’s Captainkenny. Have not been active on Mayo Connect for several months now for a couple...

https://connect.mayoclinic.org/comment/88662/

several months now for a couple reasons: GCA ... Good luck to all you GCA afflicted and

Discussion: Adjusting to life with temporal arteritis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 13, 2018

"It sounds like you have a keeper for a rheumatologist. That is half the battle. I...

https://connect.mayoclinic.org/comment/1175222/

I assume you had GCA also? ... #34;officially diagnosed" with GCA ... AS IF" I had the diagnosis of GCA ... GCA isn't the only autoimmune condition

Discussion: GCA prednisone vs. actemra infusion therapy

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 17, 2024

My husband has just been given Actemra (injections you do at home.) We picked it up...

https://connect.mayoclinic.org/comment/1025141/

said my husband has a severe case of GCA ... 80 mg daily of Prednisone since his GCA ... temple swelling." It comes back to GCA ... said they didn't think he had GCA

Discussion: GCA prednisone vs. actemra infusion therapy

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 29, 2024

I was diagnosed with GCA in January 2020 - my sed rate was 117 - and...

https://connect.mayoclinic.org/comment/303749/

I was diagnosed with GCA in January ... links to some info about Actemra and GCA ... tocilizumab-shows-promise-as-a-new-treatment-for-gca-pmr ... / https://www.actemra.com/gca/about-actemra ... /actemra-for-gca.html Reading over

Discussion: What's your experience with Actemra for GCA?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 30, 2020

My GP diagnosed my PMR, prescribed prednisone then referred me to a rheumatologist. My GP also...

https://connect.mayoclinic.org/comment/1247419/

a vascular ultrasound to rule out GCA

Discussion: Are specialists necessary?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 28 1:16pm

I'm on prednisone (10 mg) and Actemra for GCA and PMR. In a few days I'll...

https://connect.mayoclinic.org/comment/1223051/

prednisone (10 mg) and Actemra for GCA

Discussion: If you have tapering problems below 5 mg this might explain why.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 27 10:50am

Hi @bigjoe1463, the dangers of excessive heat for humans of all ages and all levels of...

https://connect.mayoclinic.org/comment/1102991/

I had PMR, then GCA, undiagnosed for

Discussion: Heat sensitivity with PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 10, 2024

Thank you for your information. Why did you decide to switch? Did your doctor encourage you...

https://connect.mayoclinic.org/comment/995033/

encouraging to know that you are free of GCA

Discussion: GCA prednisone vs. actemra infusion therapy

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 10, 2024

Hi glad you’re getting relief. How does the Buprenorphine psych psych 20 work out for you?...

https://connect.mayoclinic.org/comment/865330/

sensitive and have PMR with they think GCA

Discussion: Hydrocodone/Medical Marijuana

Support Group: Chronic Pain

Posted: May 23, 2023

Thank you so very much, John; I really appreciate that information and your note. I don't...

https://connect.mayoclinic.org/comment/856770/

surrounded by people that never heard of GCA

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 8, 2023

I would like to know if anyone has info regarding people who have long remission from...

https://connect.mayoclinic.org/comment/848738/

people who have long remission from gca

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 24, 2023

I have yet to find a GCA discussion group that you refer to in link above....

https://connect.mayoclinic.org/comment/807232/

I have yet to find a GCA discussion

Discussion: Giant Cell Arteritis Concerns after One-sided Jaw Pain

Support Group: Autoimmune Diseases

Posted: Feb 6, 2023

I agree Teri. Jaw pain stopped when I returned to 15 mg. Prednisone, just up a...

https://connect.mayoclinic.org/comment/710054/

Neurologist and Ophthalmologist concur - not GCA

Discussion: Prednisone tapering is challenging. What does remission feel like?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 20, 2022

Thank you. Yes..I have been taking the 40mg at 0600. I don't expect to stay on...

https://connect.mayoclinic.org/comment/286666/

My doc has talked to me about GCA, but

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 17, 2020

I agree with what was said. I WISH I could get down to 2 mg.! Have...

https://connect.mayoclinic.org/comment/319114/

Prednisone for 2 years Also have GCA

Discussion: PMR coming back?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 13, 2020

Thank you @johnbishop - I appreciate the feedback and will check those links. His doctor has...

https://connect.mayoclinic.org/comment/1022922/

had just PMR (just diagnosed with GCA ... doctors not believing that he had GCA

Discussion: Can you split Prednisone dose for GCA?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 26, 2024

I agree with John keeping a log was very helpful when I recently had to deal...

https://connect.mayoclinic.org/comment/1101997/

recently had to deal with an apparent GCA ... tapering protocol as I continued GCA

Discussion: Feelings when tapering: My journey

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 9, 2024

I hope Actemra works for you. Being optimistic is important I think. I lost all hope...

https://connect.mayoclinic.org/comment/972782/

the "only option" for PMR/GCA ... because of something unrelated to PMR/GCA

Discussion: GCA conserns

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 30, 2023

That forum is very good if you are from the UK. I felt alienated on that...

https://connect.mayoclinic.org/comment/1199776/

Actemra is approved in the UK for GCA ... use of corticosteroids to treat PMR/GCA

Discussion: Looking for PMR Meetup groups in the UK

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 29, 2024

Thank you for sharing that. I feel fortunate that I was able to figure out he...

https://connect.mayoclinic.org/comment/1045559/

able to figure out he had developed GCA ... suddenly developed every symptom for GCA

Discussion: What to tell adult kids? Dad diagnosed with giant cell arteritis (GCA)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 4, 2024