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Comments (2,395)

Just started yesterday BUT won't tolerate the severe side effects, ie: heart,kidney ,lungs,etc. I will quit...

https://connect.mayoclinic.org/comment/1235344/

see how/what transpires with this Orgovyx

Discussion: One month of Orgovyx completed

Support Group: Prostate Cancer

Posted: Feb 12 1:55pm

Gabapentin did little for me too. I live in the Phoenix area and have been on...

https://connect.mayoclinic.org/comment/1147602/

the Phoenix area and have been on Orgovyx

Discussion: What helped me with hot flashes: What helped you?

Support Group: Prostate Cancer

Posted: Sep 26, 2024

No surgery was not an option as the cancer had gone to a seminal vessel and...

https://connect.mayoclinic.org/comment/1138917/

Yes he is on Orgovyx and started zytega

Discussion: Second opinion for husband's stage 4A prostate cancer? And update

Support Group: Prostate Cancer

Posted: Sep 9, 2024

My psa went from 2 to just over 4 in 1 year. I fought with the...

https://connect.mayoclinic.org/comment/1098358/

radiation treatments 18 months of orgovyx

Discussion: PSA of 4.1 when never previously higher than 1.0

Support Group: Prostate Cancer

Posted: Jul 3, 2024

Ouch, after 15y from surgery it came back?? How is this possible? Where the hell the...

https://connect.mayoclinic.org/comment/1187099/

I have Orgovyx 6months and my radiation

Discussion: Testosterone replacement after radiation and Orgovyx?

Support Group: Prostate Cancer

Posted: Dec 9, 2024

My husband has had vacations on and off for over 2 years. He started on a...

https://connect.mayoclinic.org/comment/1315452/

He is now on Orgovyx and Xtandi.

Discussion: Anyone take a Treatment Holiday? Intermittent use of ADT (hormone Tx)

Support Group: Prostate Cancer

Posted: May 29 7:02am

At age 68, one 4+3, one 3+3 Decipher 0.84. When I decided to schedule the biopsy...

https://connect.mayoclinic.org/comment/1030931/

December 28th, will finish 6 months Orgovyx

Discussion: How Much Time Between Your Diagnosis to Your Start of Treatment?

Support Group: Prostate Cancer

Posted: Mar 10, 2024

Comment about Dr Walsh's book, which I recommend to all men for the info for them,...

https://connect.mayoclinic.org/comment/815030/

Example; I am on Orgovyx, approved in

Discussion: 4 + 3 = 7: Should I involve a prostate cancer specialist?

Support Group: Prostate Cancer

Posted: Feb 21, 2023

I just finished 18 months of ADT. I wanted to be on oral therapy (Orgovyx) as...

https://connect.mayoclinic.org/comment/1051130/

I wanted to be on oral therapy (Orgovyx

Discussion: ADT. Afraid of it

Support Group: Prostate Cancer

Posted: Apr 15, 2024

The very fact that you already have these ailments and are taking meds for them underscores...

https://connect.mayoclinic.org/comment/1327095/

Orgovyx is a miracle drug for reducing ... I look at the cessation of Orgovyx as

Discussion: My ADT Story, Feedback Appreciated

Support Group: Prostate Cancer

Posted: Jun 14 1:09pm

He is doing pretty good. He had quite a bit of pain that lingered for several...

https://connect.mayoclinic.org/comment/1047880/

also on a 4 month hormone treatment (Orgovyx ... The Orgovyx has caused him some issues

Discussion: MRIdian Viewray Experience

Support Group: Prostate Cancer

Posted: Apr 9, 2024

Sorry to welcome you to our club. I was diagnosed at 68 with 4+3, Decipher of...

https://connect.mayoclinic.org/comment/1205555/

Also did ADT with Orgovyx for 6 months ... The Orgovyx was entirely tolerable.

Discussion: Scheduled for a Radical Prostatectomy and having Second Thoughts

Support Group: Prostate Cancer

Posted: Jan 6 6:30pm

Thanks for the reply. Oops, bad typing on my part. Yes, it is a 41-day regime...

https://connect.mayoclinic.org/comment/1363127/

My oncologist suggested Orgovyx for ... still have to pay $975/mo OOP for the Orgovyx

Discussion: 41-days of salvage RT - your experience with side effects?

Support Group: Prostate Cancer

Posted: Aug 3 8:18pm

I had my knee replaced last March and was on Orgovyx and Darolutamide. I was 76....

https://connect.mayoclinic.org/comment/1264430/

knee replaced last March and was on Orgovyx

Discussion: Anyone had a knee replacement while on ADT?

Support Group: Prostate Cancer

Posted: Mar 22 7:01pm

I'm in the same boat..watch and see 2 scans later 7 month go by same size...

https://connect.mayoclinic.org/comment/1285333/

oncologist sad the same thing ..now on orgovyx

Discussion: What do you do when one lymph node on PSMA is inconclusive ?

Support Group: Prostate Cancer

Posted: Apr 19 10:40am

I keep track of my weight daily and looked back and saw that for the first...

https://connect.mayoclinic.org/comment/1150937/

for the first month that I was on ORGOVYX

Discussion: Anyone on Orgovyx have a raging appetite?

Support Group: Prostate Cancer

Posted: Oct 2, 2024

I just checked with my Nephrologist as I have PKD and wanted/needed to know if ADT...

https://connect.mayoclinic.org/comment/824624/

to know if ADT Rx (in my case) of Orgovyx

Discussion: ADT and effect on kidneys ?

Support Group: Prostate Cancer

Posted: Mar 11, 2023

I underwent what looks like the same regimen your Rad Onc suggested. Completed about 3 months...

https://connect.mayoclinic.org/comment/743054/

I also took an ADT, Orgovyx for a 6

Discussion: What's the difference between proton vs traditional radiation?

Support Group: Prostate Cancer

Posted: Aug 29, 2022

Did your husband have radiation at one time? Undetectable is considered < .1 though the ultra...

https://connect.mayoclinic.org/comment/1368588/

I was on Lupron for 7 years and Orgovyx ... If nothing else get him to start on Orgovyx

Discussion: At what point was the PSA undetectable?

Support Group: Prostate Cancer

Posted: Aug 11 5:09pm

I started ADT in early April. By May I had terrible SE's, more mental than physical--depression...

https://connect.mayoclinic.org/comment/1121277/

I was switched to Orgovyx due to the ... path for six months and I've read Orgovyx

Discussion: ADT. Afraid of it

Support Group: Prostate Cancer

Posted: Aug 10, 2024