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Comments (2,004)

I agree with you regarding the fact that "feeling like going out" is a sign of...

https://connect.mayoclinic.org/comment/972688/

) and will soon start also to have Actemra

Discussion: GCA conserns

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 30, 2023

@phoenix0509, I think @paddington has posted about taking Tocilizumab (Actemra) injections for GCA and may be...

https://connect.mayoclinic.org/comment/145039/

has posted about taking Tocilizumab (Actemra

Discussion: Tapering off of Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 25, 2020

you dont say whether your taking prednisone. Prednisone alone in the 6 months I took it...

https://connect.mayoclinic.org/comment/1271393/

am not sure of the side effects of actemra

Discussion: Medication for high cholesterol while taking Actemra infusions

Support Group: Autoimmune Diseases

Posted: Mar 31 11:08pm

I’ve been on methotrexate injections for over a year now and find the side effects have...

https://connect.mayoclinic.org/comment/985060/

relieve the PMR symptoms so am starting Actemra

Discussion: PMR: Are there treatment alternatives to Prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 22, 2023

I started with GCA in October, 2020 with 80 mg of Prednisone. I developed PMR in...

https://connect.mayoclinic.org/comment/798258/

time, I tried Methotrexate and, then, Actemra

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 18, 2023

Thank you Dad. Sorry it went to Therese. This is all quite interesting. I've had a...

https://connect.mayoclinic.org/comment/1175192/

This was NOT while Actemra but Methotrexate ... Perhaps the Actemra did calm the spinal

Discussion: GCA prednisone vs. actemra infusion therapy

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 17, 2024

just read your situation and I'm considering Actemra infusion... There are so many risks that are...

https://connect.mayoclinic.org/comment/977776/

situation and I'm considering Actemra ... He suggested Actemra Infusion and taper

Discussion: GCA conserns

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 9, 2023

Will 3 mg be the lowest dose you have been on since the start of PMR?...

https://connect.mayoclinic.org/comment/975369/

I didn't think Actemra was working ... I was doing Actemra injections every ... I wasn't liking Actemra and I was ... from another PMR forum about using Actemra

Discussion: PMR Dosages and Managing Symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 5, 2023

"I will be off Methylprednisolone in 6 days and will keep up the Actemra infusions. I...

https://connect.mayoclinic.org/comment/1356726/

Methylprednisolone in 6 days and will keep up the Actemra ... No one can say if that's the Actemra

Discussion: small red blotches on skin

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 26 8:49am

Hello everyone again, my insurance won’t cover Kevzara in 2025. Seem to be allergic anyway but...

https://connect.mayoclinic.org/comment/1173069/

allergic anyway but they will cover Actemra

Discussion: How much pain to tolerate

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 13, 2024

It was good. But my numbers down drastically quickly. I had to go on 20 mg...

https://connect.mayoclinic.org/comment/925875/

extensive bowel surgery that caused by the Actemra

Discussion: What's your experience with Actemra for GCA?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 7, 2023

I was diagnosed recently with GCA. My Rheumatologist started me on 60 mg of Prednisone tapering...

https://connect.mayoclinic.org/comment/864950/

She ordered the injection Actemra and

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 23, 2023

I'm so happy to hear that your regimen of medication is bringing you a measure of...

https://connect.mayoclinic.org/comment/862190/

I am on pred and Actemra and am down

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 18, 2023

Welcome @khmc, It sounds like your like your PMR and GCA are under control with only...

https://connect.mayoclinic.org/comment/796257/

are under control with only taking Actemra

Discussion: Promising New Drug for PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 13, 2023

Does everybody taking a biologic or DMARD get to 0mg prednisone? -------------------- No ... only about...

https://connect.mayoclinic.org/comment/1321737/

only about half of the patients on Actemra

Discussion: Trouble going below 3mg

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 6 1:59pm

I was diagnosed with PMR and possible GCA in late July 2024. I started on 60...

https://connect.mayoclinic.org/comment/1248282/

rheumatologist PA that I wanted to start Actemra ... I've had my second Actemra infusion ... of the potential side effects from Actemra ... I'll take my chances with Actemra

Discussion: Do CPR and SED rate numbers correspond to pain levels?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 1 7:23pm

Yes ... she is very accurate and straight forward in the way she explains PMR. My...

https://connect.mayoclinic.org/comment/1035820/

I'm glad she mentioned Actemra (

Discussion: Confused about PMR symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 18, 2024

of course first I'd ask ur Dr. I took Tylenol Arthritis (8Hr) which helped as i...

https://connect.mayoclinic.org/comment/977785/

Dr. suggests Actemra Infusion.