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Comments (2,004)

Some people with PMR and/or GCA are on prednisone for many years. If they are lucky,...

https://connect.mayoclinic.org/comment/1332082/

taking prednisone for a year, and Actemra ... I expect to have to take Actemra for

Discussion: Recently Diagnosed PMR Disease Progression

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 21 2:19pm

@dadcue Wow!!! You truly have been through it. Thanks for explaining all of this. I also...

https://connect.mayoclinic.org/comment/1099973/

needed, my husband could also remain on Actemra

Discussion: Has Prednisone/Actemra worked to completely heal GCA?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 5, 2024

I just had my Actemra infusion today. All of the staff that I could see were...

https://connect.mayoclinic.org/comment/1234632/

I just had my Actemra infusion today

Discussion: Return of masking

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 11 3:31pm

I think it’s worth a try. It takes a month or so to kick in but...

https://connect.mayoclinic.org/comment/1346405/

I’m very satisfied with this Actemra

Discussion: Any experience with Actemra - for my mom who is 90 years old

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 12 9:47am

Hi - I feel much better thank you. I had to keep taking my current seizure...

https://connect.mayoclinic.org/comment/1358624/

weaning off the XCOPRI and stopping the Actemra

Discussion: Trial for new epilepsy med

Support Group: Epilepsy & Seizures

Posted: Jul 28 3:26pm

Uveitis, you have dealt with a lot. I read up on it when I was having...

https://connect.mayoclinic.org/comment/1176520/

of prednisone when it started, and Actemra

Discussion: GCA prednisone vs. actemra infusion therapy

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 19, 2024

I was diagnosed about 5 yrs. ago with PMR/and possible GCA. I've taken prednisone for all...

https://connect.mayoclinic.org/comment/609781/

prednisone for all of that time along with Actemra

Discussion: Tapering off of Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 18, 2021

This would just be a couple of guesses. I'm currently doing monthly infusions of Actemra. The...

https://connect.mayoclinic.org/comment/908164/

currently doing monthly infusions of Actemra ... I schedule my Actemra infusion as early ... Actemra may be part of the problem because ... I hope Actemra continues to work.

Discussion: Sleeping 9-10 hours with tapering Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 5, 2023

This is a long story. My PCP diagnosed me with Templer Arteritus and prescribed 60 Mg...

https://connect.mayoclinic.org/comment/857423/

discontinued the Prednisone and started the Actemra ... might have developed a reaction to the Actemra ... how long to keep a patient on the Actemra ... next one, I will probably have my Actemra

Discussion: What's your experience with Actemra for GCA?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 10, 2023

I am presently on ACTEMRA. a biologic that I inject with EPI pen weekly.. it inhibits...

https://connect.mayoclinic.org/comment/197392/

I am presently on ACTEMRA. a biologic

Discussion: Medications for Temporal Arteritis/Giant Cell Arteritis (GCA)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 5, 2020

I know the name but I don't have any personal experience with taking Simponi. I have...

https://connect.mayoclinic.org/comment/1084363/

What worked for me was Actemra. ... For me, Actemra worked for PMR and has ... years so I'm very pleased with Actemra