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972 total results
Comments (925)
Hello @janineca, Welcome to Connect. I'm happy to see that you have already connected with @trishh....
they have tried and what helps them ... NIH is a good site to learn about small ... fiber neuropathy. ... connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours ... found Myofascial Release Therapy (MFR) helpful
Support Group: Neuropathy
Posted: Feb 28, 2022
Hello there @julkun - Do I ever hear you loud and clear! You have your finger...
we continue to let our life box be small ... umbrella over many diagnoses like small ... fiber neuropathy and others: - https ... What is your first personal goal? ... How can I help you further?
Support Group: Neuropathy
Posted: Feb 22, 2022
Stuff That Works is an online crowdsourcing platform that collects data to help with medical research....
crowdsourcing platform that collects data to help ... https://www.stuffthatworks.health/small-fiber-neuropathy ... far, there are 800 contributors for neuropathy ... s been interesting to read through what ... works and what hasn't worked.
Support Group: Neuropathy
Posted: Feb 16, 2022
@usadavidh I’m so sorry to hear you’ve not been able to find any relief. I truly...
I have small fiber neuropathy and autonomic ... neuropathy. ... My doctor says the autonomic neuropathy ... This forum really helps! ... May I ask what medications you’ve tried
Support Group: Neuropathy
Posted: Feb 3, 2022
Good morning @irr4et, OOPS......it looks like you may have gone overboard on the THC. Do you...
That is what THC is supposed to do. ... effective you combine it with THC to get what ... other pain medications to control my small ... fiber neuropathy. ... If you would like me to help you with
Support Group: Chronic Pain
Posted: Jan 25, 2022
Hi Rick @rickhood, Reading your story kind of feels little like my own story. My wife...
Journey Stories: What's Yours? ... Clinic neurologist was idiopathic small ... fiber peripheral neuropathy but since ... are no real answers or treatments to help ... diagnosis, I think I might try seeking help
Support Group: Neuropathy
Posted: Jan 9, 2022
I have severe constipation. I have always been constipated but this is on a whole different...
I do suffered from automatic small ... fiber neuropathy and I am quite sure ... Not a single one helped, they worked ... They are really small so I don’t mind ... I took the smart pill test to see what
Support Group: Digestive Health
Posted: Dec 27, 2021
Welcome @simina1234, When I was first diagnosed with small fiber PN I looked into the infrared...
simina1234, When I was first diagnosed with small ... fiber PN I looked into the infrared ... to learn what others have found helpful ... : What's Yours? ... connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours
Support Group: Neuropathy
Posted: Dec 16, 2021
Good evening Chas, @wideawakechas, Yes, my treatments are a form of UVB light delivered to the...
I have episodes of neuropathic itch ... as one element of SFN (small fiber neuropathy ... ) The light treatment helps just like ... sitting on the beach helps. ... Is that what keeps you up all night?
Support Group: Neuropathy
Posted: Nov 25, 2021
My neurologist told me their are no medications that will help with numbness. Prior to be...
their are no medications that will help ... Prior to be diagnosed with idiopathic small ... fiber PN, my PCP prescribed gabapentin ... numbness symptom you might want to read what ... Neuropathy: Numbness only, no pain:
Support Group: Neuropathy
Posted: Oct 19, 2021
Hi Lauren @laurenkay24, I'm not sure if you have had a chance to read through some...
following discussion but it may be helpful ... to learn what has helped other members ... I also have idiopathic small fiber PN ... Journey Stories: What's Yours? ... connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours
Support Group: Chronic Pain
Posted: Oct 10, 2021
Good evening @richardrr. @johnbishop has invited me to get to know you and your neuropathy pain...
invited me to get to know you and your neuropathy ... , John Bishop has no pain with his small ... fiber peripheral neuropathy. ... Here is what has been helping me get
Support Group: Autoimmune Diseases
Posted: Sep 26, 2021
Hello @madgemgunia, Welcome to Connect, an online community where patients and caregivers share their experiences, find...
can help is learning what options you ... / -- Neuropathy Pain at Night: What ... helps? ... Fiber Neuropathy: Book Recommendation ... /connect.mayoclinic.org/discussion/small-fiber-neuropathy-book
Support Group: Neuropathy
Posted: Sep 22, 2021
@joannemm30809 Oh my dear, please don't apologize. You have every right to be frustrated given your...
diagnoses that came along such as small ... fiber neuropathy. ... tested you via skin punch biopsy for small ... fiber neuropathy? ... be educated and know there may be help
Hello @nlangmack, Welcome to Connect, an online community where patients and caregivers share their experiences, find...
only have numbness with my idiopathic small ... fiber neuropathy. ... of discussions that could have some helpful ... to a lot of your symptoms so may be helpful ... -- What happens when you have a disease
Support Group: Neuropathy
Posted: Aug 23, 2021
Good morning @jgraber and welcome to Mayo Connect. We’re a group of patients and patient’s families...
We try to help each other with information ... and resources and what we have learned ... is a link to another discussion on small ... fiber neuropathy that may interest
Support Group: Neuropathy
Posted: Aug 22, 2021
Hello @neverforsaken, Welcome to Connect, an online community where patients and caregivers share their experiences, find...
No matter what type of neuropathy you ... I have small fiber peripheral neuropathy ... What has helped me is to learn as much ... : What's Yours? ... connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours
Support Group: Neuropathy
Posted: Jul 25, 2021
Hi Rick @sam31, Welcome to Connect. I went for 20+ years with the numbness starting in...
: What's Yours? ... connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours ... and was diagnosed with idiopathic small ... fiber peripheral neuropathy. ... I posted my story and what has helped
Support Group: Neuropathy
Posted: Jul 5, 2021
Hello Dave @daveage68, I would like to add my welcome to Connect along with @colleenyoung and...
I have small fiber peripheral neuropathy ... What helped me with my neuropathy before ... helped them. ... Journey Stories: What's Yours? ... What helped me was having an exercise
Support Group: Neuropathy
Posted: Jun 13, 2021
Hello @inamae, Welcome to Connect, an online community where patients and caregivers share their experiences, find...
hear your neurologist was not much help ... Fiber Neuropathy turning in to Large ... Fiber Neuropathy: https://connect.mayoclinic.org ... /discussion/small-fiber-neuropathy-turning-in-to-large-fiber-neuropathy ... fiber peripheral neuropathy I too was
Support Group: Neuropathy
Posted: Jun 12, 2021