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Comments (965)
Welcome @bailey11......it is wonderful to make your acquaintance this evening. How did you stay away from...
experiences in hopes that we will help ... sleep apnea machine and has SFPN (small ... fiber peripheral neuropathy). ... pain or neuropathic itch......just ... is going on in the neuropathy world
Support Group: Neuropathy
Posted: Jul 30, 2022
@annatino and @rivermaya34 Good evening. I am going to try to give you some background about...
back with a diagnosis of severe SFN, (small ... fiber neuropathy). ... I found it to be helpful. ... Will you please let me know what you ... Your shared experience will help so
Support Group: Neuropathy
Posted: Jun 13, 2022
Hello @lubelle, Welcome to Connect. I know it's difficult trying to help your son with his...
know it's difficult trying to help ... your son with his small fiber neuropathy ... and what has helped - Member Neuropathy ... Journey Stories: What's Yours? ... connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours
Support Group: Neuropathy
Posted: Jun 8, 2022
Yes, I do stretching, actually throughout the day. I'm terrible at keeping a routine. My chiropractor...
Baclofen surprisingly helps, especially ... I only take what I need, and am always ... Also, my length-dependent small fiber ... I will have a neuropathy panel performed
Support Group: Neuropathy
Posted: May 31, 2022
Hi @trudi22, Welcome to Connect. I'm sorry to hear that your IVIG therapy was not allowed...
in Patients With Painful Idiopathic Small ... Fiber Neuropathy: https://n.neurology.org ... - Small Fiber Neuropathy: What helps ... /connect.mayoclinic.org/discussion/small-fiber-neuropathy ... / The Foundation for Peripheral Neuropathy
Support Group: Neuropathy
Posted: May 17, 2022
Good afternoon @danpinc2022 First, let me welcome you to Connect. This is a forum where sharing...
I have had SFN small fiber neuropathy ... the neuropathy in my arms, wrists, ... So I understand what you mean by &#34 ... What kind of therapy did you have there ... you manage your neuropathy symptoms
Support Group: Neuropathy
Posted: Apr 20, 2022
Oh my oh my, I cannot believe what you have been through. If I didn't have...
Oh my oh my, I cannot believe what you ... Let's start with what really might ... That will help you immensely. ... I am struggling with Small Fiber Neuropathy ... do some senior stretch yoga which helps
Support Group: Joint Replacements
Posted: Apr 20, 2022
Welcome @shltnyoung, I am sorry to hear that you have not found any relief for your...
have not found any relief for your small ... fiber neuropathy symptoms and it&#39 ... might find some benefit in reading what ... Fiber Neuropathy: What helps? ... /connect.mayoclinic.org/discussion/small-fiber-neuropathy
Support Group: Neuropathy
Posted: Apr 14, 2022
I used to live in Atlanta Georgia for many years but we moved back to where...
my neurologist here in Tampa do a small ... fiber neuropathy biopsy? ... another neurologist in Tampa that does small ... fiber neuropathy biopsies which I should ... though you're begging them for help
Support Group: Neuropathy
Posted: Apr 10, 2022
Good evening @mahenoor108 and welcome to Connect. Yes, someone can help you, and more about that...
Would you please tell me what that means ... What I do know something about is tight ... because I was diagnosed with SFN, small ... fiber neuropathy, and headed for a ... Where would you like to start..........what
@scootwagon, I think it's great that you are doing your own research and learning as much...
That's what brought me to Connect ... and I was diagnosed with idiopathic small ... fiber PN but there were no treatments ... that helped so the neurologist said ... the diet/lifestyle changes myself to help
Support Group: Neuropathy
Posted: Mar 12, 2022
@usadavidh I’m so sorry to hear you’ve not been able to find any relief. I truly...
I have small fiber neuropathy and autonomic ... neuropathy. ... My doctor says the autonomic neuropathy ... This forum really helps! ... May I ask what medications you’ve tried
Support Group: Neuropathy
Posted: Feb 3, 2022
Good morning @irr4et, OOPS......it looks like you may have gone overboard on the THC. Do you...
That is what THC is supposed to do. ... effective you combine it with THC to get what ... other pain medications to control my small ... fiber neuropathy. ... If you would like me to help you with
Support Group: Chronic Pain
Posted: Jan 25, 2022
Hi Rick @rickhood, Reading your story kind of feels little like my own story. My wife...
Journey Stories: What's Yours? ... Clinic neurologist was idiopathic small ... fiber peripheral neuropathy but since ... are no real answers or treatments to help ... diagnosis, I think I might try seeking help
Support Group: Neuropathy
Posted: Jan 9, 2022
I have severe constipation. I have always been constipated but this is on a whole different...
I do suffered from automatic small ... fiber neuropathy and I am quite sure ... Not a single one helped, they worked ... They are really small so I don’t mind ... I took the smart pill test to see what
Support Group: Digestive Health
Posted: Dec 27, 2021
Welcome @simina1234, When I was first diagnosed with small fiber PN I looked into the infrared...
simina1234, When I was first diagnosed with small ... fiber PN I looked into the infrared ... to learn what others have found helpful ... : What's Yours? ... connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours
Support Group: Neuropathy
Posted: Dec 16, 2021
Good evening Chas, @wideawakechas, Yes, my treatments are a form of UVB light delivered to the...
I have episodes of neuropathic itch ... as one element of SFN (small fiber neuropathy ... ) The light treatment helps just like ... sitting on the beach helps. ... Is that what keeps you up all night?
Support Group: Neuropathy
Posted: Nov 25, 2021
My neurologist told me their are no medications that will help with numbness. Prior to be...
their are no medications that will help ... Prior to be diagnosed with idiopathic small ... fiber PN, my PCP prescribed gabapentin ... numbness symptom you might want to read what ... Neuropathy: Numbness only, no pain:
Support Group: Neuropathy
Posted: Oct 19, 2021
Hi Lauren @laurenkay24, I'm not sure if you have had a chance to read through some...
following discussion but it may be helpful ... to learn what has helped other members ... I also have idiopathic small fiber PN ... Journey Stories: What's Yours? ... connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours
Support Group: Chronic Pain
Posted: Oct 10, 2021
Good evening @richardrr. @johnbishop has invited me to get to know you and your neuropathy pain...
invited me to get to know you and your neuropathy ... , John Bishop has no pain with his small ... fiber peripheral neuropathy. ... Here is what has been helping me get
Support Group: Autoimmune Diseases
Posted: Sep 26, 2021