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Comments (966)
Thanks for starting this discussion Lacy @lacy2. The information on the Foundation for Peripheral Neuropathy website...
https://connect.mayoclinic.org/comment/336343/
information on the Foundation for Peripheral Neuropathy ... www.foundationforpn.org/) is really helpful ... Another good site is Neuropathy Commons ... I have small fiber peripheral neuropathy ... That and each of us are different so what
Hi Jake @jakedduck1 - I can't say whether it's true or not true but my feeling...
https://connect.mayoclinic.org/comment/159569/
a little on my own symptoms for my small ... fiber peripheral neuropathy. ... fiber PN. ... Terry Wahls helped her Multiple Sclerosis ... connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours
Hello @crisis1152, Welcome to Connect. I also have idiopathic small fiber PN. My neurologist thought that...
https://connect.mayoclinic.org/comment/159497/
I also have idiopathic small fiber PN ... 's helped, what hasn't helped ... - Member Neuropathy Journey Stories ... connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours ... correctly you've had peripheral neuropathy
@dave11 I have no medical training or background but do believe that Naproxen may be helping...
https://connect.mayoclinic.org/comment/1458560/
but do believe that Naproxen may be helping ... inflammation but that's just from what ... getting my weight under control has helped ... stop the progression of my idiopathic small ... fiber peripheral neuropathy.
@immuno1982 Dear Friend, Welcome to a wonderful community of people who offer a lot of support...
https://connect.mayoclinic.org/comment/1446630/
neurologist trusted my gut enough to know what ... It was a small hand problem that erupted ... slower than other types - e.g. large fiber ... neuropathies, but mine was exacerbated ... Hope this helps!! 🙃
Hello @immuno1982, I wished I had some answers for you other than a funny story about...
https://connect.mayoclinic.org/comment/1446038/
idiot who couldn't figure out what ... I have idiopathic small fiber peripheral ... That's what brought me to Connect ... trying to find something that would help ... search function of Connect can be quite helpful
I've been taking R-ALA as one of my supplements to help with my idiopathic small fiber...
https://connect.mayoclinic.org/comment/1441702/
R-ALA as one of my supplements to help ... with my idiopathic small fiber PN since ... 2016 and feel it has helped slow, maybe ... Hasn't helped with the old age and ... : What helps get rid of it?
@fluegelb Thank you for your reply but I did finally get help. I was diagnosed with...
https://connect.mayoclinic.org/comment/1415824/
I was diagnosed with Small Nerve Fiber ... Neuropathy non length dependent in ... This is what I did. ... Nerve Fiber Neuropathy and he didn& ... I looked it up and the Small Nerve Fiber
Those are all great questions @upnort. When I first read your discussion, I really wasn't sure...
https://connect.mayoclinic.org/comment/1415192/
If it were me, what you wrote in this ... after being diagnosed with idiopathic small ... fiber peripheral neuropathy and my ... medications, surgeries, etc.) that will help ... symptoms and diagnosis were doing to help
Welcome @type2neuropathyhope, It can be overwhelming not knowing what to do following a suspected cause of...
https://connect.mayoclinic.org/comment/1392264/
It can be overwhelming not knowing what ... I'm guessing that's what you ... diagnosed in 2016 with idiopathic small ... fiber PN that I started making lifestyle ... search=burning%20feet%20what%20helps
I have had Idiopathic Small Fiber Neuropathy for almost 10 years. I retired from a major...
https://connect.mayoclinic.org/comment/1363112/
I have had Idiopathic Small Fiber Neuropathy ... I don’t know what to tell people when ... they ask me what and when a real drug ... deep down they know very little will help ... frustration that their crap might just help
I don't know what small fiber in neuropathy is but no one seems to be able...
https://connect.mayoclinic.org/comment/1356585/
I don't know what small fiber in ... neuropathy is but no one seems to be ... able to help me. ... I don't even know what a neuro muscular
Hello @logicalperson, Welcome to Connect. You ask an excellent question and as a fellow neuropathy club...
https://connect.mayoclinic.org/comment/1355471/
club member with idiopathic small fiber ... what helps" - https://connect.mayoclinic.org ... search=neuropathy+what+helps. ... learning more about the condition and what ... helps - https://www.foundationforpn.org
Lisa I don’t have restless legs or Parkinson’s. What I do have is tremors in my...
https://connect.mayoclinic.org/comment/1345477/
What I do have is tremors in my hands ... and legs from motor neuropathy. ... sensorimotor peripheral polyneuropathy
Small ... Fiber neuropathy
CAN- cardiac autonomic ... I am on IVIG that is helping with dizziness
Hello @ranchguy221, Welcome to Connect. You are not alone with your struggle to find out what's...
https://connect.mayoclinic.org/comment/1317710/
alone with your struggle to find out what ... I have idiopathic small fiber PN and ... which I don't like but it does help ... What really helped me get my weight ... What’s your why?
Hello @janeenelizabeth, Welcome to Connect. You are not alone being after hearing your doctors say that...
https://connect.mayoclinic.org/comment/1316248/
I also have idiopathic small fiber peripheral ... neuropathy with just numbness and some ... have any treatments or suggestions to help ... looking for information that might help ... as we can about our condition and what
Hello @gregoria, I can understand wanting to find the cause of the neuropathic pain in your...
https://connect.mayoclinic.org/comment/1294027/
cause just that I have idiopathic small ... fiber peripheral neuropathy. ... figure out what type of Neuropathy? ... connect.mayoclinic.org/discussion/can-mayo-help-figure-out-what-type-of-neuropathy ... Fiber Neuropathy and genetic testing
@jab29 What levels of your cervical spine did you have ACDF surgery done on? Did your...
https://connect.mayoclinic.org/comment/1290963/
@jab29
What levels of your cervical ... My spinal cord decompression helped ... Did your neurologist ever do the small ... fiber neuropathy skin punch biopsy ... I also have small fiber neuropathy.
Hello, I'm infused every 3 was for a few years now. IVIG HELPS SOME WHAT BUT...
https://connect.mayoclinic.org/comment/1281909/
IVIG HELPS SOME WHAT BUT HARD TO SIT ... SPINE, SMALL FIBER NEUROPOTHY NOTHING
Thank you John for your welcoming message and the included information. The test I had today...
https://connect.mayoclinic.org/comment/1278803/
also revealed early manifestation of small ... fiber neuropathy in addition to the ... I shall see what the neurologist will ... In the meantime, I shall visit the links ... you sent me and see what help I may
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