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Comments (162)

@playadelcarmen Interesting question...I have had RA for years, but no rheumatologist would treat it because my...

https://connect.mayoclinic.org/comment/1382009/

arsenal, and has started me on Arava (leflunomide

Discussion: Need drug to suppress RA that does not flare up my BE or MAI.

Support Group: MAC & Bronchiectasis

Posted: Aug 29 12:12pm

Some people get Actemra (tocilizumab) approved for PMR but I don't think Actemra is approved if...

https://connect.mayoclinic.org/comment/829368/

He was on leflunomide but stopped this ... He was last on leflunomide in 2015.

Discussion: How hard is it to get on Actemra (Tocilizumab) with PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 21, 2023

I am new to this group ! I have been looking for other PMR suffers for...

https://connect.mayoclinic.org/comment/180093/

My arthritis md wanted me to go on Leflunomide

Discussion: PMR Anyone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 17, 2019

So now I'm really curious ... Why have you been on a 5 mg maintenance dose...

https://connect.mayoclinic.org/comment/1089720/

rheumatologists start trying methotrexate, leflunomide

Discussion: Are painful swollen hands and fingers a PMR flare?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 19, 2024

Hello @susieflamilngo, welcome to Connect. I have had two occurrences of PMR but it is currently...

https://connect.mayoclinic.org/comment/180092/

able to share their experience with leflunomide

Discussion: PMR Anyone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 17, 2019

My rheumy wants me off prednisone (me too) so has prescribed tapering from 10mg, 1mg every...

https://connect.mayoclinic.org/comment/1277940/

She suggested I go on leflunomide and

Discussion: Better to be in some pain or better to up the dose of prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 9 1:28pm

I tried Methotrexate and reacted badly, extreme fatigue 24/7, basically couldn't get head off pillow, felt...

https://connect.mayoclinic.org/comment/1200395/

Rheumatologist wanted me to take Leflunomide

Discussion: How did taking hydroxychloroquine for your PMR work for you?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 30, 2024

No ... I don't think you are crazy. I wouldn't call it a guessing game for...

https://connect.mayoclinic.org/comment/1351771/

medications like methotrexate and leflunomide

Discussion: Infusion vs injection of tocilizumab (Actmera)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 19 1:48pm

What other conventional DMARDs have you tried? Methotrexate (MTX) is probably used most often but there...

https://connect.mayoclinic.org/comment/1377965/

Leflunomide sometimes works of PMR.

Discussion: Has anybody used lions mane for PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 24 7:33am

I haven't read through all of the comments, so please forgive me if I'm repeating any...

https://connect.mayoclinic.org/comment/1339769/

I then went on leflunomide.

Discussion: Down to 1mg prednisone and then extreme fatigue sets in.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 2 12:42pm

Welcome to the group. The usual suggestion is to increase your Prednisone dose back to where...

https://connect.mayoclinic.org/comment/1299001/

sparing medications like methotrexate or leflunomide ... conventional DMARDs like methotrexate or leflunomide

Discussion: PMR and the taper

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 7 11:07am

"I’ve noticed on this forum that everyone just seems to be on prednisone and no other...

https://connect.mayoclinic.org/comment/1232000/

Methotrexate, Leflunomide and several ... conventional DMARDs like methotrexate, leflunomide

Discussion: The lowest effective dose, how is it defined?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 8 7:14am

Prednisone isn't the only option anymore but it is still the least expensive. There are other...

https://connect.mayoclinic.org/comment/1309805/

treat PMR and GCA are methotrexate and leflunomide

Discussion: How I tapered off Prednisone.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 21 5:29pm

I was originally diagnosed with PMR in Dec 2019. After taking my first 15mg of Prednisone...

https://connect.mayoclinic.org/comment/932973/

I've been offered Leflunomide to

Discussion: Does GCA ever present with mild symptoms ?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 20, 2023

A long list of medications were tried. I started with 40 mg of Prednisone and NSAIDS...

https://connect.mayoclinic.org/comment/1181762/

used as my first DMARD followed by Leflunomide

Discussion: Precursor symptoms to PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 29, 2024

The following link explains what a biologic is. https://www.verywellhealth.com/biologics-or-biological-agents-2615117?utm_campaign=15823081431-9b73ed45334a76&utm_source=googleawpaid&utm Biologics are being used more and more...

https://connect.mayoclinic.org/comment/788809/

alternatives like methotrexate and leflunomide

Discussion: Tapering off of Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 25, 2022

Hello. I read a bit about the side effects of Leflunomide and was afraid to try...

https://connect.mayoclinic.org/comment/774351/

read a bit about the side effects of Leflunomide

Discussion: Has anyone tried the medication leflunomide?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 17, 2022

Hello. I was reading about the side effects of Leflunomide and it spooked me too. I...

https://connect.mayoclinic.org/comment/645081/

reading about the side effects of Leflunomide

Discussion: Has anyone tried the medication leflunomide?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 14, 2021

As I've mentioned many times before on this forum, early in my journey my Rheumatologist was...

https://connect.mayoclinic.org/comment/1126204/

She wanted me to take Leflunomide but

Discussion: PMR and Methotrexate

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 18, 2024

John, Yes I did have the moderna shot months ago and really had no reaction to...

https://connect.mayoclinic.org/comment/620884/

I was taking leflunomide along with

Discussion: PMR and exercise: What helps you?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 28, 2021