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125 total results
Comments (113)
@annie2, @lacy2 Hello, Annie and Lacy.....After reading both your messages I decided I had to share...
unmanaged, and my son's pain from dystonia ... With that and botox shots he's surviving
Discussion: Unmanaged Pain
Support Group: Chronic Pain
Posted: Apr 3, 2021
@jenniferhunter Thank you Jennifer for sharing your story and trying to provide hope in the midst...
recently went through my first round of Botox ... migraines and torticollis/cervical dystonia
Support Group: Visiting Mayo Clinic
Posted: Nov 24, 2020
I have abdominal dystonia. It began 2 years ago after extensive spine surgery. I also have...
I have abdominal dystonia. ... I had a test run of Botox. ... The needle is very tiny and Botox doesn
Support Group: Brain & Nervous System
Posted: Nov 20, 2020
I’ve had chronic migraines for decades. I finally found a neurologist who worked to find the...
Botox greatly improved my quality of ... and my latest diagnosis, cervical dystonia ... and I no longer qualified for the Botox ... I’ve been off Botox for just over a ... Trying again for Botox approval to see
Support Group: Headache & Migraine
Posted: Feb 4 11:43am
Hello, Dystonia is such a complex and confusing disease. I have experienced some of the things...
Hello, Dystonia is such a complex and ... started having tremors this year (dystonia ... After a severe asthma attack I had a “Dystonia ... who put me on Carbidopa-levadopa, Botox
Had constant migraines for over 6 months before was diagnosed with cervical dystonia, and started treatment...
before was diagnosed with cervical dystonia ... , and started treatment with Botox. ... consisted of pain meds, Ubrelvy and now Botox
Support Group: Headache & Migraine
Posted: Aug 6, 2025
My toes started curling about a year ago, my foot also was turning inward. My neurologist...
neurologist suggested that I start Botox ... When the dystonia in my foot started ... whole leg and hip I decided to try the Botox
I have head and neck issues. I feel for you. I have had chronic migraines since...
I also have cervical dystonia and the ... I need to get Botox every 3 months for ... I will say the Botox helps.
Support Group: Headache & Migraine
Posted: Jul 6, 2025
Hi. Im in my mid 50s , I have had 3 TBİs , the first I...
I also have cervical dystonia. ... cared , tried to help me . ( I get Botox ... got a fill im Dr for injections ( Botox ... He didn’t spend time as it was a Botox ... If the cervical dystonia that came on
Support Group: Brain & Nervous System
Posted: Jul 5, 2025
I had my first Botox injection in my foot for dystonia about 2 weeks ago.. I...
I had my first Botox injection in my ... foot for dystonia about 2 weeks ago ... I am planning on having the Botox repeated ... It is very beneficial for cervical dystonia ... The benefits for foot dystonia is less
Hi, Dorothy, I too have genetic dystonia and my symptoms started very early but similarly were...
Hi, Dorothy, I too have genetic dystonia ... There are all kinds of dystonia and ... Another equates dystonia s working out ... I tried the Botox and I drooled. ... And ultimately accepting that dystonia
Support Group: Brain & Nervous System
Posted: Feb 14, 2023