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274 total results
Comments (260)
My Neurologist at Mayo scheduled me for a Sural nerve biopsy, which was a minor surgery...
would always be numb no matter if any treatments ... cured the rest of my CIDP. ... Anti-mag peripheral neuropathy and CIDP
Support Group: Neuropathy
Posted: Dec 6, 2021
Specifically I have many classic symptoms of GBS / CIDP I was first diagnosed with GBS...
have many classic symptoms of GBS / CIDP ... not definitive), as of yesterday, is CIDP ... initial onset and actively looking for treatment ... give me a definitive diagnosis and treatment
Support Group: Neuropathy
Posted: May 26, 2021
CIDP is a terrible disease. It affects different people in different ways, but it all comes...
CIDP is a terrible disease. ... The GBS/CIDP Foundation has a good site ... The Foundation recommends the best treatment ... out because it’s devoted entirely to CIDP ... physical therapists are unfamiliar with CIDP
Support Group: Neuropathy
Posted: Jan 15, 2020
Hi, @sdswoboda53 - welcome to Mayo Clinic Connect. I'd be scared, too, if I began having...
may have explained to you about what CIDP ... join in, here are some resources on CIDP ... A Mayo Clinic Proceedings paper on CIDP ... did your doctor prescribe as far as treatment ... for your CIDP?
Support Group: Autoimmune Diseases
Posted: Jan 29, 2019
I've had IVIG treatments for over 2 years for CIDP and small fiber neuropathy. A neurologist...
I've had IVIG treatments for over ... 2 years for CIDP and small fiber neuropathy ... receptive because it is an expensive treatment ... Most doctors won't push for this treatment
Support Group: Neuropathy
Posted: Nov 29, 2018
Hi all. I don't know what I have from day to day. First diagnosed with GBS,...
neurologist and second diagnosis was CIDP ... 2017 then followed up with radiation treatments ... the Prednisone, still having IVIG treatments ... for the CIDP diagnosis, and cautiously
Support Group: Neuropathy
Posted: Jul 11, 2017
I also have CIDP. It's been 3 years of ups and downs. I've been on Plasma...
I also have CIDP. ... quadriplegic and started a series of IVIG treatments ... says the numb feet are a gift from CIDP
Support Group: Neuropathy
Posted: Apr 11, 2017
Hello @johnhans, welcome to Mayo Connect and thank you for your question. I also have small...
show_locs=Y#locn - CIDP – The Gripper ... Study: IVIG Treatment Related Fluctuations ... in CIDP https://trialbulletin.com/
Support Group: Neuropathy
Posted: Oct 15, 2016
Hello @toolman53, I would like to add my welcome to Connect along with @celia16 and others....
answers and help for conditions like CIDP ... you have seen the Shining Through CIDP ... might be helpful to learn more about CIDP ... and available treatments - https:// ... search=CIDP.
Support Group: Neuropathy
Posted: Nov 8, 2024
Hi - I am still searching for factors that may have come together to cause what...
March 31st -Hospitalized for GBS treatment ... trying the new FDA approved drug for CIDP ... CIDP?
Support Group: Neuropathy
Posted: Oct 21, 2024
Sorry for the side effects you are having. I can give you a "success" story --...
was given a tentative diagnosis of CIDP ... said he was now 99% certain of the CIDP ... infusion center who are getting chemo treatment
Support Group: Autoimmune Diseases
Posted: Aug 10, 2024
I have relapsing polychondritis, RA, systemic lupus, and CIDP. My RP is the least of my...
polychondritis, RA, systemic lupus, and CIDP ... are not severe and respond well to treatment
Support Group: Autoimmune Diseases
Posted: Jun 26, 2024
I was diagnosed last August with Guillain Barre Syndrome following a Covid infection and subsequently diagnosed...
infection and subsequently diagnosed with CIDP ... The CIDP symptoms had been going on ... Good luck and I hope for success with treatment
Support Group: Autoimmune Diseases
Posted: May 22, 2024
I have been doing IVIG for just a couple of sessions so far. I have had...
I do get headaches following treatments ... fortunate that I have responded to treatment ... afternoon via "Shining through CIDP