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131 total results
Comments (128)
I have tapered to .5 mg of prednisone after being on it for more than 4...
https://connect.mayoclinic.org/comment/795738/
I have tapered to .5 mg of prednisone ... Starting Actemra 6 months ago had allowed ... this and has basically put me into remission
Yes, I was on prednisone many times for both GCA and PMR but now Actemra has...
https://connect.mayoclinic.org/comment/717035/
Yes, I was on prednisone many times ... for both GCA and PMR but now Actemra ... The prednisone, over the years, has ... I just would like to be in remission
Hi there. I was diagnosed last year with PMR and just recently with GCA. I was...
https://connect.mayoclinic.org/comment/331097/
I had been on 20mg of prednisone for ... looking forward to tapering down the prednisone ... entirely and I am also hoping the Actemra ... will put the PMR into remission as ... Anyone having good results with Actemra
Hello @artist01, Welcome to Mayo Clinic Connect. It sounds like you have a very understanding doctor...
https://connect.mayoclinic.org/comment/286705/
do have PMR which is currently in remission ... - What's your experience with Actemra ... temperol-arteritis-or-giant-cell-arteritis/
Are you still taking prednisone ... along with the Actemra?
I was able to completely taper off prednisone twice. Both times from the 10-15 mg range...
https://connect.mayoclinic.org/comment/286646/
I was able to completely taper off prednisone ... ophthalmologist --- I decided to restart Actemra ... can't say that I want to take Actemra ... a remission of PMR. ... So far, things seem much better on Actemra
"With testing, PMR was declared in remission at 10." ---------------------- How was this done? There is...
https://connect.mayoclinic.org/comment/1169026/
;With testing, PMR was declared in remission ... Most of the things I read is that remission ... However, when Actemra was started it ... again when I go too long without an Actemra ... The criteria that remission is achieved
well thats the thing. just like what started the disease everyone is different. I think there...
https://connect.mayoclinic.org/comment/1093989/
was also on an equivalent of 10mg prednisone ... If Dadcue responds he was on prednisone ... for 10 plus years and still taking Actemra ... would say likely your PMR is not in remission
marymckeith here is the response from the lady on the other facebook page I belong to....
https://connect.mayoclinic.org/comment/1084392/
Was on 2-3 mg of prednisone after the ... I tried Actemra didn't work, he ... be working or I went in spontaneous remission
I need to ask how long you took prednisone before Kevzara was started. Research studies usually...
https://connect.mayoclinic.org/comment/1079883/
patients to have a "sustained remission ... I have taken Actemra for more than ... I had relapses when Actemra was stopped ... I still do a monthly infusions of Actemra ... have any serious side effects from Atemra
The problem with testing for adrenal insufficiency is because cortisol levels can't be tested reliably until...
https://connect.mayoclinic.org/comment/1049136/
until a person is on a low dose of prednisone ... Many people on long term prednisone ... after Actemra was tried.
"A ... glucocorticoid treatment after disease remission ... More Prednisone but hydrocortisone is
I had difficulty coming off prednisone after starting Actemra. It took me an entire year to...
https://connect.mayoclinic.org/comment/987621/
after starting Actemra. ... I had to persevere with Actemra but ... without Actemra. ... even with Actemra. ... I like being in remission.
@marieameehan Talk with your doctor about the side effects! When I asked my endocrinologist about a...
https://connect.mayoclinic.org/comment/976141/
As for the prednisone, you don’t want ... to take it until you are in remission ... When you get to remission, what will ... I’m able to get off prednisone because ... your doctor about the side effects of Actemera
I met with my Rheumatologist ti discuss treatment for my recently diagnosed GCA. She feels Actemra...
https://connect.mayoclinic.org/comment/976121/
She feels Actemra is the way to
Go ... Has anyone used Prednisone to take ... them to remission ???
Be patient and hopefully Kevzara works for you. I didn't really know Actemra was working until...
https://connect.mayoclinic.org/comment/954168/
I didn't really know Actemra was ... said PMR probably wasn't in remission ... yet but Actemra was controlling my ... I still take Actemra and my rheumatologist ... Actemra is better for me.
I took prednisone for more than 30 years for a variety of autoimmune problems but GCA...
https://connect.mayoclinic.org/comment/951680/
The pain is mostly relieved but remission ... With the uveitis flares I had, remission ... until Actemra was tried. ... He also said, Actemra might be my best ... When Actemra allowed me to get off prednisone
My first dose of Actemra was January 1st, 2019. I started with injections every 2 weeks....
https://connect.mayoclinic.org/comment/921207/
My first dose of Actemra was January ... I had PMR relapses when Actemra was ... I have taken Actemra almost 5 years ... My dose of Actemra has changed from ... rheumatologist thinks PMR might be in remission
I had 2 different eras of prednisone use. The first 20 years were characterized by 60-100...
https://connect.mayoclinic.org/comment/909656/
I had 2 different eras of prednisone ... were characterized by 60-100 mg of prednisone ... Remission would last about a year until ... treat PMR with the biologic called Actemra ... After Actemra was tried, I went from
This link shows all six of the recommendations for a treat-to-target (T2T) approach to treat PMR...
https://connect.mayoclinic.org/comment/879884/
isn't even a consensus on what remission ... I can say Actemra worked infinitely ... would be in contrast to my 12 years on prednisone ... treatment target of GCA and PMR should be remission ... ; remission is the absence of clinical
I had very little success tapering off prednisone during my 12 years years of being treated...
https://connect.mayoclinic.org/comment/874035/
had very little success tapering off prednisone ... Less than 10 mg of prednisone may not ... condition which doesn't go into remission ... How soon PMR goes into remission is ... about 3 years when a biologic called Actemra
I was miserable on prednisone and my quality of life was deteriorating after 12 years of...
https://connect.mayoclinic.org/comment/857961/
a year of starting Actemra injections ... Actemra was restarted and Humira was ... the second time with weekly Actemra ... if I can go 2 months between Actemra ... PMR is probably in remission.
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