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723 total results
Comments (699)
I have been receiving treatment for GCA and PMR for 11 months. I started at 60...
https://connect.mayoclinic.org/comment/1310195/
have been receiving treatment for GCA ... I also take Actemra injections weekly ... #39;t had any pain from the PMR or GCA
" I haven't had any pain from the GCA or PMR since starting treatment. So it...
https://connect.mayoclinic.org/comment/1313068/
haven't had any pain from the GCA ... were causing all my problems since Actemra
I have PMR and GCA. I'm currently at 3 mg of prednisone per day, and I...
https://connect.mayoclinic.org/comment/1316626/
I have PMR and GCA. ... prednisone per day, and I take weekly Actemra
I’m sorry I don’t have any experience with anti viral medicine. You mentioned you were diagnosed...
https://connect.mayoclinic.org/comment/1242857/
mentioned you were diagnosed with PMR and GCA ... My Rheumatologist is talking about GCA ... he wants me to take injections of Actimra ... sharing how you were diagnosed with GCA ... your symptoms that told Dr you had GCA
My rheumatologist said basically the same thing. I thought he had me confused for someone else...
https://connect.mayoclinic.org/comment/1242422/
Actemra gave me a new lease on life ... anymore as long as I do a monthly Actemra ... suggests a more chronic nature of GCA ... than the existing expectation that GCA ... overall condition is much better on Actemra
People often have teeth pulled to relieve TN pain. That intervention doesn’t work. I am screened...
https://connect.mayoclinic.org/comment/1221314/
I am screened for GCA by my rheumatologist ... No evidence of GCA but I’m being treated ... with Actemra as if I have GCA. ... have PMR, you should be checked for GCA
I was diagnosed with GCA in late June 2024. I had undiagnosed PMR for about a...
https://connect.mayoclinic.org/comment/1221493/
I was diagnosed with GCA in late June ... I started injecting with Actemra weekly ... months to really feel the benefit of Actemra
Thanks for your reply. I'm glad that your taper is working and you are pain-free. When...
https://connect.mayoclinic.org/comment/1221665/
you were pain-free when you started Actemra ... Prior to PMR/GCA, I never had any blood
I've been on prednisone since late June of 2024 for GCA. I started at 60 mg...
https://connect.mayoclinic.org/comment/1216832/
prednisone since late June of 2024 for GCA ... I have also been taking Actemra since ... more associated with prednisone than Actemra ... saved my vision and treated my PMR and GCA
@terrym Why do you see an endocrinologist? I was originally referred to an endocrinologist when I...
https://connect.mayoclinic.org/comment/1298146/
my rheumatiogist wanted me to try Actemra ... After Actemra was started, I tapered ... I still do a monthly Actemra infusion ... Actemra is only FDA approved for GCA ... that was recently FDA approved for GCA
I got really tired of pain while going almost a year without my PMR and GCA...
https://connect.mayoclinic.org/comment/1276524/
going almost a year without my PMR and GCA ... started treatment (prednisone and Actemra ... 5 mg prednisone to go with weekly Actemra
I had a great response from Actemra. My first dose was on January 1st, 2019. It...
https://connect.mayoclinic.org/comment/1150722/
I had a great response from Actemra. ... remember is ---compared to Prednisone, Actemra ... I stayed on Actemra the entire time ... After a year on Actemra, I was confident ... both adrenal insufficiency and PMR/GCA
Hi.... I would like to get your insight on Actemra. I was diagnosed with GCA in...
https://connect.mayoclinic.org/comment/1144491/
would like to get your insight on Actemra ... I was diagnosed with GCA in October, ... and after 7 months started weekly Actemra ... about tapering off or discontinuing Actemra
I know the website you are referring to. I liked the forum itself with people who...
https://connect.mayoclinic.org/comment/1144143/
entitled to know" things about PMR/GCA ... I wanted to get information about Actemra ... Europe who were being treated with Actemra ... people who had some experience with Actemra ... My experience with Actemra wasn'
Hi @dadcue! You asked "Did anyone ever tell you that your taper was too fast?" The...
https://connect.mayoclinic.org/comment/1144057/
over 6 weeks after my initial PMR/GCA ... effects, so I was very happy to have Actemra
It basically says the same thing I was trying to explain. I know very little about...
https://connect.mayoclinic.org/comment/1140669/
This is also where FDA approval for Actemra ... to treat GCA and Kevzara to treat PMR ... medication that works" for PMR/GCA
@tapamil65 Hello and welcome to the PMR group! I agree that this forum is a wealth...
https://connect.mayoclinic.org/comment/1131708/
rheumatologist wants to start me on Actemra ... Although it is approved for people with GCA
I was diagnosed with PMR & GCA in May 2022 at Mayo Clinic. My then rheumatologist...
https://connect.mayoclinic.org/comment/1131088/
I was diagnosed with PMR & GCA in ... on 40 mg prednisone & I started Actemra ... After more than 2 years on Actemra I ... of noticeable side effects from the Actemra ... I’m really happy to be getting off Actemra
I was on Actemra for my GCA. But, PMR predisposes GCA. I wasn’t getting the relief...
https://connect.mayoclinic.org/comment/1130693/
I was on Actemra for my GCA. ... But, PMR predisposes GCA.
@jabrown0407 suggestions have merit. I took Prednisone for more than 12 years. My primary diagnosis was...
https://connect.mayoclinic.org/comment/1122681/
When Actemra (tocilizumab) addressed ... prominent role in the pathogenesis of PMR/GCA ... isn't the same for everyone so Actemra ... long as I do a monthly infusion of Actemra ... remissions" and are able to discontinue Actemra
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