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Comments (2,436)

Hi to all here and thank you for the opportunity to share my story. I was...

https://connect.mayoclinic.org/comment/1006566/

I was diagnosed with Systemic Lupus ... It took years to diagnose my Lupus and

Discussion: Multiple Sclerosis (MS) - please introduce yourself

Support Group: Brain & Nervous System

Posted: Jan 30, 2024

@kaydee01 Welcome to Mayo Ciinic Connect! It's concerning,no doubt, to have this mottling issue. What I...

https://connect.mayoclinic.org/comment/863951/

What I have found with Systemic Lupus ... protein in my urine was a result of the lupus

Discussion: Does anyone have Tumid Lupus?

Support Group: Autoimmune Diseases

Posted: May 21, 2023

@lisabeans Yes, I do have a rheumatologist. Her tests rule out Lupus. I already have rheumatoid...

https://connect.mayoclinic.org/comment/149836/

Her tests rule out Lupus. ... have ruled out any type of hepatitis, lupus

Discussion: Have a few autoimmune disorders - now have consistent low grade fever

Support Group: Autoimmune Diseases

Posted: May 1, 2017

I have Multiple Sclerosis and because of muscle weakness I was also diagnosed with GP. I...

https://connect.mayoclinic.org/comment/51073/

Autoimmune diseases as well such as Lupus

Discussion: Gastroparesis with severe symptoms!

Support Group: Digestive Health

Posted: Aug 2, 2011

Best to your Son's treatments. I have received Rituxan via Mayo every 4 mos for past...

https://connect.mayoclinic.org/comment/1099072/

4 mos for past 9 yrs (RA/Sjogrens/lupus

Discussion: Rheumatoid Arthritis (RA) - Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Jul 4, 2024

Thank you. I will let you know what I learn if I ever do. My grandmother...

https://connect.mayoclinic.org/comment/837568/

they finally figured out that she had lupus

Discussion: ANA positive then negative then positive...

Support Group: Autoimmune Diseases

Posted: Apr 4, 2023

Hi @lauraharris111 I see that you’re going to Mayo Clinic in Jacksonville, FL. Do you have...

https://connect.mayoclinic.org/comment/704237/

supposed’ diagnosis of sarcoidosis and lupus

Discussion: So many questions. Seeing Rheumatology and GI at Mayo JAX

Support Group: Autoimmune Diseases

Posted: Apr 30, 2022

Yes, I fit the profile and it's been a roller coaster of a ride. Doctors, many...

https://connect.mayoclinic.org/comment/146268/

depends of doctors knowledge of Tumid Lupus

Discussion: Tumid Lupus with SLE Symptoms?

Support Group: Autoimmune Diseases

Posted: Aug 28, 2019

I have had tumid lupus for about 12 years. I have lived with the small red...

https://connect.mayoclinic.org/comment/117643/

I have had tumid lupus for about 12

Discussion: Tumid Lupus

Support Group: Autoimmune Diseases

Posted: Aug 2, 2019

Hey, I have had 3 positive ANA/Lupus tests, too, and still told I don't have Lupus,...

https://connect.mayoclinic.org/comment/983240/

Hey, I have had 3 positive ANA/Lupus ... too, and still told I don't have Lupus

Discussion: Lupus or not Lupus?

Support Group: Autoimmune Diseases

Posted: Dec 19, 2023

I stay freezing since my neuropathy has became worse. Total hysterectomy in 2019 onHRT hormones (...

https://connect.mayoclinic.org/comment/1191191/

autonomic neuropathy, asthma, sjogrens, lupus ... I have the lupus rash and ultrasound

Discussion: Can’t regulate body temperature.

Support Group: Autoimmune Diseases

Posted: Dec 15, 2024

Hello @tigerlily, I wanted to thank you for your participation on Connect. I’m happy to see...

https://connect.mayoclinic.org/comment/265163/

diseases such as multiple sclerosis (MS), lupus ... (systemic lupus erythematosus, SLE)

Discussion: Skin disorder? Random hole on skin, what is this?

Support Group: Skin Health

Posted: Jun 15, 2019

Hello Michaelpaul: I also was diagnosed with hashimotos thyroiditis, and have high markers also, even though...

https://connect.mayoclinic.org/comment/151022/

I have a blood marker for lupus, but ... enough symptoms to be diagnosed with lupus

Discussion: Hashimoto's Thyroiditis and IVIG Treatment?*

Support Group: Autoimmune Diseases

Posted: Jul 25, 2017

I'm kind of reading between the lines but its seems like you blame most of your...

https://connect.mayoclinic.org/comment/108516/

Your Lupus may or may not be in remission ... http://www.lupus.org/answers/entry/how-is-remission-in-lupus-defined

Discussion: Autoimmune diagnosing problem

Support Group: Autoimmune Diseases

Posted: Jul 27, 2016

Was dx in October 2015 mild to mod atrophic changes in medial temporal lobe on right...

https://connect.mayoclinic.org/comment/104354/

MS, RA AS, psoriatic Arthritis and Lupus ... I had received Dx of HLAB-27 and Lupus ... father and Paternal grandmother had Lupus

Discussion: Cerebellum Atrophy

Support Group: Stroke & Cerebrovascular Diseases

Posted: Jul 14, 2016

Yes, I have Fibromyalgia and Lupus. I take a combination of CBD and THC products for...

https://connect.mayoclinic.org/comment/1237606/

Yes, I have Fibromyalgia and Lupus.

Discussion: Cbd for fibromyalgia

Support Group: Fibromyalgia

Posted: Feb 15 1:19pm

I see the Neurologist on the 10th of January and he will do another EMG test,...

https://connect.mayoclinic.org/comment/1197675/

results.. so it could also be Neuro Lupus

Discussion: ANA Titer 1:1280 pattern homogeneous and speckled o/w negative work-up

Support Group: Autoimmune Diseases

Posted: Dec 26, 2024

I read this article: https://www.medicalnewstoday.com/articles/184866#causes It mentions as a possible cause, some drugs, which lists antimalarials...

https://connect.mayoclinic.org/comment/1124139/

I take hydroxychloroquine for mild lupus

Discussion: Oral lichen Planus: What home remedies or medications help you?

Support Group: Autoimmune Diseases

Posted: Aug 15, 2024

APS is associated with autoimmune disorders frequently although it may occur on its own. I would...

https://connect.mayoclinic.org/comment/1113699/

autoimmune disorders, particularly lupus

Discussion: Not sure APS, lungs or heart?!?!

Support Group: Autoimmune Diseases

Posted: Jul 29, 2024

I have just read the results of my recent nerve conduction test suggesting that I have...

https://connect.mayoclinic.org/comment/1017536/

I also have lupus.

Discussion: Cold feet due to neuropathy - need help

Support Group: Neuropathy

Posted: Feb 17, 2024