lupus – search | You searched for comments

To narrow your search, try adding quotation marks around phrases.

Search tips

Search by keywords or complete phrases.
To narrow your search, try adding quotation marks around phrases.
Example: "predictable behavior" will narrow the search results to only include content that has the exact phrase "predictable behavior" in it.

2,717 total results

Comments (2,486)

He was never told to take a bariatric vitamin for any length of time nor to...

https://connect.mayoclinic.org/comment/1092426/

people that are misdiagnosed with MS, Lupus

Discussion: Bariactric surgery complications

Support Group: Bariatric Surgery & Weight Loss

Posted: Jun 23, 2024

@krisrwalters is the oncology surgeon refusing to do a mastectomy? My docs were concerned about my...

https://connect.mayoclinic.org/comment/1042527/

concerned about radiation for me given my lupus

Discussion: Low Risk IDC w/ Baseline Multiple Painful Conditions

Support Group: Breast Cancer

Posted: Mar 30, 2024

I’ve been a RDH for 22 years. Yes, autoimmune disorders often are the cause of bleeding...

https://connect.mayoclinic.org/comment/968351/

Crohn’s, Lupus, and many other autoimmune

Discussion: Gum disorder resulting from Auto Immune diseases

Support Group: Autoimmune Diseases

Posted: Nov 20, 2023

@naomid I cannot keep track of threads sometimes. Is there any med you would be willing...

https://connect.mayoclinic.org/comment/876366/

I have lupus and probable scleroderma

Discussion: Has anyone improved bone density without meds?

Support Group: Osteoporosis & Bone Health

Posted: Jun 11, 2023

@geegie Glad you’ll be starting rituxan. I’ve had no bad effects from the rituxan. I get...

https://connect.mayoclinic.org/comment/221460/

and rituxan is probably standard for lupus

Discussion: Lupus or not Lupus?

Support Group: Autoimmune Diseases

Posted: Sep 16, 2020

Hi Laura, Thanks for sharing. Just wondering why you say Plaquinil are not your friend? I...

https://connect.mayoclinic.org/comment/56509/

am not on it, as I hear with MCTD w/lupus

Discussion: MCTD (Mixed Connective Tissue Disease)

Support Group: Autoimmune Diseases

Posted: Feb 28, 2018

New here, I understand, have fibro, Psoriatic arthritis, recently Lupus, and sjorgnes (sp?). Its difficult but...

https://connect.mayoclinic.org/comment/128396/

fibro, Psoriatic arthritis, recently Lupus

Discussion: Fibromyalgia and autonomic peripheral neuropathy

Support Group: Autoimmune Diseases

Posted: Jan 20, 2017

Hi Jan, That sounds awful. I plan to do a transplant next month so can’t comment...

https://connect.mayoclinic.org/comment/1141797/

have years of experience dealing with lupus ... helped me after proper diagnosis of lupus

Discussion: Neuropathy from chemo and stem cell transplant

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Sep 15, 2024

Hello Ladies, I was diagnosed in 1997, after I had a long high level toxic exposure...

https://connect.mayoclinic.org/comment/1019800/

The doctors might treat you as a Lupus ... disorders that do not fit the profile of Lupus

Discussion: Living with Systemic Lupus: Can I live a normal life?

Support Group: Autoimmune Diseases

Posted: Feb 21, 2024

Hi, Kitty: My understanding is that Entyvio works specifically in the gut; it's not a full...

https://connect.mayoclinic.org/comment/879708/

to go off of it because I developed lupus ... I have many illnesses -- lupus, celiac

Discussion: Autoimmune and methods for gut heal please share stories

Support Group: Autoimmune Diseases

Posted: Jun 16, 2023

I had my General Practitioner, Pulmonologist, Rheumatologist send referrals. That was in June. We call weekly....

https://connect.mayoclinic.org/comment/643775/

with Ana titers..which usually means lupus ... but they are saying it is not lupus

Discussion: Can't get an appointment: Any tips on what to do?

Support Group: Visiting Mayo Clinic

Posted: Oct 10, 2021

The worst ones would last three weeks and seemed to be triggered by stress. At the...

https://connect.mayoclinic.org/comment/218269/

At the time, my diagnosis was lupus ... Lupus is known for these ulcers, I understand

Discussion: Help on treatment for Erythema Multiforme Major

Support Group: Autoimmune Diseases

Posted: Nov 6, 2018

I've tested negative for autoimmune but when I read the symptoms of lupus it seems right...

https://connect.mayoclinic.org/comment/1360911/

autoimmune but when I read the symptoms of lupus

Discussion: Looking for answers to ongoing symptoms

Support Group: Brain & Nervous System

Posted: Jul 31 4:05pm

I was diagnosed 50 years ago with System Lupus. In the 50 years I've only had...

https://connect.mayoclinic.org/comment/1338416/

diagnosed 50 years ago with System Lupus ... of all, no one lives 50 years with lupus

Discussion: ANA test follow up results - anyone else experience this

Support Group: Autoimmune Diseases

Posted: Jun 30 10:15am

I have the same thing going on right now. No one can figure it out and...

https://connect.mayoclinic.org/comment/845221/

My family has no history of Lupus or

Discussion: Facial Swelling - no diagnosis

Support Group: Autoimmune Diseases

Posted: Apr 18, 2023

I hope this encourages you. After a rough bout of Covid last year, it ramped up...

https://connect.mayoclinic.org/comment/869784/

being treated for "borderline" Lupus

Discussion: Autoimmune symptoms continuing for 12 months post Covid - no answers

Support Group: Autoimmune Diseases

Posted: May 31, 2023

andromeda4845, there was a good post on antibody testing this week that I can't locate yet....

https://connect.mayoclinic.org/comment/1230739/

text=If%20you%20have%20a%20positive,Lupus

Discussion: MCTD

Support Group: Autoimmune Diseases

Posted: Feb 6 11:30am

Hi there from Australia. My Heart Surgeon knew i have Lupus and Fibromyalgia but due to...

https://connect.mayoclinic.org/comment/1225694/

My Heart Surgeon knew i have Lupus and

Discussion: Raynaud's Syndrome: Anyone want to talk about Raynaud’s?

Support Group: Autoimmune Diseases

Posted: Jan 30 3:57pm

Thank you. Funny how stress is such a big trigger but this process is more stress...

https://connect.mayoclinic.org/comment/221448/

another doctor saying it's stress or lupus

Discussion: Lupus or not Lupus?

Support Group: Autoimmune Diseases

Posted: Nov 5, 2018

Wondering what type of physician is open enough to oversee ordering/monitoring the blood work for cobalt...

https://connect.mayoclinic.org/comment/789986/

I have been treated for "Lupus&#34 ... it is undetermined if I truly have Lupus

Discussion: Heavy metals blood test results for Metal on Metal hip joint

Support Group: Joint Replacements

Posted: Dec 29, 2022