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Comments (2,484)

@krisrwalters is the oncology surgeon refusing to do a mastectomy? My docs were concerned about my...

https://connect.mayoclinic.org/comment/1042527/

concerned about radiation for me given my lupus

Discussion: Low Risk IDC w/ Baseline Multiple Painful Conditions

Support Group: Breast Cancer

Posted: Mar 30, 2024

I’ve been a RDH for 22 years. Yes, autoimmune disorders often are the cause of bleeding...

https://connect.mayoclinic.org/comment/968351/

Crohn’s, Lupus, and many other autoimmune

Discussion: Gum disorder resulting from Auto Immune diseases

Support Group: Autoimmune Diseases

Posted: Nov 20, 2023

@naomid I cannot keep track of threads sometimes. Is there any med you would be willing...

https://connect.mayoclinic.org/comment/876366/

I have lupus and probable scleroderma

Discussion: Has anyone improved bone density without meds?

Support Group: Osteoporosis & Bone Health

Posted: Jun 11, 2023

@geegie Glad you’ll be starting rituxan. I’ve had no bad effects from the rituxan. I get...

https://connect.mayoclinic.org/comment/221460/

and rituxan is probably standard for lupus

Discussion: Lupus or not Lupus?

Support Group: Autoimmune Diseases

Posted: Sep 16, 2020

Hi Laura, Thanks for sharing. Just wondering why you say Plaquinil are not your friend? I...

https://connect.mayoclinic.org/comment/56509/

am not on it, as I hear with MCTD w/lupus

Discussion: MCTD (Mixed Connective Tissue Disease)

Support Group: Autoimmune Diseases

Posted: Feb 28, 2018

New here, I understand, have fibro, Psoriatic arthritis, recently Lupus, and sjorgnes (sp?). Its difficult but...

https://connect.mayoclinic.org/comment/128396/

fibro, Psoriatic arthritis, recently Lupus

Discussion: Fibromyalgia and autonomic peripheral neuropathy

Support Group: Autoimmune Diseases

Posted: Jan 20, 2017

Hi Jan, That sounds awful. I plan to do a transplant next month so can’t comment...

https://connect.mayoclinic.org/comment/1141797/

have years of experience dealing with lupus ... helped me after proper diagnosis of lupus

Discussion: Neuropathy from chemo and stem cell transplant

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Sep 15, 2024

Hello Ladies, I was diagnosed in 1997, after I had a long high level toxic exposure...

https://connect.mayoclinic.org/comment/1019800/

The doctors might treat you as a Lupus ... disorders that do not fit the profile of Lupus

Discussion: Living with Systemic Lupus: Can I live a normal life?

Support Group: Autoimmune Diseases

Posted: Feb 21, 2024

Hi, Kitty: My understanding is that Entyvio works specifically in the gut; it's not a full...

https://connect.mayoclinic.org/comment/879708/

to go off of it because I developed lupus ... I have many illnesses -- lupus, celiac

Discussion: Autoimmune and methods for gut heal please share stories

Support Group: Autoimmune Diseases

Posted: Jun 16, 2023

I had my General Practitioner, Pulmonologist, Rheumatologist send referrals. That was in June. We call weekly....

https://connect.mayoclinic.org/comment/643775/

with Ana titers..which usually means lupus ... but they are saying it is not lupus

Discussion: Can't get an appointment: Any tips on what to do?

Support Group: Visiting Mayo Clinic

Posted: Oct 10, 2021

The worst ones would last three weeks and seemed to be triggered by stress. At the...

https://connect.mayoclinic.org/comment/218269/

At the time, my diagnosis was lupus ... Lupus is known for these ulcers, I understand

Discussion: Help on treatment for Erythema Multiforme Major

Support Group: Autoimmune Diseases

Posted: Nov 6, 2018

I was diagnosed 50 years ago with System Lupus. In the 50 years I've only had...

https://connect.mayoclinic.org/comment/1338416/

diagnosed 50 years ago with System Lupus ... of all, no one lives 50 years with lupus

Discussion: ANA test follow up results - anyone else experience this

Support Group: Autoimmune Diseases

Posted: Jun 30 10:15am

I've tested negative for autoimmune but when I read the symptoms of lupus it seems right...

https://connect.mayoclinic.org/comment/1360911/

autoimmune but when I read the symptoms of lupus

Discussion: Looking for answers to ongoing symptoms

Support Group: Brain & Nervous System

Posted: Jul 31 4:05pm

I have the same thing going on right now. No one can figure it out and...

https://connect.mayoclinic.org/comment/845221/

My family has no history of Lupus or

Discussion: Facial Swelling - no diagnosis

Support Group: Autoimmune Diseases

Posted: Apr 18, 2023

I hope this encourages you. After a rough bout of Covid last year, it ramped up...

https://connect.mayoclinic.org/comment/869784/

being treated for "borderline" Lupus

Discussion: Autoimmune symptoms continuing for 12 months post Covid - no answers

Support Group: Autoimmune Diseases

Posted: May 31, 2023

andromeda4845, there was a good post on antibody testing this week that I can't locate yet....

https://connect.mayoclinic.org/comment/1230739/

text=If%20you%20have%20a%20positive,Lupus

Discussion: MCTD

Support Group: Autoimmune Diseases

Posted: Feb 6 11:30am

Hi there from Australia. My Heart Surgeon knew i have Lupus and Fibromyalgia but due to...

https://connect.mayoclinic.org/comment/1225694/

My Heart Surgeon knew i have Lupus and

Discussion: Raynaud's Syndrome: Anyone want to talk about Raynaud’s?

Support Group: Autoimmune Diseases

Posted: Jan 30 3:57pm

Thank you. Funny how stress is such a big trigger but this process is more stress...

https://connect.mayoclinic.org/comment/221448/

another doctor saying it's stress or lupus

Discussion: Lupus or not Lupus?

Support Group: Autoimmune Diseases

Posted: Nov 5, 2018

Wondering what type of physician is open enough to oversee ordering/monitoring the blood work for cobalt...

https://connect.mayoclinic.org/comment/789986/

I have been treated for "Lupus&#34 ... it is undetermined if I truly have Lupus

Discussion: Heavy metals blood test results for Metal on Metal hip joint

Support Group: Joint Replacements

Posted: Dec 29, 2022

I was diagnosed with lupus at 41 as I also started early menopause. I woke up...

https://connect.mayoclinic.org/comment/1330355/

I was diagnosed with lupus at 41 as ... leukemia so they confirmed I didn’t have lupus

Discussion: ANA positive for Lupus

Support Group: Autoimmune Diseases

Posted: Jun 19 7:56am