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Comments (2,290)

@recnacgone5 Welcome to Mayo Clinic Connect! I see that you have been a member since October...

https://connect.mayoclinic.org/comment/1335584/

Foundation myeloma.org, to get insight to MGUS

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jun 26 10:57am

I consulted with three specialists - one at Mayo Clinic. All are MGUS/MM specialists. Even though...

https://connect.mayoclinic.org/comment/770463/

All are MGUS/MM specialists.

Discussion: MGUS monitoring: What tests do you have done regularly?

Support Group: Blood Cancers & Disorders

Posted: Nov 7, 2022

Can only say that my PCP informed that after 2 Moderna Innoculations + 2 M boosters,...

https://connect.mayoclinic.org/comment/706791/

Possibly this is due to IgM kappa MGUS

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: May 9, 2022

I was diagnosed with MGUS in 2018. I had labs fun every 6 months to monitor...

https://connect.mayoclinic.org/comment/983075/

I was diagnosed with MGUS in 2018.

Discussion: Day +5 autologous transplant. Hoping to feel better soon

Support Group: Blood Cancers & Disorders

Posted: Dec 19, 2023

While not specific to MGUS or multiple myeloma, people in this discussion may also appreciate the...

https://connect.mayoclinic.org/comment/968605/

While not specific to MGUS or multiple

Discussion: Best Medicare Insurance for MGUS and Multiple Myeloma?

Support Group: Blood Cancers & Disorders

Posted: Nov 21, 2023

SJGray, as I have said before to others, "I have learned far more than I ever...

https://connect.mayoclinic.org/comment/912820/

topic of Multiple Myeloma and now MGUS

Discussion: I am newly Diagnosed with MGUS.

Support Group: Blood Cancers & Disorders

Posted: Aug 14, 2023

I have Mgus....for over 10 years....I have neuropathy for 10 years. I have diabetes and have...

https://connect.mayoclinic.org/comment/838341/

I have Mgus....for over 10 years....

Discussion: Does anyone have neuropathy related to MGUS?

Support Group: Blood Cancers & Disorders

Posted: Apr 5, 2023

Hi got diagnosed with mgus last nov still getting my head around everything loads of things...

https://connect.mayoclinic.org/comment/830470/

Hi got diagnosed with mgus last nov

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Mar 23, 2023

@skate Welcome to Mayo Clinic Connect. Your experience seems to follow what many of us have...

https://connect.mayoclinic.org/comment/1182654/

follow what many of us have found, that MGUS

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 1, 2024

Joe, you have been through so much with your PN. I have it too. Mine is...

https://connect.mayoclinic.org/comment/993322/

Mine is severe, caused by CIDP and MGUS

Discussion: Has anyone used Cymbalta for nerve pain?

Support Group: Chronic Pain

Posted: Jan 7, 2024

Good question, but they made it seem like it’s nothing to worry about, and I’ve been...

https://connect.mayoclinic.org/comment/944171/

when I see doc, if it’s related to my MGUS

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Oct 8, 2023

Hi, I just joined and saw your post about Evusheld. I was just diagnosed with MGUS...

https://connect.mayoclinic.org/comment/738977/

I was just diagnosed with MGUS last

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Aug 18, 2022

Good morning, I have had the diagnosis for four years. I am a 75-year-old caucasian male....

https://connect.mayoclinic.org/comment/1179730/

So I read up on everything about MGUS ... My peripheral neuropathy and my MGUS ... symptoms are 60-70% better, and my MGUS ... and my other bloodwork related to MGUS ... #34; and said if his patients with MGUS

Discussion: Is there anything to help stop or slow progression of MGUS?

Support Group: Blood Cancers & Disorders

Posted: Nov 25, 2024

@like2dance2, I'm sorry you have not yet heard back from Mayo Clinic. You may wish to...

https://connect.mayoclinic.org/comment/1163095/

diagnosed with AL Amyloidosis and MGUS ... related discussions: - Diagnosed with MGUS

Discussion: Just diagnoised with Amyloidosis, kappa light chain restricted.

Support Group: Blood Cancers & Disorders

Posted: Oct 26, 2024

I’m very sorry to hear this 😔 I agree it would be super helpful to find...

https://connect.mayoclinic.org/comment/961973/

were related to her unique form of MGUS ... who is a specialist in myeloma and MGUS

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Nov 10, 2023

@jzeee Let me echo my welcome to Mayo Clinic Connect. MGUS is not a "death sentence",...

https://connect.mayoclinic.org/comment/928182/

MGUS is not a "death sentence&#34 ... things, even without a diagnosis like MGUS

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Sep 11, 2023

Hi mguspixi25, I am doing well. As I mentioned it is more common in folks my...

https://connect.mayoclinic.org/comment/883986/

There are many studies on MGUS. ... There is currently no treatment for MGUS

Discussion: Anyone else have Symptomatic MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jun 23, 2023

I’m 50, was Dx’d with MGUS just over 2 years ago via BMB just under smouldering...

https://connect.mayoclinic.org/comment/976019/

I’m 50, was Dx’d with MGUS just over ... kidney donor (perfect kidneys before MGUS ... syndromes) that can occur alongside MGUS ... So in my case, yes, MGUS, but also yes ... disorder that has associations with MGUS

Discussion: Should I be worried about my MGUS diagnosis and my M Spike rising?

Support Group: Blood Cancers & Disorders

Posted: Dec 6, 2023

@dazlin Good for you. I'm glad you are going to follow up. Sadly, the M paraprotein...

https://connect.mayoclinic.org/comment/1289234/

Sadly, the M paraprotein and MGUS don

Discussion: Always run down with MGUS

Support Group: Blood Cancers & Disorders

Posted: Apr 24 8:25pm

Thank you, Windyshores. You've been a very valuable source of information, and have experienced much firsthand....

https://connect.mayoclinic.org/comment/1011515/

2 years ago when plasmacytoma with MGUS