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1,995 total results
Comments (1,918)
I don't have any experience with Kevzara but I have been on Actemra (tocilizumab) since January...
I was on moderately high doses of prednisone ... years until Actemra allowed me to taper ... off prednisone. ... My side effects from prednisone were ... continues with Actemra instead of Prednisone
Posted: Apr 18 11:00am
I was diagnosed about 14 months ago and am still trying to get off prednisone. But...
months ago and am still trying to get off ... prednisone. ... came back within a week of the first taper ... ve been on since, along with a new taper ... schedule for prednisone.
I was diagnosed in May 2022. I did not have many typical symptoms, but I did...
I was started on 40mg of prednisone ... I was tapered off the prednisone just ... I’m hoping that someday I’ll be off
I can certainly empathize with your thin skin issue!! I do have to be careful not...
I have been on prednisone off and on ... So I’m wondering if the prednisone and ... like it might be tied in with your prednisone ... eyes will go away when you finally taper ... off your prednisone!!
Posted: Jul 7 6:58am
My doc has navigated me thru this process, starting with an appointment every month, including blood...
After 7 months, I’m tapering, now at ... 4 mg of prednisone but with 400 mg ... Going down 2 mg of prednisone per month ... The prednisone was masking those old ... injuries but now that I’m getting off
Posted: Aug 1 7:34am
I have been on Kevzara since last October. It helped me immediately and I was able...
helped me immediately and I was able to taper ... off prednisone. ... 20 pounds I gained from 8 months of prednisone ... at the one year mark we will try to off ... I stayed off Kevzara while I was on
My first occurrence of PMR lasted 3 and half years until I was able to taper...
and half years until I was able to taper ... off of prednisone with the last six ... I was finally able to stop taking prednisone
Posted: Aug 3 10:39am
I certainly understand how you feel. The real debate about the pros and cons of Prednisone...
followed by a fast taper and my reactive ... My rheumatologist also wanted me off ... I wanted to taper off Prednisone after ... There weren't any magic tapering ... I’m glad I tried Actemra … I got off
Posted: Jun 10 12:08pm
Hello @pualinef, my first round with PMR it took my 3 years to finally get off...
it took my 3 years to finally get off ... of prednisone. ... and I went back on a 20 mg dosage of prednisone ... which I started tapering off after ... I have been off of prednisone for about
Posted: Mar 15, 2018
Welcome @dongoldwater, Pain from neuropathy can be a difficult thing to treat like you have found...
are a lot of companies making money off ... PMR comes back, I just have to take prednisone ... until I'm able to taper off it
Support Group: Neuropathy
Posted: Aug 15, 2022
I contracted a mild case of PMR in March 2021 and that is also when my...
I have been taking low doses of Prednisone ... since July of 2021 and tried tapering ... off it twice, but my shoulder pain ... /day, but will taper to 1 mg. next week ... The prednisone may actually be relieving
Posted: Aug 1, 2022
Pain in hip and shoulders remedied by prednisone sounds like PMR. And I wonder who the...
Pain in hip and shoulders remedied by prednisone ... in "we don't do that." Prednisone ... Don't taper at all if you're ... different and we can't follow a tapering ... I agree, no one wants off of prednisone
Posted: Jul 31, 2022
I saw my endocrinology doctor. I have seen him onging, before I was diagnosed small fiber...
I was being assessed for prednisone ... cortisol tests I would have to go off ... until gabapentin is tapored. ... treatments will be started, then more taporing ... of prednisone.
Support Group: Neuropathy
Posted: Jul 28, 2022
Dear Friend. I empathize with you. I wrote the wrong year in my initial post. I...
I started with 10 mg. of Prednisone ... and tapered down by 1 mg. every 2 weeks ... I went off the prednisone twice, but
Posted: Jul 26, 2022
Thank you so much for replying. I read positive quotes and stories. I have not heard...
I had a severe reaction, so I was tapored ... internist does not feel comfortable taporing ... prednisone and gabapentin at the same ... She wants me off of gabapentin soon.
Support Group: Neuropathy
Posted: Jul 20, 2022
Hello @lanafromidaho, Welcome to Connect. I'm glad you found us! My PMR is currently in remission....
first time it took 3-1/2 years to taper ... off of prednisone. ... lifestyle changes and was able to taper ... off of the prednisone in 1-1/2 years ... really have to listen to your body and taper
Hi @graysea, You mentioned the tapering off prednisone was causing some anxiety in another discussion. Has...
off prednisone was causing some anxiety ... off of prednisone. ... off prednisone. ... off prednisone. ... You may need to taper off more slowly
Support Group: Neuropathy
Posted: Jul 14, 2022
I Betsy @betsy1958, I would like to add my welcome along with @kimmur, @suetex and others....
are having depression side effect of prednisone ... mentioned that you are down to 5mg prednisone ... second time around and it helped me taper ... off of prednisone in about 1-1/2 year ... been for the entire 2 years while on prednisone
Hi @hfoster, Welcome to Connect. I've had PMR twice and it's currently in remission. Both times...
Both times I was started at 20mg prednisone ... It took me 3-1/2 years to taper off ... and 1/2mg until I could stop taking prednisone ... gave me scripts for 2.5mg and 1mg prednisone ... daily pain log with the amount of prednisone