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115 total results

Comments (112)

Hi @nancybev My kids were also concerned until I got us all up to speed. There...

https://connect.mayoclinic.org/comment/1396279/

I went on drugs (Zanubrutinib) immediately

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Sep 18, 2025

Thanks for the update. I have only had Rituxan last Sept. and actually had to google...

https://connect.mayoclinic.org/comment/800338/

and actually had to google Zanubrutinib

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Jan 22, 2023

@panevills Having read the various comments here, my first question is to inquire if you are...

https://connect.mayoclinic.org/comment/1433560/

Over 8 years ago I went on Zanubrutinib

Discussion: Is anyone dealing with CLL, Chronic Lymphoma Leukemia?

Support Group: Blood Cancers & Disorders

Posted: Nov 8, 2025

I was diagnosed in 2008. I am currently 70. I had high lymphocytes identified with a...

https://connect.mayoclinic.org/comment/1461925/

a BTK inhibitor, Acalabrutinib or Zanubrutinib ... treatment of either Acalabrutinib or Zanubrutinib

Discussion: CLL diagnosis: Anyone on watch and wait?

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2025

@mamacwb I have had anti-mag pn since 1991 and have not found an effective treatment for...

https://connect.mayoclinic.org/comment/1532089/

BTK inhibitor therapy (ibrutinib, zanubrutinib

Discussion: Is anyone suffering with Anti MAG neuropathy?

Support Group: Autoimmune Diseases

Posted: Mar 21 12:00pm

@lila1 Hi Lila, I have SMZL (and WM and CLL) and just started treatment (after being...

https://connect.mayoclinic.org/comment/1099116/

team recommended a BTK inhibitor (Zanubrutinib

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2024

Hello @panevills I take it with 8oz of water at around 7:30am and 5:30pm each day....

https://connect.mayoclinic.org/comment/1433207/

On Brukinsa (Zanubrutinib), I don&#39

Discussion: Is anyone dealing with CLL, Chronic Lymphoma Leukemia?

Support Group: Blood Cancers & Disorders

Posted: Nov 7, 2025

Weird for a doctor to "ask" if you would like to start treatment. He's the doctor...

https://connect.mayoclinic.org/comment/909815/

wants me to start leukemia meds again (Zanubrutinib

Discussion: Had CLL for about 2 years, Dr is now thinking of treatment

Support Group: Blood Cancers & Disorders

Posted: Aug 8, 2023

I'm 68 years young and diagnosed with Waldenstrom's Macroglobulinemia 8 months ago. My oncologists/hematologists started me...

https://connect.mayoclinic.org/comment/1385201/

hematologists started me on Brukinsa (Zanubrutinib

Discussion: Waldenström macroglobulinemia (WM): Anyone on zanubrutinib (Brukinsa)?

Support Group: Blood Cancers & Disorders

Posted: Sep 2, 2025

I am a 75 year old male who was diagnosed with mGus close to 20 years...

https://connect.mayoclinic.org/comment/1254993/

placed on a BTK Inhibitor, called Zanubrutinib ... After having taken 15+ months of Zanbrutinib ... progressing while at the same time, Zanubrutinib

Discussion: Newly diagnosed with MGUS and so anxious

Support Group: Blood Cancers & Disorders

Posted: Mar 10, 2025

@ageeth Hello! Actually I'm Sue (CO64). I've seen comments from Vicki also since we are dealing...

https://connect.mayoclinic.org/comment/1476816/

I will be treated with Zanubrutinib,

Discussion: Neuropathy and Waldström

Support Group: Neuropathy

Posted: Jan 7 2:19pm

Hi @philipschuyler , I was dx'd in Apr'24 with CLL. I had not noticed any symptoms,...

https://connect.mayoclinic.org/comment/1560063/

3" so my Mayo doc started me on Zanubrutinib