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Comments (857)
How long were you taking prednisone? Some people have resilient adrenals. My adrenals weren't so resilient...
https://connect.mayoclinic.org/comment/1070307/
mg of Prednisone for 6 months, my cortisol ... level rebounded and my endocrinologist ... said my cortisol level was adequate ... With an adequate cortisol level, my
Discussion: Prednisone for over a year along with Kevzara for last 5 months
Support Group: Polymyalgia Rheumatica (PMR)
Posted: May 18, 2024
Have you tried switching back to taking your entire prednisone dose in the morning? After I...
https://connect.mayoclinic.org/comment/965523/
Your cortisol level should be lowest ... of the circadian rhythm is for your cortisol ... level to gradually increase until you ... level in the middle of the night and ... produce some cortisol.
Discussion: Does Prednisone effect increase after 4 or 5 days?
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Nov 15, 2023
Berber19, it seems covid often causes weird neurological issues afterward, and autonomic dysfunction could cause some...
https://connect.mayoclinic.org/comment/1155177/
possibility of Cushings disease, excess cortisol ... can be tested by an 8:00 am serum cortisol ... level, a simple blood test. ... I hope your dr will check a cortisol ... level.
Discussion: 6 months of unexplained twitches throughout body, high WBC
Support Group: Brain & Nervous System
Posted: Oct 11, 2024
I was referred to an endocrinologist who took control of my Prednisone dose. The endocrinologist was...
https://connect.mayoclinic.org/comment/1341080/
level after 12 years of daily prednisone ... level would improve if I could simply ... level to increase. ... level would remain at adequate levels ... My cortisol level was rechecked and
Discussion: kevzara and relapse
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Jul 4 1:42pm
Actemra (tocilizumab) allowed me to taper from 10 mg to 3 mg. PMR was well controlled...
https://connect.mayoclinic.org/comment/1102576/
PMR was well controlled but my cortisol ... level was low. ... prednisone for six months before my cortisol ... level improved.
Discussion: PMR - Transitionaing from prednisone to another form of treatment
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Jul 9, 2024
My guess is that "extreme fatigue" is very common as we decrease our prednisone dose. I...
https://connect.mayoclinic.org/comment/1331196/
level than PMR. ... level is too low. ... A cortisol level that is too high or ... the symptoms of both high and low levels ... of cortisol.
Discussion: Down to 1mg prednisone and then extreme fatigue sets in.
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Jun 20 9:57am
The strategy of waiting 6 months until my cortisol level to improve wasn't exactly a strategy....
https://connect.mayoclinic.org/comment/1408691/
level to improve wasn't exactly ... level to improve. ... She said my cortisol level may never ... When my cortisol level improved, it ... level would be adequate for future
Discussion: Relapse
Support Group: Polymyalgia Rheumatica (PMR)
Posted: 1 day ago
I had a great response from Actemra. My first dose was on January 1st, 2019. It...
https://connect.mayoclinic.org/comment/1150722/
My cortisol level was checked and indeed ... my cortisol level was low. ... level to improved. ... level was "adequate," I was ... level was adequate.
Discussion: I am on ACTEMRA for my giant Cell Arteritis but it seems like my PMR ?
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Oct 2, 2024
I have now been odd prednisone for 2 months. I wonder how long it will take...
https://connect.mayoclinic.org/comment/1058406/
to start producing normally and my cortisol ... level to come up to normal standards ... My energy level is non existent.
Discussion: Factors that encourage the body to begin producing cortisol again
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Apr 27, 2024
Unfortunately ... the only thing I know that will prod the adrenals to produce cortisol is...
https://connect.mayoclinic.org/comment/1363785/
will prod the adrenals to produce cortisol ... is a low cortisol level. ... When my cortisol level was low I was ... The whole mechanism that regulates cortisol ... levels can get out of whack.
Discussion: Better to be in some pain or better to up the dose of prednisone?
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Aug 4 5:23pm
Being on 1 mg for three months is a good amount of time. It suggests that...
https://connect.mayoclinic.org/comment/1317527/
Perhaps your cortisol level wasn&#39 ... endocrinologist explained that my cortisol ... level needed to rebound before I would
Discussion: PMR and the taper
Support Group: Polymyalgia Rheumatica (PMR)
Posted: May 31 6:36pm
Decreasing symptoms of adrenal insufficiency mostly ... that is the problem when you are still on...
https://connect.mayoclinic.org/comment/1282616/
prednisone will cause an inaccurate cortisol ... level was checked. ... order to get a more accurate 8 a.m. cortisol ... level. ... When my morning cortisol level came
Discussion: taper decision - stay at 1MG or keep going lower
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Apr 15 2:27pm
Both you and @nyxygirl are getting close to "adrenal territory." The tapering will get harder as...
https://connect.mayoclinic.org/comment/1024699/
level was low. ... level can be checked. ... If your cortisol level is low ... you ... You have to get cortisol from somewhere ... Cortisol and/or prednisone is what &
Discussion: Safe dose and tapering on Glucocorticoid therapy.
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Feb 29, 2024
Does anyone’s blood pressure go low while tapering down ?i have pmr been on prednisone for...
https://connect.mayoclinic.org/comment/1344144/
it was a combination of both a low cortisol ... level and symptoms of PMR returning ... low enough dose of Prednisone for my cortisol ... level to be checked. ... My cortisol level was low so I needed
Discussion: Any Tips For Tapering Off Prednisone?
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Jul 9 6:30am
@victoriab The overwhelming fatigue is likely a symptom of adrenal insufficiency and a low cortisol level....
https://connect.mayoclinic.org/comment/1061153/
of adrenal insufficiency and a low cortisol ... level. ... level improved. ... level increases. ... Cortisol is what regulates inflammation
Discussion: 2 year struggle to get off prednisone still hard to get from 3 to 2mg
Support Group: Polymyalgia Rheumatica (PMR)
Posted: May 3, 2024
I don't have any experience with Kevzara. I have taken Actemra for PMR for a long...
https://connect.mayoclinic.org/comment/1150737/
have a need to continue replacing cortisol ... When my cortisol level improved, my ... level was adequate. ... discontinue Prednisone quickly once my cortisol ... level improved and PMR was in remission
Discussion: Weaning off of prednisone & pain management
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Oct 2, 2024