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1,327 total results
Comments (1,291)
Hi! I am new to this phase. My hospital lab shows my IL-6 at a ‘high’...
https://connect.mayoclinic.org/comment/1517990/
might have GCA and would like to have Actemra ... prescribed for my “possible RA/PMR”
@abbeyc "I believe the doctors kept me on Prednisone much longer than needed because they could...
https://connect.mayoclinic.org/comment/1512730/
flawed because that assumes all pain is PMR ... causing all the pain and it might not be PMR ... I'm grateful for Actemra because ... Actemra has taken PMR out of the overall ... picture because I no longer have PMR
@cpolich Thank you for taking the time to share your experience. Sharing is an important portion...
https://connect.mayoclinic.org/comment/1528717/
I am just now going on Actemra/Tyenne ... that I have seen for years because my PMR
What you have experienced is very common. I think PMR is like other autoimmune conditions because...
https://connect.mayoclinic.org/comment/1528955/
I think PMR is like other autoimmune ... After PMR is treated, it doesn' ... t happen again.
2) PMR can have a ... Relapsing PMR warrants consideration ... relapses thanks to a biologic called Actemra
@elleninz I started Tyenne in January. My doctor Dx GCA in early Nov and tried to...
https://connect.mayoclinic.org/comment/1523650/
early Nov and tried to start me on Actemra ... same active ingredient in it that Actemra ... only difference I found between the Actemra ... old-age type pains in joints rather than PMR
@emrose If you start Rinvoq ... please let everyone know how it works. These newer medications...
https://connect.mayoclinic.org/comment/1522269/
Actemra is given by a weekly injection ... medication that was FDA approved for PMR ... stop the inflammation associated with PMR ... treated with newer medications for PMR ... Other PMR/GCA forums are dominated with
@caroljeand "Hopefully getting back on Kevzara won’t be a big deal." ------------------------ I was on weekly...
https://connect.mayoclinic.org/comment/1521895/
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I was on weekly injections of Actemra ... spine surgeon said I needed to be off Actemra ... weeks without an injection but my PMR ... The idea was going 2 months between Actemra ... I just plan on doing the monthly Actemra
@ronludington There are so many things that "contribute" to our overall pain levels. I think Actemra...
https://connect.mayoclinic.org/comment/1520793/
I think Actemra helped me sort out all ... until Actemra was started. ... I could only assume that Actemra was ... working for PMR when I was able to ... I'm still on Actemra.
@pah17 I want to say thank-you for posting this topic. It triggered an interesting discussion. There...
https://connect.mayoclinic.org/comment/1520541/
When I said Actemra controlled my pain ... , I was referring to PMR inflammation
@tweetypie13 Good luck ... I think you should go for it. The follow-up labs and visits...
https://connect.mayoclinic.org/comment/1519832/
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I have experience with stopping Actemra ... Actemra was "interrupted" once ... I needed to be off Actemra for a month ... After Actemra infusions were started ... additional benefits besides treating PMR
@randersonccc Just my opinion about Actemra along with some personal experience. Actemra is a "targeted" biologic...
https://connect.mayoclinic.org/comment/1517810/
that seems to work well for PMR/GCA ... Actemra was only targeting PMR. ... What I'm trying to say is PMR/GCA ... from occurring and co-existing with PMR ... co-existing conditions can exist with PMR
@janb62 I was pretty similar to you. I'm a small person, and I lost 4 pounds...
https://connect.mayoclinic.org/comment/1512083/
started getting treatment for GCA and PMR ... prednisone 6 months ago (I still take Actemra
I'm sorry that you have joined the PMR club. I started on 60 mg. of Prednisone...
https://connect.mayoclinic.org/comment/1530641/
#39;m sorry that you have joined the PMR ... mg. of Prednisone in July 2024 for PMR ... In January 2025, I began monthly Actemra ... Actemra isn't approved for PMR,
@cazwell50 I started taking Prednisone in July 2024, 60 mg./day for PMR/GCA. I started a slow...
https://connect.mayoclinic.org/comment/1524384/
/day for PMR/GCA. ... With the help of Actemra infusions,
@laurenand typo in my comment. I meant Actemra IV drip once a month for 2 years....
https://connect.mayoclinic.org/comment/1523557/
I meant Actemra IV drip once a month ... It seems to be the norm for PMR
Hi, I was diagnosed with GCA last October. I was already on prednisone, down to 9...
https://connect.mayoclinic.org/comment/1522214/
prednisone, down to 9 mg because of PMR ... back up to 60 mg and started me on Actemra
@jeff97 -- Thanks for taking the time to reply with this reassuring report of your experience....
https://connect.mayoclinic.org/comment/1518970/
diminishing dose of prednisone and actemra ... I was first worked up for the GCA/PMR
@jeff97 I have a Forest Gump philosophy about running. He felt like running but Forest Gump...
https://connect.mayoclinic.org/comment/1517832/
this philosophy also explains how PMR ... didn't stop exercising as soon as PMR ... 50 mile bicycle ride 5 years after PMR ... Actemra has removed the wall that buried
@maye33 I just hope they dont rule out prednisone. I am totally against using it but...
https://connect.mayoclinic.org/comment/1530948/
totally against using it but it fixed my PMR ... If they start using Actemra and it takes
@jfannarbor Yes .. according to my medical records, my Prednisone use has spanned "decades." I would...
https://connect.mayoclinic.org/comment/1526107/
and eventually I was diagnosed with PMR ... I thought PMR was a "blessing" ... years of daily prednisone use for PMR ... Prednisone for the rest of my life -- Actemra ... I'm still on Actemra but I have
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