Clear Search

To narrow your search, try adding quotation marks around phrases.

Search tips
  • Search by keywords or complete phrases.
  • To narrow your search, try adding quotation marks around phrases.
  • Example: "predictable behavior" will narrow the search results to only include content that has the exact phrase "predictable behavior" in it.
893 total results
Comments (847)
A low dose of prednisone seems to help many people since they seem to stay on...
The pain and overwhelming fatigue was ... the addition of Actemra which kept PMR ... approximately 6 months until my cortisol level ... Prednisone won't get rid of PMR ... Actemra seems to cause PMR to go into
Posted: Jan 24, 2024
You are right ... there isn't much research about how long one needs to be on...
I was surprised the pain didn't ... feeling well along with some aches and pains ... My cortisol level was low so I was & ... When my cortisol level was "adequate ... pain so I stopped prednisone after
I am looking for advice - I contracted PMR in mid-September and started 10mg of prednisone...
looking for advice - I contracted PMR ... prednisone daily but it only relieved my pain ... now at 10mg a week I am experiencing pain ... Or should I just see to what level 10mg
Posted: Dec 21, 2023
I have tapered off prednisone when on Actemra ... not Kevzara. Kevzara works on the same...
I was surprised by not having my PMR ... ;believed" Actemra was helping PMR ... I had pain but I didn't think it ... was PMR pain. ... I attributed the pain to arthritis.
Will 3 mg be the lowest dose you have been on since the start of PMR?...
you have been on since the start of PMR ... problems would begin at 10 mg and pain ... I didn't have an increase in pain ... My cortisol level was low so that explained ... mg for 6 months before my cortisol level
Posted: Dec 5, 2023
I just wanted to add that "pain at night" is a well known phenomena and not...
I just wanted to add that "pain ... known phenomena and not exclusive to PMR ... Patients with post-op surgical pain ... always seemed to be in the most pain ... : ***Hormone levels – production of
Discussion: Very new to PMR
Posted: Nov 25, 2023
I took John's advice and took B12and Folic Acid together and my stiffness and minor pain...
together and my stiffness and minor pain ... My energy levels have also increased ... I am one step away from declaring PMR
Posted: Nov 16, 2023
It sounds like you are experiencing some prednisone side effects. I think we are on the...
the same page when we say "no pain ... I used to describe PMR in terms relative ... to my age instead of a level of pain ... would tell my rheumatologist that PMR ... For emphasis, I said PMR felt like rigor
I have been off prednisone for nearly 3 years. I still have visits with my rheumatologist...
My PMR condition is being treated with ... by PMR or any of my other autoimmune ... level. ... I don't associate with PMR or any ... I guess a pain level of "5"
I might be the only person who thinks prednisone might have caused me to have PMR...
prednisone might have caused me to have PMR ... adrenal insufficiency and a low cortisol level ... a long distance bicycle ride when PMR ... Eventually PMR was diagnosed. ... and how it feels when your cortisol level
Posted: Oct 21, 2023
@joan7 Your disease progression is remarkably similar to mine. I'm 64 years old, male, northern European...
PMR started on January 14, 2023, and ... was very severe, with excruciating pain ... broken in my body, extraordinarily high levels ... inflammation (10x higher than most with PMR
I've developed PMR toward the end of summer [2023]. Like you I had never heard of...
I've developed PMR toward the end ... physically active, and it seems that my PMR ... finally raise my arms to shoulder level ... The overall pain was almost totally
Posted: Oct 7, 2023
Everyone situation is different. After 2 weeks of near total incapacitation I saw a rheumatologist who...
level was manageable and my muscles ... Still have pain every day. ... dancing as much fun as they were pre-PMR ... It seems to have helped with my pain ... levels and also keeping my weight in
Posted: Oct 2, 2023
Welcome @knyhus, Tapering off of prednisone can be difficult when you get below 5 mg. My...
My first time with PMR it took me 3 ... discussion you might find helpful: --- PMR ... Keeping a daily log with my level of ... pain when I woke up and the dose of ... helped me when tapering to a lower level
Welcome @angelinaboss, Sorry to hear you have so much on your plate at such a young...
important when I was struggling with PMR ... numbness and some tingling with no pain ... doctors why you have 3 times the normal level
Support Group: Neuropathy
Posted: Sep 9, 2023
I was diagnosed with PMR about 17 years ago. I took prednisone for 13 out of...
I was diagnosed with PMR about 17 years ... When IL-6 levels are too high we have ... inflammation to decrease and we feel less pain ... Technically, I still have PMR without ... the pain that PMR caused and the side
@marymckeith, If the prednisone worked great when you first started and it's not working now, maybe...
Slow tapering and only when your pain ... pain when I got up in the morning and ... of pain was greater than 2, I held ... discussion that might be helpful. --- PMR ... /connect.mayoclinic.org/discussion/pmr-dosages
Welcome @oldskibunny, I started both of my occurrences of PMR with 20mg prednisone doses. It relieved...
started both of my occurrences of PMR ... It relieved my pain within an hour or ... That’s a big plus for PMR. ... Do you keep a daily log of your level ... of pain when you first get up and your
Hi @napapos, I hope you don't mind but I thought I would reply to your private...
My PMR pain level was at 8 in the beginning ... Within a few days pain was at 2-3/10 ... Surprisingly my pain level is stable ... took Tylenol once in awhile when my PMR
Posted: Sep 1, 2023
Thanks for your reply @samara66 My a.m. cortisol level was tested and found to be low....
reply @samara66 My a.m. cortisol level ... do was 7 mg when familiar aches and pains ... insufficiency can cause muscle aches and pains ... dose down to 3 mg and stayed at that level ... My a.m. cortisol level improved to the