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146 total results
Comments (139)
I had PMR but wasn't diagnosed yet. (4 years with a rheumy who didn't recognise it.)...
I had PMR but wasn't diagnosed yet ... The pain was typical PMR when I used ... My GI doc didn't believe in LDN ... April 2021 so I use both pred and LDN
Posted: Dec 9, 2022
I also believe that my PMR started after the old shingles vaccine , then .... each...
I also believe that my PMR started after ... Currently in remission using LDN no ... but I’m afraid to get it because my PMR
Discussion: PMR at 48 yrs old
Posted: Oct 27, 2020
https://ym.care/bbw2 The Link above is from a recent Yale Based Long Covid Study on "Internal Tremors...
Diagnosis of pseudo gout and PMR. ... PMR is viral driven. ... are painful at times, partly this is PMR ... (LDN is addressed in the link above
I belong to a Facebook group about LDN. Mentions of PMR are plentiful in that group,...
I belong to a Facebook group about LDN ... Mentions of PMR are plentiful in that ... group, although PMR is not among the ... compiled a spectrum of stories about LDN ... use for PMR, which you can see on my
Posted: Apr 13, 2023
Well, not the sciatica, but I believe the neuropathy was a gift from PMR--so as long...
believe the neuropathy was a gift from PMR ... --so as long as PMR persists, I guess ... that's why I continue to take LDN ... I have read that some doctors take LDN
Posted: Aug 4, 2024
The ones i have seen most frequently are higher cholesterol which is similar to what Prednisone...
The idea is to keep your PMR from flaring ... others i have seen are Humira and LDN ... LDN intrigues me.
Posted: Jun 18, 2024
Both my father (the one with PMR) and I use LDN in conjunction with other medication...
Both my father (the one with PMR) and ... I use LDN in conjunction with other ... having extreme fatigue even as the PMR ... I had come across LDN with my care team ... For me, the LDN has been more effective
Posted: Apr 28, 2024
I will be glad to add to the discussion in any way I can. I have...
I have only been on 2 mg of LDN. ... As far as the PMR goes, my current rheummy
Support Group: Autoimmune Diseases
Posted: Feb 11, 2024
Hi there- I am a caregiver for my father who has PMR. He’s been taking LDN...
a caregiver for my father who has PMR ... He’s been taking LDN 4.75mg (it’s an ... less severe—whether it’s due to the LDN
Posted: Jan 28, 2024
Hi, I'm on Plaquenil 200-400 since April and now Low Dose Naltrexone, a week tapered up...
They do not want PMR Medicare patients ... N European, even family history of PMR ... got home, I had figured out it was PMR ... The LDN was recommended by many in ... the PMR Facebook group.
Posted: Oct 30, 2023
I’m sorry this is happening. It’s so frustrating to have what sounds like a flare after...
anything you did wrong…it’s the nature of PMR ... My dad is the one who had PMR, and he ... I proposed it because I take LDN for ... My dad gets severe fatigue from the PMR ... that have been recently approved for PMR
Discussion: Tapering angst
Posted: Jul 28, 2023
My father (I am his caregiver; he has PMR) takes low dose naltrexone (LDN) for fatigue....
father (I am his caregiver; he has PMR ... ) takes low dose naltrexone (LDN) for ... His PMR was severe and the risk of GCA
To Paulagcl, and anyone and everyone. We have all been through a lot. When I read...
I wanted to share with all PMR sufferers ... The 2nd diagnosed the PMR, but stopped ... that was the Sjogren's and the LDN
Posted: Jul 10, 2023