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146 total results
Comments (141)
Surgery to remove the malignant carcinoid (and right middle lobe) was on Oct 2. Surgeon wants...
https://connect.mayoclinic.org/comment/976626/
pulmonologist is not familiar with DIPNECH
@triveraderubio I had to go back and read through this entire thread to remember what you...
https://connect.mayoclinic.org/comment/962925/
sensitivity to everything was due to DIPNECH ... As far as the lung NETs/DIPNECH progression ... octreotide is as life-changing for other DIPNECH ... some point, but not enough data for DIPNECH
Hi @nana120 That's such great news to be stable!!! Sounds like the lanreotide is doing its...
https://connect.mayoclinic.org/comment/937205/
injections for 2.5 years for lung NETs/DIPNECH
@markmark007 I take octreotide injections for lung NETS and DIPNECH. My 50+ lung tumors are very...
https://connect.mayoclinic.org/comment/966952/
octreotide injections for lung NETS and DIPNECH ... even without the octreotide but the DIPNECH
Hi @ahtaylor -- I love your motto! I have always loved the "Never Give Up" poster...
https://connect.mayoclinic.org/comment/867775/
take octreotide as well for lung NETS/DIPNECH
No - I went to MSK and they said it was not needed at this point....
https://connect.mayoclinic.org/comment/1108856/
think to relate symptoms to that (DIPNECH
Good news for you too @northoftheborder !!! I agree with your thinking! I just passed my...
https://connect.mayoclinic.org/comment/1130020/
respiratory issues as lung NETs and DIPNECH
Hi Jane @gram26 I would agree with Theresa to check out all the DIPNECH comments on...
https://connect.mayoclinic.org/comment/882190/
with Theresa to check out all the DIPNECH ... Diagnosed as DIPNECH and Lung NETS ( ... However, the DIPNECH is considered advanced ... over time, but there is not enough DIPNECH ... No one even guessed DIPNECH or lung
I was told when we destroyed my largest carcinoid tumor 2.6 cm with microwave ablation that...
https://connect.mayoclinic.org/comment/1108812/
With DIPNECH my airways would be lined
Hi @mir123 Thanks for sharing your info. I understand there is little historical info to go...
https://connect.mayoclinic.org/comment/909352/
info to go on, much like the rare DIPNECH ... cancer and octreotide for my lung NETs/DIPNECH
Hi @tammyv615 Finally someone else who had a lung tumor ablated! I can’t say the procedure...
https://connect.mayoclinic.org/comment/1071170/
Since DIPNECH is very rare, it’s exciting
Hi @marciamiller I also have DIPNECH and lung NETS (cancer). I’m guessing you saw Dr. Ramirez....
https://connect.mayoclinic.org/comment/1162740/
Hi @marciamiller
I also have DIPNECH ... on YouTube and like his interest in DIPNECH
Hi! I was recently… finally diagnosed with DIPNECH. I am 69 and probably have had this...
https://connect.mayoclinic.org/comment/1173598/
was recently… finally diagnosed with DIPNECH
Hi @tatteesmom3 , I see a thoracic oncologist who is part of a NETS team at...
https://connect.mayoclinic.org/comment/854004/
message me if you need more info about DIPNECH
I think you hit the nail on the head with the workaround. That being said, I...
https://connect.mayoclinic.org/comment/1126890/
for 3.5 years for my lung NETs and DIPNECH
Hi @aclanton Good luck with the waiting game. I waited for 12 years hearing guesses about...
https://connect.mayoclinic.org/comment/1076443/
diagnosed as typical carcinoids and DIPNECH
@peggymariejackson @hopeful33250 @sherikayb @debbieguk @ce1b I see some of you have lung NETs, some GI NETs,...
https://connect.mayoclinic.org/comment/861008/
I also have DIPNECH which is really ... those, octreotide helps symptoms of DIPNECH ... but it turns out the lung NETs and DIPNECH
Good to know. Just frustrating that no one ever suggested the SOB on exertion was related...
https://connect.mayoclinic.org/comment/1108851/
the SOB on exertion was related to DIPNECH
I live within reach of Memorial Sloan Kettering so called just to get a 2nd opinion....
https://connect.mayoclinic.org/comment/1087269/
carcinoid tumor, with the possibility of DIPNECH
Hi @triveraderubio and others with DIPNECH and Lung NETs. I hope the octreotide is working for...
https://connect.mayoclinic.org/comment/834726/
Hi @triveraderubio and others with DIPNECH ... the rare and likely underdiagnosed DIPNECH ... I actually presented DIPNECH to my oncologist ... retrospective study about 59 patients with DIPNECH ... Excited to find others with DIPNECH
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