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664 total results
Comments (640)
When I was diagnosed with PMR/GCA, I tried to get out and do a short walk...
https://connect.mayoclinic.org/comment/1300966/
When I was diagnosed with PMR/GCA, I ... I've been taking Actemra infusions ... much of the stamina I had before PMR/GCA
I assume they didn't test cytokines because there weren't many good alternatives to Actemra and Kevzara....
https://connect.mayoclinic.org/comment/1313113/
weren't many good alternatives to Actemra ... The new drugs like Rinvoq for GCA might ... people who don't respond well to Actemra
Welcome. I was diagnosed GCA in February (no PMR). The high dose prednisone was a wild...
https://connect.mayoclinic.org/comment/1315848/
I was diagnosed GCA in February (no ... On Actemra infusions monthly now and ... your journey and hope you can use Actemra
Yes. I was always going 110 mph. And then last spring I couldn't do an hour...
https://connect.mayoclinic.org/comment/1292292/
of prednisone due to the suspected GCA ... 7 mg. of Prednisone and have had 4 Actemra
I'm sorry you lost part of your vision. I had several instances of temporary vision loss...
https://connect.mayoclinic.org/comment/1299294/
temporary vision loss in one eye from GCA ... started taking weekly injections of Actemra ... a month after I was diagnosed with GCA
Had covid shot yesterday. Typically I feel pretty bad for two days, but this time I...
https://connect.mayoclinic.org/comment/1319490/
I should add that I have GCA, on prednisone ... and Actemra, but Rheum doc said covid
I don't have experience below 10 mg, but have you tried reducing by a half mg...
https://connect.mayoclinic.org/comment/1201287/
thing I have to my advantage is taking Actemra ... along with prednisone for the GCA.
That forum is very good if you are from the UK. I felt alienated on that...
https://connect.mayoclinic.org/comment/1199776/
Actemra is approved in the UK for GCA ... use of corticosteroids to treat PMR/GCA
I've been on Actemra for 5 months along with prednisone to treat GCA. The only side...
https://connect.mayoclinic.org/comment/1198487/
I've been on Actemra for 5 months ... along with prednisone to treat GCA. ... side effect I've had from the Actemra ... was low when I was diagnosed with GCA
Generally speaking it is patients without outward signs and symptoms suggestive of GCA. However, when other...
https://connect.mayoclinic.org/comment/1190945/
signs and symptoms suggestive of GCA ... However, when other means of detecting GCA ... artery biopsy and/or ultrasound, GCA ... It basically means people can have GCA ... the reasons why I was approved for Actemra
The last time I checked Kevzara was not sold as an infusion but Actemra is. I...
https://connect.mayoclinic.org/comment/1188499/
Kevzara was not sold as an infusion but Actemra ... prednisone alone or possibly get on Actemra ... infusions since I do have some GCA
I understand nanniepie's hesitancy. I'm also scared to start Actmra too. Methotrexate and Kevzara were terrible...
https://connect.mayoclinic.org/comment/1188175/
I'm also scared to start Actmra ... GCA??
Uveitis was just the start of things to come when I was 32 years old. I...
https://connect.mayoclinic.org/comment/1176552/
I know the difference so I deny GCA ... However, when Actemra was started, I ... the panel of doctors that authorized Actemra ... recommendation was to treat me with Actemra ... "AS IF" I had GCA.
Hi Was diagnosed with pmr a year ago . I was well , my symptoms were...
https://connect.mayoclinic.org/comment/1176435/
I was diagnosed with large vessel GCA ... choice but start high dose pred , and Actmera
"I did approach my new rheumatologist (first appt with her) about checking for antibodies to Actemra…....
https://connect.mayoclinic.org/comment/1176425/
) about checking for antibodies to Actemra ... worried about when I first started Actemra ... Was the relapse you had while on Actemra ... a PMR/GCA relapse? ... When Actemra enabled me to taper off
Dad cue, Thanks for the response, I know you are very well versed in this subject!...
https://connect.mayoclinic.org/comment/1176366/
the decision to add MTX and increase Actemra ... Relapsed on Actemra and prednisone, ... ) about checking for antibodies to Actemra ... MTX was started to help control the GCA ... it helping to prevent antibodies to Actemra
I have been on a combination Prednisone/Actemra injection for over a year and have had no...
https://connect.mayoclinic.org/comment/1173817/
have been on a combination Prednisone/Actemra ... The Actemra will hopefully help me come ... I had tests done for GCA that came back ... made sense to treat for both PMR and GCA
Hello everyone again, my insurance won’t cover Kevzara in 2025. Seem to be allergic anyway but...
https://connect.mayoclinic.org/comment/1173069/
allergic anyway but they will cover Actemra ... Still waiting for possible biopsy for GCA
I’m sorry I don’t have any experience with anti viral medicine. You mentioned you were diagnosed...
https://connect.mayoclinic.org/comment/1242857/
mentioned you were diagnosed with PMR and GCA ... My Rheumatologist is talking about GCA ... he wants me to take injections of Actimra ... sharing how you were diagnosed with GCA ... your symptoms that told Dr you had GCA
My rheumatologist said basically the same thing. I thought he had me confused for someone else...
https://connect.mayoclinic.org/comment/1242422/
Actemra gave me a new lease on life ... anymore as long as I do a monthly Actemra ... suggests a more chronic nature of GCA ... than the existing expectation that GCA ... overall condition is much better on Actemra
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