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723 total results
Comments (699)
I have PMR and GCA. I will be done with prednisone in 2 weeks, but I...
https://connect.mayoclinic.org/comment/1359889/
I have PMR and GCA. ... in 2 weeks, but I still take weekly Actemra
Wow! Very similar to my situation. Same symptoms in mid April except no vision loss as...
https://connect.mayoclinic.org/comment/1353480/
Biopsy May 21 confirmed GCA,
Started ... to 7.5 mg in three weeks and start Acterma
Interesting comment “you don’t look like the type who has GCA”. What does someone with GCA...
https://connect.mayoclinic.org/comment/1362485/
you don’t look like the type who has GCA ... What does someone with GCA look like ... Try discussing Actemra infusions.
Doc, I have been under treatment for GCA and PMR for 12 months. I started at...
https://connect.mayoclinic.org/comment/1343543/
Doc, I have been under treatment for GCA ... I have also been taking weekly Actemra ... any pain or symptoms at all from the GCA ... the combination of prednisone and Actemra
That sounds like a big disaster waiting to happen. You've been on prednisone a long time,...
https://connect.mayoclinic.org/comment/1332679/
I also take weekly Actemra injections ... , so my PMR and GCA are controlled by ... the Actemra. ... are not taking a biologic drug like Actemra
Generally speaking ... the likelihood of prednisone side effects are related to: 1) dose--the higher the...
https://connect.mayoclinic.org/comment/1334508/
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Actemra works ... for approximately 50% of GCA patients ... remission within a year of starting Actemra ... significantly less when treated with Actemra ... When Actemra works ... it works well
Have you checked with your doctor? You could be having a relapse of the GCA. I...
https://connect.mayoclinic.org/comment/1337481/
You could be having a relapse of the GCA ... I have read that Actemra doesn't ... relapse even when you're taking Actemra
Since I have never been diagnosed with GCA, I don't know how pertinent my experience with...
https://connect.mayoclinic.org/comment/1346153/
Since I have never been diagnosed with GCA ... I'm still doing monthly Actemra ... My experience with long term Actemra ... You will never know if Actemra will ... For me, Actemra continues to work so
"Frankly the list of side affects scares the heck out of me, and I’m wondering if...
https://connect.mayoclinic.org/comment/1347790/
I have been on Actemra for more than ... I was reluctant to start Actemra because ... was relatively new treatment for PMR/GCA ... at the time when I started Actemra. ... Actemra works well for me with almost
I don't have experience below 10 mg, but have you tried reducing by a half mg...
https://connect.mayoclinic.org/comment/1201287/
thing I have to my advantage is taking Actemra ... along with prednisone for the GCA.
That forum is very good if you are from the UK. I felt alienated on that...
https://connect.mayoclinic.org/comment/1199776/
Actemra is approved in the UK for GCA ... use of corticosteroids to treat PMR/GCA
Generally speaking it is patients without outward signs and symptoms suggestive of GCA. However, when other...
https://connect.mayoclinic.org/comment/1190945/
signs and symptoms suggestive of GCA ... However, when other means of detecting GCA ... artery biopsy and/or ultrasound, GCA ... It basically means people can have GCA ... the reasons why I was approved for Actemra
The last time I checked Kevzara was not sold as an infusion but Actemra is. I...
https://connect.mayoclinic.org/comment/1188499/
Kevzara was not sold as an infusion but Actemra ... prednisone alone or possibly get on Actemra ... infusions since I do have some GCA
I understand nanniepie's hesitancy. I'm also scared to start Actmra too. Methotrexate and Kevzara were terrible...
https://connect.mayoclinic.org/comment/1188175/
I'm also scared to start Actmra ... GCA??
Uveitis was just the start of things to come when I was 32 years old. I...
https://connect.mayoclinic.org/comment/1176552/
I know the difference so I deny GCA ... However, when Actemra was started, I ... the panel of doctors that authorized Actemra ... recommendation was to treat me with Actemra ... "AS IF" I had GCA.
Hi Was diagnosed with pmr a year ago . I was well , my symptoms were...
https://connect.mayoclinic.org/comment/1176435/
I was diagnosed with large vessel GCA ... choice but start high dose pred , and Actmera
"I did approach my new rheumatologist (first appt with her) about checking for antibodies to Actemra…....
https://connect.mayoclinic.org/comment/1176425/
) about checking for antibodies to Actemra ... worried about when I first started Actemra ... Was the relapse you had while on Actemra ... a PMR/GCA relapse? ... When Actemra enabled me to taper off
Dad cue, Thanks for the response, I know you are very well versed in this subject!...
https://connect.mayoclinic.org/comment/1176366/
the decision to add MTX and increase Actemra ... Relapsed on Actemra and prednisone, ... ) about checking for antibodies to Actemra ... MTX was started to help control the GCA ... it helping to prevent antibodies to Actemra
I have been on a combination Prednisone/Actemra injection for over a year and have had no...
https://connect.mayoclinic.org/comment/1173817/
have been on a combination Prednisone/Actemra ... The Actemra will hopefully help me come ... I had tests done for GCA that came back ... made sense to treat for both PMR and GCA
Hello everyone again, my insurance won’t cover Kevzara in 2025. Seem to be allergic anyway but...
https://connect.mayoclinic.org/comment/1173069/
allergic anyway but they will cover Actemra ... Still waiting for possible biopsy for GCA
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