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Comments (10,000+)

In 2008 my mother had GCA at age 87. I took her to specialist after specialist...

https://connect.mayoclinic.org/comment/1197316/

Currently I have PMR and am doing very ... support group called "Living With PMR

Discussion: Worried about GCA

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 26, 2024

I totally get the "Sweet Tooth" topic, and have found myself with a spoon in the...

https://connect.mayoclinic.org/comment/1151801/

of feeling better with this crappy PMR ... After my initial diagnosis of PMR, possible

Discussion: PMR Diet: Foods to eat and avoid

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 4, 2024

Thank-you for saying that. I think I'm doing "reasonably well" but I wouldn't go so far...

https://connect.mayoclinic.org/comment/1147500/

Then PMR resurfaced when I was off Actemra ... Unfortunately, PMR symptoms returned

Discussion: PMR and Fatigue. Interesting study

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 26, 2024

I’m sorry you got COVID. That is not fun at all. My family is trying to...

https://connect.mayoclinic.org/comment/1140862/

My dad has PMR. ... Back in 2022 (he still had PMR then)

Discussion: Covid and pmr

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 13, 2024

This article does not really surprise me. Prednisone is known to affect the cardiovascular system and...

https://connect.mayoclinic.org/comment/1101125/

lunch when it comes to medications for PMR ... Before I got PMR I had some irregular

Discussion: Risk of cardiovascular disease while on Prednisone.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 7, 2024

I was never diagnosed with GCA but Actemra was offered to me almost 5 years ago...

https://connect.mayoclinic.org/comment/925365/

offered to me almost 5 years ago for PMR ... prednisone daily for 12 years for chronic PMR

Discussion: What's your experience with Actemra for GCA?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 6, 2023

Looks like PMR might be the journey I’m on. I was an active 75 year old...

https://connect.mayoclinic.org/comment/911263/

Looks like PMR might be the journey ... daughter who suggested looking at PMR

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 11, 2023

So sorry to hear about your onset of PMR at such a young age. Hopefully with...

https://connect.mayoclinic.org/comment/617331/

sorry to hear about your onset of PMR ... diseases and illnesses, combined with PMR

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 17, 2021

I just started Actemra infusions and am quite hopeful after getting more information about the drug...

https://connect.mayoclinic.org/comment/1318221/

the clinical trials of both, 28% of PMR

Discussion: Actemra Infusions

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 1 10:03pm

When do you start the Actemra infusions? I hope you have an excellent response to Actemra....

https://connect.mayoclinic.org/comment/1109249/

PMR was diagnosed when I was 52. ... After PMR was diagnosed, I took prednisone

Discussion: Changing from prednisone to NSAID’s

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 21, 2024

I can tell you aren't in the USA so I don't really know how it works...

https://connect.mayoclinic.org/comment/1101995/

another condition that wasn't PMR ... For PMR, my rheumatologist would set

Discussion: Feelings when tapering: My journey

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 9, 2024

I think it’s more likely to depend on which you tolerate best because some statins are...

https://connect.mayoclinic.org/comment/1075419/

the moment he’s also struggling with PMR ... trying to manage the complexity of the PMR

Discussion: Which is the best statin for preventing further plaque growth?

Support Group: Heart & Blood Health

Posted: May 26, 2024

My last two attempts at tapering when below 5 mg ignited a swollen painful hands response....

https://connect.mayoclinic.org/comment/934148/

I started out with classic pmr hip and ... I've never had a rash from pmr or

Discussion: Swollen hands, rash with PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 22, 2023

In my case I waited 8 months to get an appointment with a rheumatologist that I...

https://connect.mayoclinic.org/comment/854234/

by the prednisone and were causing PMR ... under control she is working on my PMR

Discussion: Is everyone here diagnosed with PMR seeing a rheumatologist?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 4, 2023

I think my PMR started with a hamstring tear in Dec. What? I have long hamstrings...

https://connect.mayoclinic.org/comment/848336/

I think my PMR started with a hamstring ... So I think my PMR crept up on me over

Discussion: Muscle tears and PMR and/or pred?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 24, 2023

Hi @lmdohrman, I was not diagnosed for a year. I think I had the pain of...

https://connect.mayoclinic.org/comment/718050/

I think I had the pain of PMR for about ... an intial dosage of about 10 mg for PMR

Discussion: PMR Dosages and Managing Symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 16, 2022

I am newly diagnosed with PMR. I am 76. Have not yet started Prednisone but will...

https://connect.mayoclinic.org/comment/615957/

I am newly diagnosed with PMR. ... She says, probably PMR.

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 12, 2021

Hi Dorothy @oakbourne, Thanks for the private message. I thought I would answer your message in...

https://connect.mayoclinic.org/comment/272559/

occurrences of polymyalgia rheumatica (PMR ... to my knowledge that can help with PMR

Discussion: Bronchiolitis Obliterans with Organizing Pneumonia (BOOP)

Support Group: Lung Health

Posted: Nov 24, 2020

Hi @ambershe, welcome to Mayo Clinic Connect. I also have polymyalgia rheumatica (PMR) but it is...

https://connect.mayoclinic.org/comment/137879/

also have polymyalgia rheumatica (PMR ... This last occurrence of PMR I had I

Discussion: How to address PMR pain while decreasing prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 9, 2019

Hi @lioness, thanks for your private message. You mentioned you have the same diagnosis I have...

https://connect.mayoclinic.org/comment/137663/

I've had this old man PMR shuffle since ... I'm not sure it helps with the PMR but

Discussion: How to address PMR pain while decreasing prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 16, 2018