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Comments (2,422)

Hello, it seems like some of us react differently to drugs, thus the long list of...

https://connect.mayoclinic.org/comment/1216398/

wanted to put me on it and put down GCA

Discussion: Eye issues while on prednisone and Anterma

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 19 10:16am

Hi @anncoco57, before diagnosis and treatment, I had incredible pain and stiffness throughout my body from...

https://connect.mayoclinic.org/comment/1161059/

was diagnosed, after a year, I had GCA

Discussion: Pain - at back of knees?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 22, 2024

You mentioned doctors, but have you seen a rheumatologist? Your CRP and ESR can be normal....and...

https://connect.mayoclinic.org/comment/865506/

add....I don't have it, I have GCA

Discussion: PMR with normal blood markers

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 23, 2023

I currently have PMR/GCA. I was diagnosed February 3. I had some ups and downs because...

https://connect.mayoclinic.org/comment/846627/

I currently have PMR/GCA.

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 21, 2023

@amptrooper - You said you have had all types of blood work. I guess they have...

https://connect.mayoclinic.org/comment/88676/

not have to be really high to have GCA

Discussion: Adjusting to life with temporal arteritis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 2, 2019

GCA sounds so 😱 scary. My father had PMR and never developed it. I hope and...

https://connect.mayoclinic.org/comment/1024732/

GCA sounds so 😱 scary.

Discussion: Pericarditis with PMR and Scleroderma

Support Group: Autoimmune Diseases

Posted: Feb 29, 2024

I was diagnosed with GCA in 2020 and put on 80 mg. Do Prednisone ( which,...

https://connect.mayoclinic.org/comment/931256/

I was diagnosed with GCA in 2020 and

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 17, 2023

Thank you John. I am down to 17;5nmg per day may have mistyped. I'm dropping .5...

https://connect.mayoclinic.org/comment/137783/

Thank you for the link to other GCA

Discussion: How to address PMR pain while decreasing prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 21, 2018

I too forgot to mention that i have gca and pmr as well. Please let me...

https://connect.mayoclinic.org/comment/1023419/

too forgot to mention that i have gca

Discussion: GCA prednisone vs. actemra infusion therapy

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 27, 2024

Go to a vascular doctor. I have PMR and some GCA symptoms. They will not do...

https://connect.mayoclinic.org/comment/800908/

I have PMR and some GCA symptoms.

Discussion: Adjusting to life with temporal arteritis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 24, 2023

It might have been because of the infusions of high dose steroid that I had, but...

https://connect.mayoclinic.org/comment/1283899/

the weight I had lost from PMR and GCA

Discussion: Can you split Prednisone dose for GCA?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 17 9:59am

Thanks for this information. I have an appt this Tuesday with my rheumatologist to discuss adding...

https://connect.mayoclinic.org/comment/1203771/

60 mg of pred in late July 2024 for GCA ... I think GCA has reared it's ugly

Discussion: How did you cope with the side effects tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 4 12:38pm

I was diagnosed with GCA/PMR in October 2023. Put on 60 to 40 mg prednisone for...

https://connect.mayoclinic.org/comment/1210397/

I was diagnosed with GCA/PMR in October ... on 60 to 40 mg prednisone for the GCA

Discussion: ACR Convergence 2023 Nov -Program abstracts are available for view

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 13 7:56am

Hi @tiilysam, before being diagnosed with GCA and starting prednisone, 40 mg. in May 2021, I...

https://connect.mayoclinic.org/comment/700177/

tiilysam, before being diagnosed with GCA ... read, if your pain is from PMR and GCA

Discussion: Anyone have discomfort or pain when tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 18, 2022

Welcome @kvd9, I'm sorry to hear you are experiencing a relapse with PMR. I'm currently in...

https://connect.mayoclinic.org/comment/675156/

recently in another discussion here - GCA ... /connect.mayoclinic.org/discussion/gca-and-pmr-some-study-updates

Discussion: Alternative to Prednisone for Treating PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 26, 2022

Hi @sophie32. I was diagnosed with Giant Cell Arteritis in June of 2019. I hope you...

https://connect.mayoclinic.org/comment/88740/

rheumatologist for your new diagnosis of GCA ... right eye, which is a common fear with GCA

Discussion: Adjusting to life with temporal arteritis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 2, 2021

I was diagnosed with PMR in October 2018. Started on 25 mg Prednisolone. Stopped taking the...

https://connect.mayoclinic.org/comment/967276/

Naturally, I was afraid that I had GCA ... Again, I was told that I did not have GCA ... This time, GCA was detected. ... It turns out that I still have GCA but ... So, it seems that GCA is not just something

Discussion: How often does PMR progress to GCA?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 19, 2023

I agree with everything said about “normal”ESR stats, they don’t exist. I was diagnosed with PMR...

https://connect.mayoclinic.org/comment/1223131/

I started developing symptoms of GCA ... argued with me that I couldn’t have GCA

Discussion: what does the community consider a normal SED rate for GCA/PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 27 12:06pm

My rheumatologists group follows a protocol and most all their PMR patients are off Pred within...

https://connect.mayoclinic.org/comment/1237389/

Actemra was only FDA approved for GCA ... and I didn't have GCA.