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979 total results
Comments (950)
What biologic was tried?? The only biologic that I'm aware of and the only one that...
one that is FDA approved for GCA is Actemra ... I was diagnosed with PMR in 2008 so ... don't know for sure if it was PMR ... In early 2019, Actemra (tocilizumab) ... Actemra (tocilizumab) was restarted
Discussion: PMR coming back?
Posted: Aug 13, 2020
I don't really know how long I will remain on Actemra. I have had a total...
really know how long I will remain on Actemra ... #39;s experience with tapering off Actemra ... recently FDA approved for GCA but not PMR
I first started Actemra (tocilizumab) on January 1st, 2019. I liked the symbolism of starting a...
I first started Actemra (tocilizumab ... had never heard of any biologic for PMR ... When I started the Actemra injections ... while on Humira but the pain from PMR ... I still take Actemra injections every
I was diagnosed with GCA in January 2020 - my sed rate was 117 - and...
I began getting weekly Actemra injections ... Here are links to some info about Actemra ... tocilizumab-shows-promise-as-a-new-treatment-for-gca-pmr ... / https://www.actemra.com/gca/about-actemra ... /actemra-for-gca.html Reading over
Posted: Mar 30, 2020
My PMR started back in 2013. And it was really touch and go with exercise but...
My PMR started back in 2013. ... three years I recover somewhat and PMR ... am still on 7 mg of prednisone plus Actemra
Posted: Jul 25, 2021
Same here! For many of those 50 years, I had inflammatory arthritis where I took high...
prednisone for years like I did for PMR ... #39;t know what was different about PMR ... Actemra was called a last resort. ... rheumatologist in Italy started her on Actemra ... wish I knew how her experience with Actemra
Posted: Apr 12 2:22pm
As far as I know she's still taking Actemra with no problems and also taking a...
far as I know she's still taking Actemra ... I guess people with PMR can take Kevzara ... now if their PMR is resistant to standard ... At that time it looked like Actemra ... I think Actemra has come down now to
Posted: Apr 12 3:12pm
Yes ... there are a couple of biosimilars to Actemra (tocilizumab). This is beneficial for people...
Kevzara was FDA approved for PMR 2023 ... the primary cytokine implicated in PMR ... Kevzara is only approved for PMR. ... If a person has both PMR and GCA, either ... I was diagnosed with refractory PMR
Posted: Apr 12 4:15pm
I was diagnosed with PMR and possible GCA in July 2024. Started on 60 mg. of...
I was diagnosed with PMR and possible ... requested that my rheumatologist order Actemra ... I chose to use Actemra due to the horrible ... I know that Actemra has it's own
PMR patients and anyone else treated with long term prednisone are at risk of Prednisone induced...
PMR patients and anyone else treated ... of prednisone for 12 years to treat PMR ... Actemra didn't have any effect on ... More importantly, Actemra didn' ... Actemra controlled my PMR symptoms so
"One usually stays on a dose that completely controls PMR pain until the inflammatory tests return...
on a dose that completely controls PMR ... discontinue prednisone which was why PMR ... inflammation markers but still have PMR ... I believe they have PMR because they ... were diagnosed with PMR.
I agree with you about continuing endurance exercise. What didn't work for me was long term...
my endurance and I don't think PMR ... overwhelming fatigue" at the start of PMR ... PMR pain decreased but then I had no ... PMR is well controlled by Actemra but ... My rheumatolgist says I still have PMR
Posted: Apr 12 8:01am
Hello @smoshetti, Welcome to Connect. Sorry your husband has to deal with PMR along with his...
Sorry your husband has to deal with PMR ... My PMR is now in remission. ... experience using methotrexate for PMR ... discussions helpful: -- Methotrexate / Actemra ... connect.mayoclinic.org/discussion/methotrexate-actemra
Posted: Jan 7 7:48am
You might want to mention Kevzara for PMR because it is FDA approved for PMR. Actemra...
might want to mention Kevzara for PMR ... because it is FDA approved for PMR. ... Actemra still isn't FDA approved ... for PMR but it is for GCA. ... to get authorization for me to get Actemra
Posted: Feb 3 8:47pm
I'm 71 and have GCA and PMR. I started on 60 mg prednisone last July and...
I'm 71 and have GCA and PMR. ... prednisone last July and added weekly Actemra
Posted: Feb 9 10:55am
jmdougherty: Do not have PMR just Giant Cell Arteritis and have been on Prednisone 80, 100,...
jmdougherty: Do not have PMR just Giant ... tapering in August '24 , then on Actemra ... Tomorrow I meet with her and get Actemra
Discussion: Actrema advice
Posted: Mar 10 2:22pm