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Comments (10,000+)

Well don't feel bad, now let me tell you what I tried. I had been on...

https://connect.mayoclinic.org/comment/169629/

Yes they say the PMR will go away by

Discussion: New to PMR and worried about Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 28, 2017

Edwardh, I've posted before about having muscle problems. I have GCA and PMR, and started having...

https://connect.mayoclinic.org/comment/1211086/

I have GCA and PMR, and started having

Discussion: Prednisone cumulative dose in PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 14 7:46am

jmdougherty: Do not have PMR just Giant Cell Arteritis and have been on Prednisone 80, 100,...

https://connect.mayoclinic.org/comment/1254874/

jmdougherty: Do not have PMR just Giant

Discussion: Actrema advice

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 10 2:22pm

I received my first Actemra infusion in January 2025. I started feeling better about 3 weeks...

https://connect.mayoclinic.org/comment/1256045/

good as I've felt, since before PMR

Discussion: Should I have temporal biopsy for GCA even after 8 weeks prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 12 8:07am

What I have found from the chat room, other PMR people, and my own Dr is...

https://connect.mayoclinic.org/comment/1332891/

have found from the chat room, other PMR

Discussion: Recently Diagnosed PMR Disease Progression

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 22 3:33pm

"If the doctor is in too big a hurry to get you off prednisone, that can...

https://connect.mayoclinic.org/comment/1335121/

#34; because they were sure it was PMR

Discussion: Decreasing Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 25 4:26pm

back to the beginning for me It was Thanksgiving 2018. I got up that morning or...

https://connect.mayoclinic.org/comment/923166/

researched rheumatic conditions, found pmr ... called my pcp, told her I thought that pmr ... He agreed with the pmr diagnosis.

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 2, 2023

I was put on 12 - 15 mg pred almost a year ago - told to...

https://connect.mayoclinic.org/comment/628429/

pred was a revelation as my horrible PMR ... quickly, and it's not a return of PMR ... happens in different places for me than PMR

Discussion: PMR Dosages and Managing Symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 21, 2021

Glad to hear someone else had the same feelings as I did using methylprednisolone. I am...

https://connect.mayoclinic.org/comment/1209015/

I am not far into PMR.

Discussion: Comprehensive Overview Of PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 11 10:44am

Yes ... I think this approach works for many people especially in the early stages. It...

https://connect.mayoclinic.org/comment/1241520/

do a split dose for the duration of PMR

Discussion: Prednisone dosage split

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 20 12:19pm

I’m doing very slow tapering: only by .5 change: 7 days old 1 day new 6...

https://connect.mayoclinic.org/comment/1186645/

this from the Facebook group page for PMR

Discussion: Still confused about tapering

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 8, 2024

Yes! ... I believe stress --- the immune system --- and inflammation are all interconnected somehow....

https://connect.mayoclinic.org/comment/1185239/

plays out so as to trigger flares of PMR

Discussion: Anyone having flareups of PMR after stressful situation?”

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 6, 2024

66 now. Started symptoms three days before Christmas when I was 63. Woke up one morning...

https://connect.mayoclinic.org/comment/1292390/

every six months decides I don’t have pmr

Discussion: I’m just wondering how old most of you are with PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 29 5:27am

Not only does a dry sauna help with the symptoms (pain and inflammation) but it does...

https://connect.mayoclinic.org/comment/1319115/

ever know exactly what caused our PMR

Discussion: Use of a sauna with PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 3 6:48am

Walk barefoot to reduce foot pain and neuropathy (numb toes and ball of foot)? OK- I...

https://connect.mayoclinic.org/comment/1155276/

I am almost totally recovered from PMR

Discussion: Anyone try earthing/grounding for pain relief?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 11, 2024

I am 83, diagnosed with PMR in January 2023. I am also retired military after 36...

https://connect.mayoclinic.org/comment/1145580/

I am 83, diagnosed with PMR in January

Discussion: Return of fitness

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 22, 2024

I was diagnosed with PMR about one year ago. I started at 20 mg of Prednisone...

https://connect.mayoclinic.org/comment/1144606/

I was diagnosed with PMR about one year

Discussion: Feelings when tapering: My journey

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 20, 2024

"It's one thing after another, over and over again. I wonder what the next thing will...

https://connect.mayoclinic.org/comment/1142179/

it was one thing after another with PMR

Discussion: Thrush

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 15, 2024

There are mixed reviews on CBD but with THC (MJ) many are finding relief from pain...

https://connect.mayoclinic.org/comment/1136090/

Many with PMR are having great success

Discussion: Anyone tried CBD oil or medical marijuana for PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 4, 2024

To Christopherc: Don’t know if your comment was meant for me or not, my taper to...

https://connect.mayoclinic.org/comment/1112247/

, osteoarthritis in addition to my PMR

Discussion: Changing from prednisone to NSAID’s

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 26, 2024