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1,063 total results
Comments (1,033)
Yes ... I started Actemra (tocilizumab) more than five years ago on January 1st 2019. I...
https://connect.mayoclinic.org/comment/1101410/
then after 12 years of prednisone for PMR ... had other problems in addition to PMR ... It is difficult to find PMR patients ... atorvastatin for years ... soon after PMR ... Nobody ever blamed PMR for causing my
Trigeminal Neuralgia was dreadful. I didn't ever know when those flares would happen. The wind was...
https://connect.mayoclinic.org/comment/1100379/
trigeminal neuralgia might have triggered PMR ... I thought PMR was a blessing because ... Until PMR was diagnosed, I had to wait ... Actemra allowed me to get off Prednisone
@dadcue Wow! I'm sorry it took so long to get PMR under control. I just wonder...
https://connect.mayoclinic.org/comment/1099907/
#39;m sorry it took so long to get PMR ... Diagnosed with PMR in May 2023, 30 mg ... He started Actemra a few months ago
@dadcue I had no idea you've been through so much!! And for so long. I'm so...
https://connect.mayoclinic.org/comment/1099854/
;s able to taper more quickly with Actemra ... Last time we tapered on PMR to 12.5 ... I'm so glad to hear Actemra is a
I don't know how to control "all other factors being equal." I don't think it exists...
https://connect.mayoclinic.org/comment/1094154/
sure if it is something inherent to PMR ... term Prednisone for the treatment of PMR ... For me at least, I wish Actemra had ... Technically Actemra still isn't ... an option for PMR but it is for GCA.
well thats the thing. just like what started the disease everyone is different. I think there...
https://connect.mayoclinic.org/comment/1093989/
think there can be different levels of PMR ... like I was pretty lucky to have my PMR ... for 10 plus years and still taking Actemra ... symptoms, I would say likely your PMR
@pargeo47 I can only speak from our experience - my husband is the one with PMR....
https://connect.mayoclinic.org/comment/1087808/
experience - my husband is the one with PMR ... arteritis - something about 25% of PMR ... 2024 tapering now to 20 (also taking Actemra ... That's the goal here, and the Actemra ... All these drugs, including Actemra (
I agree with everything that has already been posted. I'm not sure how much my experience...
https://connect.mayoclinic.org/comment/1087337/
not sure how much my experience with Actemra ... When I tapered off Prednisone, Actemra ... prednisone being the "only option for PMR ... of Prednisone weren't like a PMR ... PMR was controlled well but "other
Controversial subjects don't have to be toxic. A "healthy debate" is a good thing. I still...
https://connect.mayoclinic.org/comment/1085495/
think about a "self proclaimed PMR ... disputing my personal experience with Actemra ... Whether or not you try Actemra is a ... My adrenals were struggling but Actemra
marymckeith here is the response from the lady on the other facebook page I belong to....
https://connect.mayoclinic.org/comment/1084392/
Rheumatologist thinks I have RA and PMR ... I tried Actemra didn't work, he
I need to ask how long you took prednisone before Kevzara was started. Research studies usually...
https://connect.mayoclinic.org/comment/1079883/
I have taken Actemra for more than ... I had relapses when Actemra was stopped ... rheumatologist doesn't have a plan to stop Actemra ... I still do a monthly infusions of Actemra ... have any serious side effects from Atemra
I’ve had no markers and have had PMR for almost 4 years now…was off prednisone after...
https://connect.mayoclinic.org/comment/1076403/
I’ve had no markers and have had PMR ... is certainly wonderful …fyi I’m on Actemra
You are one of the lucky ones if just on since February. Many get caught for...
https://connect.mayoclinic.org/comment/1074590/
You can get off as long as the PMR is ... Seems they would try a newer drug like Actemra ... PMR is a nasty condition made worse ... But PMR does not seem to be something
Sorry to hear about the glioblastoma. I'm a retired neurosurgery nurse. I don't think this concept...
https://connect.mayoclinic.org/comment/1074475/
prednisone for 12 years for "refractory PMR ... started on a biologic medication called Actemra ... Many things happened but not a PMR flare ... I still do a monthly infusion of Actemra ... and haven't had any PMR relapses
I am 60 years old and was in the hospital for 5 days last July with...
https://connect.mayoclinic.org/comment/1073123/
hospital for 5 days last July with PMR ... 6MG Prednisone and a weekly shot of Actemra
Hello @papas, You will notice that we merged your discussion into an existing discussion on the...
https://connect.mayoclinic.org/comment/1068563/
.
--- Anyone tried Actemra (Tocilizumab ... ) to treat PMR? ... /connect.mayoclinic.org/discussion/actemra-tocilizumab-to-treat-pmr
My husband started a statin months after his PMR diagnosis (diagnosed with PMR in May 2023)....
https://connect.mayoclinic.org/comment/1065339/
started a statin months after his PMR ... diagnosis (diagnosed with PMR in May ... still on high-dose prednisone and Actemra ... understanding is that people who develop PMR
Hi @rn1024, I had a positive result temporal artery biopsy with no side effects. Your symptoms...
https://connect.mayoclinic.org/comment/1061527/
're not on Prednisone with the Acterma ... A doctor told me that PMR responds to
I have been on Actemra for more than 4 years. I haven't had any serious side...
https://connect.mayoclinic.org/comment/1060785/
I have been on Actemra for more than ... My symptoms return whenever Actemra ... I do well on Actemra and my overall ... I took Prednisone for 12 years for PMR ... before Actemra was tried.
I can relate to much of it ... I was diagnosed with ax-SpA about 35 years...
https://connect.mayoclinic.org/comment/1050543/
Prednisone followed by a fast taper before PMR ... doctor or a rheumatologist until after PMR ... PMR diagnosed over 15 years ago --- ... Humira didn't seem to work well for PMR ... I switched back to Actemra --- good
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