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934 total results
Comments (886)
First I am in total awe that you can casually say you walked 2 miles. I...
I was diagnosed with PMR in early 2020 ... As for your effort to get off your PMR ... and then staying at that painful level ... free level then try again in 2-4 weeks ... knees that have no relationship to PMR
I was diagnosed with PMR around the same time as you. That is the only time...
I was diagnosed with PMR around the ... Prednisone since then at different levels ... Really PMR could be in remission and ... When dealing with PMR, it is difficult ... could be stenosis and not PMR.
@54pontiac I’ve had a long history (50 years!) of off/on prednisone use that has left me...
.When I was just at the osteopenia level ... do weight bearing exercise but the pain ... water exercise for our arthritis and PMR
@susanew, My first time with PMR it took 3 and half years to taper off of...
@susanew, My first time with PMR it ... could finally stop taking it and my level ... of pain was acceptable in the morning
Posted: Aug 16, 2024
I’m coming to you as someone who has both PMR and Fibro for 15 years! That...
coming to you as someone who has both PMR ... One way to tell if you have PMR is… ... upper arms is pretty convincing for PMR ... I have been on prednisone for the PMR ... for 5 years, but my pain levels went
Discussion: Fibro or PMR
Support Group: Fibromyalgia
Posted: Aug 12, 2024
My experience was the same. Tapering off Prednisone is uncomfortable and painful even when PMR isn't...
is not as bad as PMR pain. "Niggles ... to zero simply because my cortisol level ... tell me to wait until my cortisol level ... lower than 3 mg until my cortisol level ... know waiting and checking a cortisol level
Posted: Aug 8, 2024
I believe I have had PMR for a least a year. Up until 6 months ago...
I believe I have had PMR for a least ... Up until 6 months ago I thought the pain ... When I went to ER with extreme pain ... physician in a few minutes know it was PMR ... level and continue in this patern.
Posted: Jul 22, 2024
Bad luck! But at least you have pred with you so you can relieve the pain....
pred with you so you can relieve the pain ... Do you have PMR and just had a flare ... I have PMR and was able to contact my ... inflamation marker crp was way high the level
I had the most trouble tapering in my first occurrence of PMR during the last six...
tapering in my first occurrence of PMR ... and not have significant (for me) pain ... I only went up if my level of pain in
Discussion: Traveling with PMR
Posted: Jul 9, 2024
Hello @tiateacake, Welcome to Connect. I don't think it's something you have to get used to...
helped me was keeping a daily log of my level ... of pain when I woke up along with my ... everyone is different when it comes to PMR ... Do you keep a daily log of your level ... of pain and prednisone dosage?
Posted: Jul 8, 2024
Yes ... I started Actemra (tocilizumab) more than five years ago on January 1st 2019. I...
then after 12 years of prednisone for PMR ... had other problems in addition to PMR ... It is difficult to find PMR patients ... Nobody ever blamed PMR for causing my ... didn't have any huge amount of pain
Keep up the good work. Assuming PMR symptoms are controlled, taking the lowest possible dose of...
Assuming PMR symptoms are controlled ... the best thing by far as long as the pain ... is tolerable or the pain can be controlled ... won't help boost your cortisol level
Posted: Jun 30, 2024
I was diagnosed exactly 6 months ago. 20mg of prednisone and then 8mg of Medrol were...
to 12 mg and doing okay in terms of pain ... exposure, oxidative stress, mineral levels ... , vitamin levels, hormones, thyroid, ... symptoms - no pain, no stiffness. ... okay dealing with this beast called PMR
Posted: Jun 27, 2024
@pargeo47 I can only speak from our experience - my husband is the one with PMR....
experience - my husband is the one with PMR ... arteritis - something about 25% of PMR ... needed help immediately due to his pain ... level. ... with manageable pain that they could
Posted: Jun 16, 2024
I agree with everything that has already been posted. I'm not sure how much my experience...
My cortisol level was low. ... of Prednisone weren't like a PMR ... rundown feeling, fatigue and some pain ... I don't expect to be pain free so ... the pain was tolerable.
I damaged my colon years ago trying to control cholesterol with statins. Another lesson about taking...
prednisone taper it can restart the PMR ... or simply mimic PMR with the pain. ... Kevzara is prescribed to keep you from a PMR ... At your prednisone level you can have ... your cortisol levels checked.
SUGAR! (for me anyway) And as already reported, we all draw the line at different points....
definitely refined sugar, always results in pain ... There is a certain level of accompanying ... off topic for what food can kick in PMR
@sharync, I think it has to do with controlling the inflammation and each of us are...
I have had two occurrences of PMR and ... The PMR went into remission for 6 years ... you are tapering off too fast....the pain ... level starts getting worse. ... you keep a log of the dosage and a pain
John, since you seem to be the person here who has dealt with pmr the longest,...
the person here who has dealt with pmr ... still off all meds and how is your pain ... level , energy , amount of fatigue,
Posted: May 20, 2019
I was fascinated with your post. I am 73 and was diagnosed with PMR in 1999....
I am 73 and was diagnosed with PMR in ... Both calves were very painful. ... off Prednisone, I feel those dreaded PMR ... (Though still in pain!) ... and, of course, will return to some level