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4,141 total results
Comments (3,926)
Hi, I'm Sally, I tested positive for autoimmune disease about 4 months ago. It's definitely neurological,...
drusen and optic atrophy, progressive neuropathy ... I know exactly what you're experiencing ... heat and cold therapy and it does help ... prescribed Gabapentin but, it doesn't help
Support Group: Neuropathy
Posted: Jul 22, 2022
I can't take any pain meds, and now that I've learned what gabapentin did to your...
meds, and now that I've learned what ... 'd taken the gaba and suffered what ... addressing the neuromas, peripheral neuropathy ... Helps tremendously with the intense
Support Group: Chronic Pain
Posted: Dec 2, 2023
Reading through some of these stories is very humbling. Unlike most of you, I'm extremely lucky...
you, I'm extremely lucky that my neuropathy ... if my methylprednisolone treatment helped ... and to see what they make of my phrenic ... team at Mayo Clinic doesn't know what ... compared to you all, who have dealt with neuropathic
Support Group: Neuropathy
Posted: Mar 19 12:30pm
I’m 50 and have been diagnosed with autonomic dysfunction and small fiber neuropathy and am non...
autonomic dysfunction and small fiber neuropathy ... getting worse but the fatigue is ruining what ... What can I do to help this?
Support Group: Neuropathy
Posted: Sep 12, 2023
Sorry to hear he’s going through this. I also experienced lots of lightheadedness and what I...
experienced lots of lightheadedness and what ... This helped but it wasn’t until I finished ... Only lingering side effect is neuropathy
Support Group: Pancreatic Cancer
Posted: May 6 9:42pm
@greathealth963 Have you tried taking over the counter Alpha Lipoic Acid and Acetyl L Carnitine supplements...
What about the lidocaine or capsaicin ... patches (Salonpas brand) and it seems to help ... some (I have idiopathic small fiber neuropathy ... Helps maybe a little but ai really don
Support Group: Neuropathy
Posted: May 1 7:59am
Hi @nancydehart, Welcome to Connect. I wished I had a good answer for you. There are...
one answer that fits every type of neuropathy ... The Foundation for Peripheral Neuropathy ... or more of the many discussions on what ... helps with neuropathy. ... search=neuropathy%20what%20helps.
Support Group: Neuropathy
Posted: May 6 5:48pm
Good evening @krishpatel02 and welcome to Connect. Your situation sounds challenging. It also sounds pretty similar...
It also sounds pretty similar to what ... I call it "neuropathic itch" ... flare, she was quite responsive and helpful
Support Group: Neuropathy
Posted: May 7, 2023
Hello @hrod. I am sorry to hear of your burning from allodynia, and fibromyalgia challenges over...
all of the creams and they did not help ... I found help at Mayo Clinic's Pain ... program treats allodynia, fibro, CSS, neuropathy ... no medical treatments provide the help ... get back to me with your thoughts on what
Support Group: Neuropathy
Posted: Apr 2, 2022
Thank you for moderating. Yes, you are correct, there are folks who wall off into camps......
What comes after being called "dangerous ... I have some neuropathy myself. ... I love volunteering and I love helping ... But simply try to help. ... I don't know what they did...but
Support Group: Neuropathy
Posted: May 11 6:02pm
Note: I posted this Start Discussion topic on the Neuropathy Forum earlier today. It was suggested...
this Start Discussion topic on the Neuropathy ... It was suggested I might get some helpful ... : POST: I’ve been AWOL from the Neuropathy ... What was the experience like? ... What was your pre-existing PN?
Support Group: Neuropathy
Posted: May 12 2:48pm
Welcome @darnocoll, Thanks for sharing your experience with what helps you. Have you been diagnosed with...
Thanks for sharing your experience with what ... helps you. ... Have you been diagnosed with neuropathy
Support Group: Neuropathy
Posted: May 14 7:21am
Good evening, @twinkie23; in your first sentence, you say you were diagnosed with SFN (small fiber...
were diagnosed with SFN (small fiber neuropathy ... This test determines what percentage ... Although the twice-a-week sessions help ... discussion for MFR and can be very helpful
Support Group: Neuropathy
Posted: Apr 8 8:27pm
What do I do? My fiance is type 2 Diabetic And also has neuropathy in the...
fiance is type 2 Diabetic And also has neuropathy ... Does it help to go to a podiatrist He ... gabapentin Lyrica and that does not help ... Anything that will help? ... Any help for us is appreciated.
Support Group: Neuropathy
Posted: Mar 20 4:22am
@sb4ca Everything you have written about sounds like an autoimmune problem to me. Do you see...
recommended but still pending until I decide what ... the back pain but probably won't help ... but didn't know what caused the ... sure that it is CIDP but peripheral neuropathy ... I feel like the peripheral neuropathy
Support Group: Spine Health
Posted: Mar 16 9:47am
I saw the NP at the office of my PCP a few weeks ago after I...
neurophysiologist next week, and from what ... Radiculopathy is often mistaken for neuropathy ... there are so many patients needing help ... In the end, it is what it is.
Support Group: Neuropathy
Posted: Mar 19 8:36am
I am on a feeding tube into my small intestine and I get sibo infections all...
I have 2 types of neuropathy. ... But I don't know that it is helping ... Sometimes it helps and sometimes it ... honestly don't think the doctors know what
Support Group: Digestive Health
Posted: Mar 19 9:10pm
@supernat10 You are definitely not alone!!! We are here to help each other to fill in...
We are here to help each other to fill ... your neurologist do the small fiber neuropathy ... because at the time they did not know what ... www.mayoclinic.org/diseases-conditions/autonomic-neuropathy ... /health/diseases/17479-small-fiber-neuropathy
Discussion: Unknown illness
Support Group: Autoimmune Diseases
Posted: Mar 22 5:31am
I'm in a similar position--I'm 58, 32 years poz, although I did take early HIV drugs...
I started getting neuropathy around ... spinal cord stimulator implanted to help ... I found it helpful to remember that ... could be how you're perceiving neuropathy ... pull the threads apart, to determine what
Discussion: HIV and Neuropathy
Support Group: Neuropathy
Posted: Apr 20 9:14pm
Hello @susiesprue, A lot of us get discouraged when looking for answers and not finding much...
looking for answers and not finding much help ... for the neuropathy symptoms. ... protocol of supplements I take for my neuropathy ... discussion so that you can read through what ... from the FAQs on the products website helpful
Support Group: Neuropathy
Posted: Apr 22 7:23am