Actemra – search | You searched for comments - Mayo Clinic Connect

To narrow your search, try adding quotation marks around phrases.

Search tips

Search by keywords or complete phrases.
To narrow your search, try adding quotation marks around phrases.
Example: "predictable behavior" will narrow the search results to only include content that has the exact phrase "predictable behavior" in it.

2,069 total results

Comments (2,004)

I got really tired of pain while going almost a year without my PMR and GCA...

https://connect.mayoclinic.org/comment/1276524/

started treatment (prednisone and Actemra ... 5 mg prednisone to go with weekly Actemra

Discussion: Better to be in some pain or better to up the dose of prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 7 2:23pm

My rheumatologist says he considers Actemra and Kavzara very similar and expects very similar results if...

https://connect.mayoclinic.org/comment/861867/

My rheumatologist says he considers Actemra ... I am using Acterma to taper off Prednisone ... Actemra is not officially FDA approved

Discussion: PMR: Are there treatment alternatives to Prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 18, 2023

I can’t tell you all how reassuring this PMR site has been. I appreciate hearing your...

https://connect.mayoclinic.org/comment/1290434/

I am anxious to start Actemra after ... And Actemra may also help with bone

Discussion: Could your PMR have been a result of the Covid mRNA vaccine?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 26 12:07pm

I had Actemra Infusions monthly for 6 months, until this past October. The only side effect...

https://connect.mayoclinic.org/comment/331095/

I had Actemra Infusions monthly for

Discussion: Anyone tried Actemra (Tocilizumab) to treat PMR? FDA approved for GCA

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 18, 2021

I can only speak to my case...my GCA diagnosis was missed for over nine months, and...

https://connect.mayoclinic.org/comment/882115/

on 80 mg methylprednisolone plus Actemra ... rheumatologist was reluctant to start me on Actemra ... mg and now take 3mg daily with my Actemra ... When you take Actemra, your inflammatory

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 20, 2023

Good luck with Actemra and I hope it works for you. It will take some time...

https://connect.mayoclinic.org/comment/836001/

Good luck with Actemra and I hope it ... It will take some time for Actemra to ... If Actemra allows you to get to something ... Actemra doesn't have the adrenal

Discussion: How hard is it to get on Actemra (Tocilizumab) with PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 2, 2023

Viruses evolve. For flu and Covid, they have to keep updating the vaccines to deal with...

https://connect.mayoclinic.org/comment/1314949/

That's the same year Actemra was ... I've been taking Actemra for 10

Discussion: When in PMR remission: What's your experience with covid vaccine?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 28 1:13pm

"Actemra (tocilizumab) can increase the risk of infections, including fungal infections, and individuals taking Actemra who...

https://connect.mayoclinic.org/comment/1272854/

"Actemra (tocilizumab) can increase ... infections, and individuals taking Actemra

Discussion: Infections and starting Actemra

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 2 6:20pm

Two reasons why I switched, both came from my doctor. First, I already had Osteopenia. Continuing...

https://connect.mayoclinic.org/comment/995190/

Pred and the doctor believed that Actemra ... I didnt have that on Actemra.

Discussion: GCA prednisone vs. actemra infusion therapy

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 10, 2024

Hi, I started on 20 mg four years ago. Tried to taper off twice and failed....

https://connect.mayoclinic.org/comment/748351/

Went on Actemra three months ago and ... Actemra is a wonder drug for me!!!

Discussion: Anyone tried Actemra (Tocilizumab) to treat PMR? FDA approved for GCA

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 11, 2022

I do a once a month infusion of Actemra too. I can take Prednisone if I...

https://connect.mayoclinic.org/comment/1068274/

I do a once a month infusion of Actemra

Discussion: On a hamster wheel with PMR.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 15, 2024

Thank you for your encouraging reply. I will try Actemra and if the steroid injection does...

https://connect.mayoclinic.org/comment/858417/

I will try Actemra and if the steroid

Discussion: Spinal steroid injections while on Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 11, 2023

I have been taking prednisone for 10 months and Actemra for 9. I gained a few...

https://connect.mayoclinic.org/comment/1296293/

taking prednisone for 10 months and Actemra

Discussion: Actemra and hives or itching on occasion? Weight gain?

Support Group: Autoimmune Diseases

Posted: May 4 9:32am

I think it might be a good sign that you had some side effects. I got...

https://connect.mayoclinic.org/comment/1282971/

still on a high dose of prednisone and Actemra

Discussion: Day 3 of 2mg

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 16 6:52am

Actually the treatments for PMR and GCA are not the same. The biologic drug Actemra is...

https://connect.mayoclinic.org/comment/1307925/

The biologic drug Actemra is approved

Discussion: Has anyone had their voice affected by Pmr? I have read that it is.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 19 3:08pm

I am starting Actemra treatment. I have had one injection and my next this upcoming week....

https://connect.mayoclinic.org/comment/727453/

I am starting Actemra treatment.

Discussion: Rinvoq for PMR and GCA - What's your experience?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 16, 2022

@loriesco We started the Forteo injections (daily) this week and were so dreading it!! However, like...

https://connect.mayoclinic.org/comment/1111892/

they're less painful than his Actemra

Discussion: Making a decision between Tymlos & Prolia

Support Group: Osteoporosis & Bone Health

Posted: Jul 25, 2024

I have both but the GCA was only discovered incidently, when searching for a reason for...

https://connect.mayoclinic.org/comment/286647/

though it's important to remain on actemra

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 1, 2020

A similar thing happened to me. Was initially on 20 mg/day of prednisone due to PMR/GCA....

https://connect.mayoclinic.org/comment/1348390/

also started on weekly injections Actemra ... period of 6 months while continuing the Actemra ... I ended up staying on Actemra for 2

Discussion: Diagnosed with PMR 16 days ago.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 14 7:36pm

i've been on pred about 2 1/2 yrs. Was down to 3mg and then had horrible...

https://connect.mayoclinic.org/comment/977797/

my doc recommends Actemra Infusion which

Discussion: How long has PMR lasted - I'm trying to find the average

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 9, 2023