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Comments (10,000+)

It's my understanding the maximum out-of-pocket cost for prescription drugs under Medicare Part D is capped...

https://connect.mayoclinic.org/comment/1258721/

(Tier 5) and on the formulary for PMR

Discussion: Anyone tried Kevzara for PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 15 2:15pm

Hi, I've been diagnosed with PMR and have been on prednisone for 12 months. (continuing to...

https://connect.mayoclinic.org/comment/1246539/

Hi, I've been diagnosed with PMR

Discussion: Rheumatoid Arthritis (RA) - Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Feb 27 10:29am

I know mine was a result of both Covid vaccines. Pain in neck and shoulders started...

https://connect.mayoclinic.org/comment/751916/

August 14, 2021 full blown PMR until

Discussion: Can PMR (Polymyalgia Rheumatica) be induced by vaccine?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 20, 2022

Hang in there Charlotte, I woke up one morning last March with a lot of strange...

https://connect.mayoclinic.org/comment/1226628/

infectious doctor diagnosed me with PMR ... It can be quite depressing having PMR

Discussion: Do I have polymyalgia rheumatica?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 1 5:25am

I have had edema in my legs, ankles and feet for 5 and a half years...

https://connect.mayoclinic.org/comment/1132326/

problems, not the least of which was PMR ... with edema while on steroids for my PMR

Discussion: Has anyone experienced edema in their ankles and feet?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 28, 2024

@bostonredsox1945, I have had PMR occurrences twice and both times my rheumatologist and primary care docs...

https://connect.mayoclinic.org/comment/1102396/

@bostonredsox1945, I have had PMR occurrences ... The big concern if you have PMR is that

Discussion: PMR pain and vision

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 9, 2024

I had heel spurs decades ago which were painful and tender, worst in the mornings. It...

https://connect.mayoclinic.org/comment/1097685/

I do think our systemic PMR inflammation ... few months ago while having my first PMR

Discussion: I keep relapsing when I try to get off prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 1, 2024

Leflunomide has an extremely long half-life so it is understandable that the rash persisted for 6...

https://connect.mayoclinic.org/comment/1019919/

though it was probably working for PMR ... The ideal medication for PMR/GCA would

Discussion: Has anyone tried the medication leflunomide?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 21, 2024

Thanks -- this is helpful! I'll try a 0.5 mg taper if my current session of...

https://connect.mayoclinic.org/comment/970791/

schedule, which is start with 15 mg (for PMR ... So I assume this is where the PMR has

Discussion: How often does PMR progress to GCA?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 26, 2023

My father has PMR and I have a different inflammatory arthritis along with other chronic pain...

https://connect.mayoclinic.org/comment/899908/

My father has PMR and I have a different ... He gets debilitating fatigue from PMR

Discussion: Successfully treated for Polymyalgia Rheumatica

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 21, 2023

Hi @grammy82, so glad you found us. I think the PMR/GCA group at Mayo Clinic Connect...

https://connect.mayoclinic.org/comment/856701/

I think the PMR/GCA group at Mayo Clinic ... I found it by Googling PMR and GCA shortly

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 8, 2023

Is "inflammatory arthritis" the same as "rheumatoid arthritis"? I'm pretty sure there were blood tests for...

https://connect.mayoclinic.org/comment/834654/

disease categories, certainly GCA and PMR ... The doctors have only focused on PMR

Discussion: How hard is it to get on Actemra (Tocilizumab) with PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 30, 2023

I agree. 72 and still working part-time. Was full time until the PMR kicked in full...

https://connect.mayoclinic.org/comment/713355/

Was full time until the PMR kicked in ... Ditto on the truly grateful PMR is not

Discussion: PMR - Decreased prednisone and pain returned

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 1, 2022

I was diagnosed with PMR 3 years ago and am still trying to taper off prednisone...

https://connect.mayoclinic.org/comment/709237/

I was diagnosed with PMR 3 years ago ... It appears I have had no PMR symptoms

Discussion: Prednisone tapering is challenging. What does remission feel like?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 18, 2022

@sue16833 and @sueinmn -- My PMR is in remission and I've had both Pfizer vaccines. I...

https://connect.mayoclinic.org/comment/610572/

@sue16833 and @sueinmn -- My PMR is ... agree that it's OK for prednisone/PMR

Discussion: VAERS reporting of symptoms after COVID-19 vaccine

Support Group: Post-COVID Recovery & COVID-19

Posted: Jun 21, 2021

When I started prednisone on my first bout with PMR it seemed to take all the...

https://connect.mayoclinic.org/comment/286680/

started prednisone on my first bout with PMR ... when I finished my first bout with PMR

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 29, 2020

Thanks Alan @alanbruce. I'm happy it's not the PMR. I have had similar experiences because I...

https://connect.mayoclinic.org/comment/137941/

I'm happy it's not the PMR. ... years to taper off the first time PMR

Discussion: How to address PMR pain while decreasing prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 7, 2019

Dear Toryf, I "feel" your pain! I was started at 20mg but told to drop after...

https://connect.mayoclinic.org/comment/1387176/

After 18 months I am pain free from PMR

Discussion: I am afraid the pain will never end.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: 6 days ago

Yes ... that might be true. I was referred to an endocrinologist when I was still...

https://connect.mayoclinic.org/comment/1391096/

needed that much Prednisone to control PMR

Discussion: I am afraid the pain will never end.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: 1 day ago

Thank you for the info. I am very frustrated about the additional medications needed to treat...

https://connect.mayoclinic.org/comment/1368942/

Is it PMR or side effects?

Discussion: Better to be in some pain or better to up the dose of prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 12 9:44am