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3,321 total results
Comments (3,129)
I have begun injections of Tyenne (biosimilar to Actemra) every two weeks. So far have had...
https://connect.mayoclinic.org/comment/1456663/
January 2025 and was diagnosed with PMR ... in March. 25 mg of prednisone gave ... I have been doing a very slow taper
Same here. I was very active till PMR in Feb 2024. I had COVID shot Oct...
https://connect.mayoclinic.org/comment/1457603/
I was very active till PMR in Feb 2024 ... I had COVID shot Oct 2023 and PMR 4 ... I took prednisone for a year. ... Finally tapered off and taking Hydroxychloroquine200
I had wrist and hand pains develop while tapering when I got down to about 7....
https://connect.mayoclinic.org/comment/1297243/
wrist and hand pains develop while tapering ... been kept in check (no pain) before PMR ... I have been off prednisone now for over ... forever reluctant to part with the prednisone
@cropdoc, @emo, @ae2024, and all... YES! ITS AWFUL! Since Covid last July and again in November,...
https://connect.mayoclinic.org/comment/1026834/
methatrexate 7.5 mg once weekly and 10mg Prednisone ... for PMR, GCA, and Sarcoidosis flares ... The PMR and GCA are residual from Covid ... believe she will help with sweating, PMR ... On paper towels to wipe my face and
I have no experience with Kevzara but I have over 15 years of experience with PMR....
https://connect.mayoclinic.org/comment/1141799/
have over 15 years of experience with PMR ... Actema (tocilizumab) after 12 years of PMR ... I tapered. ... Evidence suggests that PMR and GCA are ... I tapered off Prednisone and have remained
@mark1952 Thank you, I continue to be pain free with respect to both PMR/GCA while tapering...
https://connect.mayoclinic.org/comment/1447451/
be pain free with respect to both PMR ... /GCA while tapering prednisone, now ... days after I completed an 18 month prednisone ... taper for PMR. ... within 12 hours of the first dose of prednisone
Hi @tinman2020, I would like to add my welcome to Connect along with @colleenyoung and others....
https://connect.mayoclinic.org/comment/635921/
After I was diagnosed with PMR by a ... off of prednisone. ... of 0 to 10 along with the dosage of prednisone ... 6 years before my PMR came back. ... the inflammation to help with the PMR
I started drinking a collagen powder supplement in my coffee and after about 2 months my...
https://connect.mayoclinic.org/comment/944193/
coffee and after about 2 months my PMR ... didn’t put it together so I started prednisone ... So my dr diagnosed PMR. ... I am now 2 months into prednisone and ... beginning to taper down with good results
I was diagnosed in May 2025 by GP and rheumatologist. Pain started in the prior fall....
https://connect.mayoclinic.org/comment/1427658/
I have tapered down to 5mg of prednisone ... I am tapering again. ... I sure do hope it grows back when PMR ... Also, my rheumatologist said that prednisone
Maybe Actemra (tocilizumab) or Kevzara (sarilumab) would be helpful. I was recently diagnosed with gout ......
https://connect.mayoclinic.org/comment/1451118/
I was treated with prednisone until ... when Actemra finally allowed me to taper ... off prednisone in 2020. ... I have stayed off Prednisone ever since ... Prednisone is a treatment for gout so
Adrenal insufficiency is an often overlooked ramification of long term prednisone use. It may be a...
https://connect.mayoclinic.org/comment/1047294/
a reason why people are unable to taper ... and worsened as I tapered lower. ... symptom of adrenal insufficiency and PMR ... and that is the treatment for both PMR ... a biologic was started and my PMR symptoms
I’m in the same boat. Started with PMR, I think, then had the GCA symptoms but...
https://connect.mayoclinic.org/comment/332180/
Started with PMR, I think, then had ... , decided to put me on 15 mg Prednisone ... As I was tapering ( now know I went ... I’m slowly tapering, and I mean snail ... I too hate the prednisone but feel I
I would like to weigh in about PMR coming on gradually. My symptoms began in Jan....
https://connect.mayoclinic.org/comment/888645/
I would like to weigh in about PMR coming ... PMR was diagnosed and I am now on prednisone ... and tapering. ... So yes, PMR can be a gradual decline ... The prednisone seemed like a miracle
I also tapered off prednisone with only small flares. No prednisone after January. About 3 months...
https://connect.mayoclinic.org/comment/1317104/
I also tapered off prednisone with only ... No prednisone after January. ... During PMR I was also hobbled from my ... responds somewhat to ibuprofen, which PMR ... I wish the prednisone side effects would
I think PMR, like many things, is due to a combination of nature and nurture. My...
https://connect.mayoclinic.org/comment/1373482/
I think PMR, like many things, is due ... My mother had PMR during a stressful ... My grandmother died before prednisone ... My mother took prednisone and never ... Now that I have tapered off, some soreness
The recommendation from the Endocrine Society in the USA in collaboration with the European Society of...
https://connect.mayoclinic.org/comment/1319706/
I didn't need Prednisone anymore ... for PMR because Actemra was controlling ... my PMR symptoms. ... adrenal insufficiency in patients tapering ... for 12 years to treat PMR.
Hello @dalet72, Welcome to Connect, an online community where patients and caregivers share their experiences, find...
https://connect.mayoclinic.org/comment/629667/
It sounds like your PMR journey has ... "No diet is proven to make PMR ... that may be beneficial to people with PMR ... took 3-1/2 years to taper off of prednisone ... I was finally able to stop taking prednisone
Thanks for starting a PMR Group Ethan @ethanmcconkey! I hope other members with PMR will share...
https://connect.mayoclinic.org/comment/286534/
Thanks for starting a PMR Group Ethan ... I hope other members with PMR will share ... I've had 2 occurrences of PMR. ... off of prednisone. ... off of prednisone.
There are anecdotal positive reports on using Low Dose Naltrexone (LDN) to mitigate PMR pain. LDN...
https://connect.mayoclinic.org/comment/823766/
Dose Naltrexone (LDN) to mitigate PMR ... Here's a link to a 2014 journal paper ... a thread on this Mayo website for PMR ... positive initial results in relieving PMR ... connect.mayoclinic.org/discussion/ldn-and-prednisone
I am on my second taper. I am down to 1 1/2 mg prednisone. It's been...
https://connect.mayoclinic.org/comment/816883/
I am on my second taper. ... I am down to 1 1/2 mg prednisone. ... It's been 3 years of this PMR battle ... I found on this second taper that reducing
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